hi there i have not posted on here fr a few weeks basically as i have been so busy,my husdband had his first stroke in july last year and has just had 2 more within ten days of each other, hes doing really well but am begining to notice changes in him, these last 2 strokes were on the right hand side of his brain and quite close together,the ticks are still present and probally getting worse he makes a noise out of the corner of his mouth like a squeeking noise,he is never quiet he says no no and grunts and hums all day long but more so when he is tired,he sometimes walks like he is drunk when hes not, hes so forgetfull and very confused, iwe are going to see the stroke specialist next mon who was going to take a closer look at his mri scan to see if there is anything nurological going on i think they mentioned ruling out ms, i have also noticed he sways back and forth when sitting down, can anyone help with these new symptoms or are they all normal stroke after effects thank you nannymax
The following user gives a hug of support to nannymax: sjb (06-02-2012)
I can't say whether the noises and humming is normal but can say that my dad continuously grunts while watching TV and hums very often. Sometimes the humming is loud and it's always the same made up song over and over. He doesn't even realize he does it! I asked him one day why and what he was humming and he told me that he didn't know he was but then caught himself doing it and said that he was "going nuts". I posted recently on my own thread about this odd occurrence and was told by another member that's had a stroke that she also hums as well. Maybe it's a comfort thing or maybe it's from the stroke. I haven't a clue. If you find out, please fill me in.
Good luck with your husband and remember to take time for yourself as well. He's lucky to have you to care for him!
The Following User Says Thank You to orangeblossoms For This Useful Post: nannymax (06-03-2012)
thank you so much orange blossums this reply means so much especially to my hubby as he too has said i think im going mad i feel so soory for hm and he too doesnt realise he is doing it and like the other noises he makes he doesnt realise hes doing it i feel so sorry for him, we laugh constantly as we have come to the conclusion if we didnt we would be crying as strokes change people so much he calls the noise he makes most of the time his "budgie" which is what it sounds like,he says hes got a budgie on his shoulder,i love him so much and he is my priority in life, if hes happy im happy i do miss my old husband but have now accepted the fact that i now have a new one he has changed and although hes not the same man i married nearly thirty years ago i am so lucky that he has survived these strokes and i love him more and more each day thanks again
What a beautiful and loving tribute to your husband. Acceptance of our "new" selves is very difficult for us, as well as our family.
In the earlier years of my 4 strokes particularly, (I am nine years past now), I developed my own language, which made perfect sense to me, and eventually my family and friends. My switched words and letter patterns were almost predictable.
One example "Hello Puppies" became "Heppo Luppies". I would not notice my mistake and only when every one started laughing would I say it again and realize how funny it really was. I was the single mother of a young son, who is now 18, and my language took on a sing song nature. My husband though it was very sweet. One phrase everyone still uses around me is "tucka tucka tucka... That meant no, or don't. I still use it with my dogs, as it is a sign I mean to stop something, no need for raising my voice or saying "NO" for me anymore. This new phrase will likely always stay with me because it works so well, as a sweet and kind way to let those around me to quit it. The more I write and read and speak, (which is a lot) the farther away this feature goes away. It is almost like loosing an accent from another place, one day you just don't have it anymore. Speaking of it here, it makes a me a bit sad I have lost so much of it. It was a sign of my fighting back, but still being myself.
I do hope you and your husband learn to love his budgies too, and to laugh, for there is nothing better you can do. It is the biggest sign of his brains inability to quit. It will keep making sounds and words, until it gets them right again. I say encourage him to talk, never stop talking, reading, writing, drawing, playing games, it helps our brains greatly. Stay engaged.
I was the one who mentioned the humming too, in another post to orangeblossems. I use to catch myself humming a repetitive non song. It is horrible as a song. It was comforting to me, as I think back. It kind of drowned out a sound I was hearing in my head, or something like that, I cannot put it into words. it wasn't bothering me, just humming seemed to balance me out. It is really only now as you two are asking about the humming that it has reminded me of this time in my recovery. Without your questions, I would have completely forgotten! I am so happy to remember another sign of my recovery, I have forgotten much of my early years of recovery. But it is still there in my memory.
I just married the man who stood by me through this whole thing, He is sitting next to me and I am asking him if he remembers any of this,..Oh yes, he remembers it all.
We had just met and went on a snorkeling trip to the beach. I had 4 strokes that day, and here we are now, married after 9 years and one day of recovery. It has been a long and interesting road, but I am here to say that it gets better, it gets easier, and life does go on.
thanks again for your support on this matter,i am so happy that the "budgies" are also around with other stroke survivors, my hubby calls the noises he makes budgies and its so funny for us,if we are out and the budgies get noisy i will say "i see youve got your budgie on your shoulder again" this is our way of bringing it to his attention as people can stare at him when he gets a bit carried away with the churping and he will pretend to make it get into his pocket it is so so funny and we both end up laughing we have found this is the best therapy when you both laugh it takes away the anger and fustration he obviously feels with himself,i cant stop saying how proud i am of my husband after his last 2 strokes which i think have affected him more than his first one he has become a more fun and loving man who i love so much.
The following user gives a hug of support to nannymax: writeleft (06-15-2012)
hi me again just been reading other posts and was reading one of writelefts and something mentioned in it is also happening to my hubby, he is rockng backward and falward and sits and rubs his feet on the carpet backwards and falwards, he had two strokes to the right hand side of his brain are these strokes responsible for his new symptoms, also i have noticed when he has his dinner it seems to take a while for him to realise that he has to pick up knife and fork, put food onto fork then eat or am i just looking for things that seem to be wrong. also has anyone else developed ms or any other nurological problems since heir stroke as the doctors are trying to rule them out too, as when i mention all these new symptoms to the stroke specialist next monday i hope he doesnt turn round like he did last time and say that the stroke wouldnt make these things happen they must have been happening before which is a load of rubbish as i had a husdband that could drive ,read,go to work,remember things and lots of things he cant do now, i think i am going to say to him if he does that i have known my hubby since i was 14 and i am now nearly 50 and yes the stroke has made him like this because my hubby needs to know that its not him its his stroke that has changed him,as a carer of s stroke survivor i think we have to speek for them although they dont always appreciate it we do it because we care and love them unconditionally
The following 2 users give hugs of support to: nannymax goingtorun (06-16-2012), Mulchie (06-09-2012)
I am reading your posts and I love the way you talk about your husband. It is so obvious how much you love him. How much you care for him. He is a lucky man. Your a wonderful caregiver and that is not an easy job. My heart goes out to you and your husband as you once again face these crazy doctors who agrivate us and give no support. They should be listening to you because you are his caregiver and know best what is going on. They would have to humble themselves for that and many wont.
God Bless ya for your patience and love. I just wanted to say hello and let you know you are both in my prayers.
God Bless Mulchie
I too, love how you love your husband! You are so right about your knowledge of your husbands daily habits and his pre-stroke self and his post stroke self being different in so many ways. I highly doubt he used to "forget" to put the food on his fork!
The biggest thing I think I have learned here, is that no one knows what strokes have done to us, except us, and our closest loved ones. For anyone to say that could not be related to a stroke is just mistaken. Who is to say what tiny area of the brain does what? One of the most frustrating things for me has been being unable to express exactly what is different. For one thing, the moments of complete clarity are fleeting, and then to put words to something as vague as a feeling are difficult for all of us. We just know things are very very different.
Having this special place to even talk about this subject is a huge relief! We do not have to try and explain or prove anything to anyone, we already know. YES, I had 4 strokes and I am very different than I used to be. Any arguments? I didnt think so..
Bless you for sharing the depth of your love for your husband and life mate. I would love to see you two trying to catch that little budgie and put him back in the pocket! I will always think of that and smile. There are lots of us who should keep their budgies in their pockets all the time, but you keep yours flying!
p.s. I just realized that was my 4,800th post! I am so happy it was to you...
Last edited by writeleft; 06-15-2012 at 03:34 AM.
Reason: 4800 posts!
The Following User Says Thank You to writeleft For This Useful Post: Mulchie (06-15-2012)
How are you going? Hope you and your husband are well, healthy and in good spirits. Your husband is indeed a lucky man to have such a loving and caring wife. No amounts of money or medical care can substitute for genuine love.
With your care and love, I believe he’ll make the best possible recovery. God bless you and your husband.
thanks for all your replies to my post,it is lovely to have people to share your worries with,just an update really i feel as though we arent getting anywhere at the min we still have the budgie the noises my hubby makes are worse now but the doctor says this is due to the area of his brain which was damaged with the 2 strokes he had in april (at least they believe me this time ) we were talking tonight and he says his left arm and leg feel like they have no muscles i have tried to explain that they do have muscle its the stroke that has made them feel like that, he is constantly saying oh no tonight (well its better than F--- off) but its awful to listen to and he doesnt even know hes doing it, last week we tried to do some simple diy that was a no no too he just cant do things in the correct order i feel so sorry for him he was such a handy man before the strokes,he constantly tells me im stupid i know he doesnt mean it or even realise he says it all the time but it does upset me especially on days when ive had a hectic day at work, we went to the gp last week and i have asked to be refered to another specialist as although they did another scan on hubby neck arteries they are still the same and they have no idea why hes having strokes but someone must be able to tell us,we have another appointment with the old specilist in 2 months but im not happy as if he has anymore who knows what will happen as with each stroke more damage is occuring and it doesnt matter to the specialist but it matters more than anything in the world to me, i know im never going to have my old hubby back but i am so lucky as i still have him, our eldest daughter gets married in august which is going to be a major event for all of us as lots of our family members havent seen my hubby since his strokes and because i see him every day i dont really notice changes but i think they will i just hope that the day goes well and its not too much for him,thanks for reading and letting me whitter on take care everyone
The following user gives a hug of support to nannymax: Mulchie (06-28-2012)
Dear Nannymax Im so glad you know you can talk to us. Its so important you have an outlet because you are doing an amazing job keeping up with everything. I know its hard, I can hear it in your post that your hearts breaking.
I am so glad your getting another specialist opinion. They must protect his brain by finding out why its happening. Your a wonderful care giver and terrific advocate for your husband. He couldnt ask for anyone more dedicated to his care and well being. So many people dont have someone to advocate for them. You have constantly pushed the doctors and Im glad they are listening to you. It shouldnt be so hard.
Your strength and courage and your husbands courage are a gift to so many here on the stroke board. We draw comfort from one and other. We know that what we are posting everyone understands. Im glad you are staying in touch with us. For what ever help we can give or for just a ear to listen, or a shoulder to cry on we are here for you. Remembering you both in my prayers
God Bless Mulchie