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Old 01-24-2012, 08:22 AM   #1
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New stroke guy 12/04/11

Hi everyone! I am new here and my name is John. I had a brain stem stroke12/04/11 at 3pm at home. One minute life was good without a care in the world and within 5 minutes it all went down the drain. My wife is a 20+year R.N and as such she saw the stroke when it was happening and called 911 for me. I was at the hospital within 20 minutes. After a CT scan it was determined I had a 2cm aneurysm that had NOT ruptured but a blood clot inside this aneurysm had broken off and traveled into the brain. They said they cant fix my aneurysm because of its location( Vertebral artery) and after 2 days in the hospital on Heparin I was sent home with meds. My left arm and left leg were affected and have that pins and needle thing but I have full use of both my left arm and leg with full strength and walk unaided. The right side of my face was out of wack but it has since returned to normal. I am now unable to work again in my field as for some strange reason they don't want semi truck drivers with aneurysms driving 80,000 trucks on the public hwy. I hope to get my eyes taken care of soon so I can again at least drive my car around town. My vision is 100% clear in both eyes but when used together I get a double image. I believe they can add a prism to my glasses to bring the image together again. This life changing event has alterd my life plans and I have yet to see where this stroke will take me. I will be hanging around the forum here and learn all I can from others! THANKS John

Last edited by goldsworthy; 01-24-2012 at 10:51 AM.

 
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Old 01-24-2012, 08:53 PM   #2
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Re: New stroke guy 12/04/11

Dear John
Welcome to the stroke board. You came to the right place for answers. I am 19 months stroke survior. Thank goodness your wife was around and knew what to do. My stroke happened at work and I denied the fact that I was a stroke and everyone I was working with thought it was funny I was walking strange. I never went to hospital till the next day.
It seems some of your stroke symptoms have left and you are so soon into recovery Im sure you will continue to improve. After my stroke I felt very anxious and scared. I was tired and so out of sorts. I couldnt walk so I used a wheel chair and I can tell you I now only use a cane when I am out shopping. I kept improving and I am still improving after 19 months. Make sure you demand answers from your doctors because you deserve the best of care. As for the tingling I never had that but Im sure you will hear from some people who did. My perifiral vision was effected I have drop foot, cant multi task or do math anymore. I have a hand tremor and cant tolerat noise. It did leave me in mirgrane but that has steadily improved and Nerve pain in my hip and leg also improving. I have made great progress and Im sure you will too it already sounds like your doing very well.
Be kind to yourself, rest and remember you will get better. How much you will improve we dont know but you will improved.
good luck and God Bless Mulchie

 
Old 01-26-2012, 04:42 PM   #3
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Re: New stroke guy 12/04/11

Well, today was busy for me, I decided to get out of the chair and get my future moving again. I took a walk, for 3 miles I walked unaided with no limping and found I wasn't even tired when I returned home. I am starting to think that I just may get back to normal again in short order. I have not had any therapy my R.N. wife feels that the PT is unnecessary in my case. I suffer no pain and even though my left arm and leg still have that nerve buzz I seem to have full strength in all my limbs. My vision is another story, I am still seeing double at a distance. I covered each eye and found that I have 100% clear vision along with all my peripheral vision so I think my double vision is caused by the muscles in my left eye not moving the eye along with the other side. I can only hope this clears up in time. I guess if it doesn't I can get some prism glasses made up to bring the image together. At this point I am hoping for a quick recovery!

Last edited by goldsworthy; 01-26-2012 at 04:46 PM.

 
Old 01-27-2012, 01:59 AM   #4
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Re: New stroke guy 12/04/11

G’Day John,
How are you going? Hope you and all your family are well. I suffered a brain stem clot on the 18/03/2010, I too got to the hospital within 20mins, but didn’t receive service as you did. I ended up in rehab for about 8/9 weeks, then 2-3 days a week for about a “long time”. I was 54 at the time.
At first I had no movement and numbness on the right side of my body. It was hard to sallow and I had serve double vision. After about 6 weeks the double vision disappeared.
I applied to regain my driver’s licence around Christmas 2010. After a 3 hr. test I got my car licence back, but not my truck licence, I used to be licenced to drive trucks up to 15 tonnes.
Physically I’m no were near as strong as I used to be, still unable to run, but that’s cool I’m working on it, and the numbness is still ever present. Emotionally I’m all over the shop.
It good you are walking and soon I bet you’ll be driving. You sound like a pretty positive bloke. Just listen to your body when exercising, and never say never, or give up. It’s a good idea hanging around this place, there’s always someone to help. No one knows strokes like a person that’s had a stroke, I mean that with respect to all.
Regard’s and good health
George

 
Old 01-27-2012, 02:09 AM   #5
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Re: New stroke guy 12/04/11

Quote:
Originally Posted by going to run View Post
G’Day John,
How are you going? Hope you and all your family are well. I suffered a brain stem clot on the 18/03/2010, I too got to the hospital within 20 mins, but didn't receive service as you did. I ended up in rehab for about 8/9 weeks, then 2-3 days a week for about a “long time”. I was 54 at the time.
At first I had no movement and numbness on the right side of my body. It was hard to sallow and I had serve double vision. After about 6 weeks the double vision disappeared.
I applied to regain my driver’s licence around Christmas 2010. After a 3 hr. test I got my car licence back, but not my truck licence, I used to be licenced to drive trucks up to 15 tonnes.
Physically I’m no were near as strong as I used to be, still unable to run, but that’s cool I’m working on it, and the numbness is still ever present. Emotionally I’m all over the shop.
It good you are walking and soon I bet you’ll be driving. You sound like a pretty positive bloke. Just listen to your body when exercising, and never say never, or give up. It’s a good idea hanging around this place, there’s always someone to help. No one knows strokes like a person that’s had a stroke, I mean that with respect to all.
Regard’s and good health
George
I too have a commercial truck driving licence over here you don't loose your license because of stroke. No one reports to the state so they never find out. I however will be surrendering my commercial license voluntarily. I will however keep my auto license.

Last edited by goldsworthy; 01-27-2012 at 07:48 AM.

 
Old 01-28-2012, 07:11 PM   #6
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Re: New stroke guy 12/04/11

Gettiing out of that chair was brave and pushing forward. Good for you.
What a great accomplishement and I can tell it did you a lot of good.
Having trouble typing tonight. I am too tired to be typing but I couldnt help but cheer you on. Keep up the good work. Keep in touch and let us know how yoru doing.
God Bless Mulchie

 
Old 01-29-2012, 04:52 AM   #7
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Re: New stroke guy 12/04/11

Well, my recovery goes on!, Things are improving at a fast pace. I have noticed a much clearer head the last 2 days and have been able to keep a regular sleep time at night and stay up all day, I suffer NO PAIN. The buzzing feeling in my left arm and leg have been getting less and less each day. My double vision is still there at a distance but close up the image is clear. I will give my eyes 1 more week to correct themselves before I seek out a eye doctor for some prism glasses. I have a brand new sports car that's just begging for me to drive it!. I am beginning to believe that I may have a 2nd chance at a wonderful life!. This stroke has given me a NEW OUTLOOK at just how important and short life is, I intend never to take my life for granted ever again! Considering my stroke happened December 4th 2011 less than 2 months ago, I feel my recovery without PT is going at a fast pace!. I TRULY HAVE BEEN BLESSED!

Last edited by goldsworthy; 01-29-2012 at 07:14 AM.

 
Old 01-29-2012, 05:22 PM   #8
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Re: New stroke guy 12/04/11

Hello John,

Welcome to our family of stroke survivors! We have such a wonderful group here, I am so happy you found your way here. What I first noticed was your positive attitude, and I promise you that will be your very best asset. The fact that you already recognize what a powerful event this is in your life is something that can take others forever to learn.

I had four strokes at the age of 43, nine years ago. The first years of my recovery were very slow, but I am still learning and growing in my recovery. I am one like you who has found my strokes to have been an amazing event in my life. The things I have learned about myself are so deep and meaningful to me. For one thing, to survive a stroke is to survive just about anything. Since then, I have been faced with some terribly difficult things in my life, particularly in the last six months, With those strokes under my belt, I have been able to face them with all the confidence in the world, that I can endure anything.

One of the greatest things I have learned is the greatest sense of appreciation for all things big and small. It took me three years to walk and talk and write and even think clearly. My recovery really took off when I found this place several years ago. Like many of here, I used this forum to get my words back, to put my thoughts back in order, and to express them in writing. I had always been a writer, and to have that gift open to me again was just fantastic. This is the place in which I realized I could still offer myself to others and be of help to other stroke survivors. While I will never work again in my field, this I can do, and it has been so meaningful to me.

I look forward to hearing you daily progress. I would encourage you to take your time in your recovery, as it is a process that does take your brain time to overcome. Have lots of patience with yourself, while enjoying the little accomplishments that come day by day.

I hope you find this place to be a great resource in your life after stroke. There is only so much the doctors can offer,but the real experiences you will find here are invaluable.

See you later!
janet

 
Old 01-30-2012, 10:34 AM   #9
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Re: New stroke guy 12/04/11

Well, another day another milestone!. Today I decided to drive my car for the first time since I had my stroke. I put a eye patch on so I wouldn't see double, hopped into my 5 speed manual transmission sports car and took off!. The drive went well for me even in heavy traffic and at fast speeds. Although my left leg and arm still have that nerve buzz I still managed to operate a clutch pedal without problem. One new problem I have noticed the last couple of nights I think I have a condition related to my brain stem stroke called Central sleep apnea. I have found myself waking suddenly at night and taking a big breath! Its scary to say the least and I will be telling my doctor about it on my next appointment. Other than that my recovery seems to be moving along at a brisk pace. The anxiety problems I had after my stroke seem to have worked itself out.

Last edited by goldsworthy; 01-30-2012 at 05:07 PM.

 
Old 01-30-2012, 07:41 PM   #10
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Re: New stroke guy 12/04/11

Congrats its sounds like you are doing great.
I defently would let your doc know about the sleep disturbance. Maybe you need sleep clinic or further testing.
I am so glad your doing so well. I am 19 months and still not driving. I have taken short trips ( I mean short) and found my multitasking problem and my preriferal vision problem caused a lot of problems. It also taxed me so bad my right leg and foot went weak and my drop foot got worse. I havent given up all hope I have steadily improved even if its slow. I do plan on driving again some day.
So you give me hope. Congrats again Im so glad your doing well.
Keep us updated God Bless Mulchie

 
Old 01-31-2012, 07:20 AM   #11
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Re: New stroke guy 12/04/11

Hello John,

About that central sleep apnea..I agree with Mulchie, something you certainly want to consult your doctor about soon.

My strokes left me with severe sleeo aonea, and as we speak, I am going in tonight for another sleeo study..which are very interesting. I have been undergoing cpap/apap therapy, as well as being treated for periodic limb movements and restless leg syndrome...all results of my strokes.

I just got out of the hospital following a serious accident, which furthered my sleep apnea problems. I am now using oxygen at night to keep my oxygen levels at a safe number. Tonight they will try and regulate that with these tests.

Central sleep apnea can lead to heart failure, and creates a loss of brain cells. It also leaves us with very poor sleep quality, which makes the daytime very difficult for many sufferers. Using the cpap does take some getting used to, but really helps.

At my last appointment last week, I was having 69 episodes of apneas every hour, all night, which added up to about 500 + wakenings every night. That scared me to death!

Please ask your doctor for a referral to a sleep specialist, in my case it is a pulmonary specialist who works out of a neurology center. Sleep medicine is a really explosive new field of medical interest, so as long as you are near a moderately large city, you should have no problem finding the right one for you.

I wish you the best, and look forward to hearing more of your daily logs, they are very interesting and helpful.

Have a great day!
Janet

 
Old 02-02-2012, 03:38 AM   #12
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Cool Re: New stroke guy 12/04/11

Well, I am happy to report my recovery is still progressing at a fast rate!. My vision is slowly improving, I am still walking 2 miles a day. I even took a 2 hour driving trip on the freeway in busy traffic with little trouble yesterday. The pins and needles feeling I have in my left side is getting less and less each day. I can now sleep all night and stay awake all day. I am now in month #2 of my recovery and will be starting month #3 in 2 days. I am beginning to think I was given a second chance at a enjoyable life!.

 
Old 02-02-2012, 11:07 PM   #13
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Re: New stroke guy 12/04/11

That is wonderful and your positive attitude is so refreshing! With that you will go far. Thank you for you reports on your progress and that you are enjoying the things in life that had been so easy before. Having to stop in the middle of your adult life and relearn things can be a very humbling experience, but also offers us a chance to really appreciate the things we had taken for granted for so long.

Cheers to you!

 
Old 02-03-2012, 11:48 AM   #14
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Re: New stroke guy 12/04/11

Another day another milestone! Today I wired up new outdoor lighting for my home. I assembled the light fixtures ,installed them and everything went off without a hitch. I also drove some more and I have noticed my driving is getting less and less stressful each day. I guess my brain is re routing some of my circuits and making connections. Both the complex task of wiring these lights as well as operating a 5 speed manual car along with driving the car in heavy traffic is a BIG accomplishment for a recent stroke survivor of only 2 months!.

 
Old 02-03-2012, 04:03 PM   #15
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Re: New stroke guy 12/04/11

You bet!

I could have never done the wiring job before I had my strokes! Congratulations and keep up the good work.

 
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