Back in August 2011, I took my family on vacation for a week. 5 minutes after we returned I had a stroke. I have had Depression and Anxiety for many years and have a shrink. The Neurologist in the ER was horrible, and rude, and when she saw I took meds for Depression and Anxiety she claimed I had a psychiatric confession (yeah right). I saw a real Neurologist a few days later and didnít vive much weight to the psych meds. The hospital forgot to do some imaging and an EEG. The images were normal, so the doc told me to pay attention to any stroke like symptoms.
My wife finally pushed me to a regular check-up and he saw I had balance and heard my speech problems. He ask question, I told him about the ďconversionĒ he shook his head and he sent me for a battery of blood tests, told me I need to see a Neurologist, and give him permission to ask my shrink a few questions such as how I was prior to the stroke.
I went to the neurologist, told her my headaches were gone, and then proceeded to hear my wife open up about a lot of speech and mobility problems I apparently have ( I have fallen or just caught myself from falling many times. The neurologist spent a good amount of time with me, and apparently I said Carter was President before the younger Bush- I thought I said Clinton, but she gave me 3 chances and all came Carter. I also realized the day of because the week and the date. Apparently I trip over words quite often, I was also told I slur often and speak slower than before the stroke. I admitted itís hard to access my vocabulary, and I stick to 4 Ė 6 letter words. If I go 1 room over into the kitchen, I often forget why Iím there.
The Neurologist is sending me to a balance specialist, and a neurologist in neuropsychologist. I heard things like MS, and Parkinsonís because of my handwriting and tremors- of course she didnít make a diagnosis, and people with MS and Parkinsonís have my symptoms, but I donít have all the symptoms for the two diseases- but of course I canít stop researching the diseases. I have a UTI, and learned it is a secondary problem to Parkinsonís. Iím also going blind because I have advanced Glaucoma.
Nobody gets all this because theyíve never experienced it. My wife says she feels sorry for me, but then she doesnít take time to think other times when she tells me I should get outside and go for a nice long walk- she forgets I also have a severe case of exercise induced Asthma, so thatís not a good idea- and weíve been together 20 years
Iím sorry this is so long, but I have nobody to talk to. I have a best friend, but I can see that he is getting tired of my limitations. I used to ride with a bunch of guys, but what group of tattoo covered bikers wants to hear about my problems?
It actually took me over an hour to write this and fix the structure and mistakes. Thanks for letting me write.
Hello and Welcome to the stroke board. I am so sorry for what you are going through. Stroke recovery is frightening and something we can all relate to on this board. I had my stroke in June 2010 and I have a hand tremor as a result. It also took my math skills my multitasking skills, my ability to tolorate noise and at first it left me in migraine but the headaches are gone now for most part. So far I have been unable to drive but Im working on it. It gave me drop foot, problems with balance, a weak right side and pain in my hip and front part of my leg and neausea. For the longest time I was confused and sad very frightened and unable to cope. It has been almost 2 years and I can tell you I have steadily improved. I must tell you I found some yoga exercised for seniors ( Im not a senior ) that work on balance and I can not believe the difference it has made. I have gone from wheel chair to walker to cane and now I strike off once and awhile with out the cane. Im so sorry you have had some bad experiences with doctors. But I can tell you, your not alone in that experience. I dont even want to go into it but lets just say I was very glad I asked for a second opinion. Do they know why you had the stroke? I was 54 when I had my stroke and they still say they dont know why I had it. Some doctors say it was a medication I was on but when they did the MRI they found I had 2 strokes not 1. It was a nightmare. But my friend there is a light at the end of this tunel. Dont quite, keep fighting to get well. Push forward and insist on good care from your doctors. Keep posting and let us know how your doing.
God Bless Mulchie
Okay, my mind is mush. I was sent to a doctor who specializes in movement disordes, Parkinson's, plus tremor and gait issues. I take psych meds to deal with depression and anxieties (I'm a tortured soul who was born blind in 1 eye and am now legally blind period)
I did my homework to be the informed patient, and put together a list of all my meds, when and why I take them,and am very versed in their side effects.
The movement disorder doctor heard Xanax, gripped tight and wouldn't let go- forget all the other possibilities. I told him I hadn't dreamt since my stroke, and he said the amount of Xanax made me sleep deeply which is why I don't dream, every year in the summer for the past 5 years I have been able to cut my meds in at last half, and after I went back to 4 mg daily of Xanax XR I always dreamed up until the night before the stroke. Since the stroke I cut my Xanax in half, and eventually had to eventually work back up to 4 mg- the average dose for someone with my issues is 3-6 mg daily so I am right in the median. While I was down at 2 mg since my stroke- taken in the am- I still didn't dream. I didn't know the date or year again, but he blamed that on my being home disabled. I have always been home all summer long, and I always knew he day, date, year, and approximate time- on the same amount of Xanax. I mentioned another med I took about 2 yeas ago and he lit up like a christmas tree. I told him I was on a very low dose, and my total time ramping up and down plus taking the prescribed dose was 4-6 weeks- it gave me worse tremors, so I got off the med and I suffered the aggravation for the ability to play guitar again. The convenience of doctors putting the blame on something outside their realm is shameful. Tel me you want to rule the other meds out and ask me to lower or if I can, drop the other meds and test again later- that I can respect, but the concept was obviously beyond him.
I'm quitting all my meds, and am confident my movement disorder, gait and possible Parkinson's will be just as bad. He even blamed a med that he knows nothing about, and its very few side effects do not relate to any of my neurological problems. It's such a shame that I have to go through this garbage because a doctor doesn't want to take part in my case.
I am so sorry for what you are going through. We should be able to depend on our doctors and not come away from these appointments confused and full of doubt. You are worth better than that. Medication can mask and cause so many symptoms. You really do need someone helping you to understand it all. Please get another opinion if it takes 3 or 4 opinions keep going until you get someone whe can guide you. Playing with our medications is dangerous and should always be under the careful supervision of a doctor.
I am so glad your getting well educated and understanding of your condition. This defently helps us and our doctors. I wish you well and hope you find a doctor who can give you the care you so very much deserve.
Take care God Bless Mulchie
I wish you well and hope you find a doctor who can give you the care you so very much deserve.
Take care God Bless Mulchie
Thank you or your kindness.
I am on SSDI, and Medicare hasn't kicked in yet, so COBRA is costing me $1600 per month for m family. I just can't afford the money, time, and aggravation. I started cutting back on my meds and cancelled an appointment. I saved $20 for the co-pay, plus the gas, wear & tear on the car, and spared myself the annoyance of a waiting room. I'm sure I'll pay for it later in agony, but at the moment I'm ahead.