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Old 06-02-2012, 09:15 PM   #1
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MarieKD HB User
Stroke Survivor - 43 years old - no health issues

I found this message board a few days ago, and I have enjoyed reading many posts. I have never talked to another stroke survivor, so I have been extremely excited to read posts here, and to realize that other survivors have the exact same thoughts and worries that I have.

I had a stroke (intracerebral hemorrhage) Dec 1, 2011, and my neurologist does not know why. I have lived a healthy life, and I have never had any health issues. I eat healthy, exercise (well not so much now, but before the stroke ), don't drink, etc., so being hit in the head by stroke has just overwhelmed and surprised me tremendously.

I am so happy to have "discovered" this message board with so many posts that have been posted by very caring members!!

 
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Old 06-03-2012, 01:33 AM   #2
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Re: Stroke Survivor - 43 years old - no health issues

hi there and welcome, i too had the same discovery of this message board and it has been a great help to me i am not the stroke survivor but the carer of my 49 year old hubby and lots of things have happened since he had his first stroke last july and putting my questions and worries on the forum have been so helpfull as the members on here can assure and support you at any time of day,you worry if things that are happening are normal an when someone tells you that happened to me too is a great relief and every one is so helpfull, my hubby too didnt have any real issues like you and they still dont know why hes had strkes, he had one lastjuly and then 2 more 10 days apart in april we are going to the hospital next monday where we are hoping to get some answers,keep posting on here its a fantastic support network and although doctors are the ones with the knowledge theres nothing better than than talking to someone who has gone through what you are and can relate to how you are feeling take care x

 
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Old 06-03-2012, 01:12 PM   #3
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Re: Stroke Survivor - 43 years old - no health issues

Hello Marie, and welcome!

We could not be happier every time we "find" another stroke survivor or a loved one of a stroke survivor. Every person we can touch builds our own sense of hope and the ability to help one more person along this very mysterious and life changing experience.

As you will learn, or already know...each of our strokes and the stories around them are very different, but our recoveries have many similar traits, and how we each respond makes all the difference.

As you said, there is a certain magic in sharing an experience, even with a complete stranger, but that seems to add to the depth or the friendships we form. We are here because we want or need to be, or both.

Interestingly, I also had 4 strokes at 43, and I am now 51. I came here to re-learn how to read and write, and type and think again. I honestly could not when I first came. It would take me two hours to try and peck out a post. It would burn my brain to try so hard. but it got easier. i had been and artist and wanna be writer before, so loosing both these things was terrifying to me, not to mention all the rest of the percieved losses.

I use the word perceived very purposefully. Because what I really re-learned was a new perception of myself, not as a young victim of stroke, as so many people called me...but as a survivor of stroke. That took me years to honestly do, and to continue to do everyday. But the new person I am is so much more patient, much more understanding and much more grateful for each and every little thing that I do have, when I have it.

WE are so happy to have you in our family....
Janet

 
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Old 06-09-2012, 08:48 PM   #4
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Re: Stroke Survivor - 43 years old - no health issues

Dear Marie
Welcome and I am so glad you found us. I had my second stroke June 21 2010 almost 2 years ago. And this board was my saving grace. No one understands how we feel and what is truly going on inside us like another stroke servivor. I pulled such strength and comfort from those who ansered my posts. I have also received a wealth of information from those vetrans who have been a few years in recovery.
The doctors dont know why I had my stroke either. 2 doctors said it was my medication and 2 doctors say they dont know why I had it. Same thing as you healthy at time of stroke BP was normal cholesterol was normal. But all that changes with the stroke. WE all live with the fear of why and will we have another one. But then we eventually come to realize we were saved for a reason and we start to embrass our new life. The healing takes time, your poor brain took a hit and it needs to heal. You will continue to improve and your new life will take on new meaning.
Please continue to post and let us know how your doing. Post any questions you might have or just rant if ya want to sometimes that really helps. God Bless Mulchie

 
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MarieKD (06-14-2012)
Old 06-14-2012, 10:12 AM   #5
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Re: Stroke Survivor - 43 years old - no health issues

Hi all, I don't even know if I should be here but your positive helpful posts are drawing me in.
I have been having problems over a number of years with intermittent diplopia,dizzyness, memory problems etc. A recent scan has shown infarcts and ischaemic changes that are too great for my age and have progressed since my last scan a few years ago. Doctors say it shows problems with the blood flow and are wanting to put me on stroke prevention meds, but my neurologist has said to hold off for now. We haven't heard back from the neuro and the doctors are concerned about when to start treatment and do not know why they have been told to hold off. I am getting more and more anxious.
Before I had my scan I had requested seeing a neuro to try and get to the bottom of things, now it just seems to have confused matters... I have had blood taken for numerous tests(which I didn't even ask about because I was in a daze at my consultation) and I am awaiting another MRI scan, I suppose I will eventually get a diagnosis but I am worried that in the meantime I may have a full stroke.
Sorry to go on so much but I feel in need of some sort of support.

 
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Old 06-14-2012, 10:56 AM   #6
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Re: Stroke Survivor - 43 years old - no health issues

Hello and Welcome
I am so glad you posted and yes you belong here and you are more than welcome to ask what ever you need to ask. I am so sorry you are having to sit at home and wait on these guys to get their act together. You deserve answers especially because you are concerned of the repercusion of not being on the drugs. It makes perfect sence. You deserve better than this.
Because of my experiences with the medical profession (possible the drug they had me on caused 2 strokes) I ask a lot of questions, and demand the answers. I am not saying I go in screaming but I dont leave that office without all my questions answered. I tape a pc of paper to my kitchen counter and as I think of it I write down my questions. Then when My appointment rolls around I go in armed with my questions and I dont leave untill they are all answered. You really do have to be your own advocate.
I am sorry you are going through this worry and the doctors could ease that worry so push for them to get it together. In the mean time keep posting, keep venting and know you are in my prayers.
God Bless Mulchie

 
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Old 06-14-2012, 03:29 PM   #7
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Re: Stroke Survivor - 43 years old - no health issues

Thanks for replying so quickly, at the moment I think I just need someone to talk to as much as anything.
It is inspiring to hear your story and how positive you are.
Fortunately my past symptoms have not been too long lasting ranging from a couple of weeks to a few months until recovery, although there are some residual problems with my memory. I have had 3 main episodes in the last 4 years but am only now getting some sort of answer as to what is happening.
I am very sceptical of the medical profession due to misdiagnosis of my husband who was eventually diagnosed with a brain tumour 12 years ago followed by them arguing amongst themselves about his treatment with him stuck in the middle just wanting the best chance of a cure. (fortunately he is still with us) I now find myself back at the same hospital with one of the same consultants which is why I found myself in such a daze during my consultation, I hadn't realised how traumatic I would find it being back there.
Anyway I will end here but I am glad that there are such friendly people here to talk to.
Thanks for listening, I will update you when I know something.

 
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Old 06-15-2012, 03:18 AM   #8
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Re: Stroke Survivor - 43 years old - no health issues

Marie,

As you can see, your post has already drawn in another person in need of our support and understanding. It can be contagious! That is certainly a good thing, and thank you for sharing your post with our new friend shortlegs.

It can be the "not knowing" that is enough to drive us nuts trying to figure it out. There seems to be so much peace in knowing it started here, or ended there. We do not have that luxury in this stroke business. Finding a way to reconcile that big question mark is always going to be there. When did it start, where did it start, is it over?

In my case, I do know the cause of my strokes, but even then it did not stop them from happening. I was under the very close eye of several specialists that could not stop them. I think we all have had at least one experience with a doctor who led us down the wrong path, and that is enough to scare us away from all of them. I was able to find the life saving doctors AFTER my strokes...go figure. Mine led to kidney failure, and I have been saved from dialysis so far. So I consider that a huge save from my doctor on that one. Not to mention my new attitude about my own care has changed drastically.

Before, I was "safe" from all harm, so I thought. I was young, healthy, strong, independent! As soon as the unexpected happens, you suddenly realize it CAN happen to you, and that is a rude awakening. It is like a huge cosmic accident. Then left alone to sort it all out again, when we never saw anything coming or going. I will tell you, it is a major character builder to pull yourself up out of a stroke! That is that part that comes later, and offers the most amazing relief! That is probably the part we call being positive..because years later, we are positive we are better. We are positive about our advice to others, because it is our experience. From zero to 50, in 9 years for me. And the 50 is just my age, not my speed, that would be a much lower number!.

I will tell you this, we share the age of 43 as the age in which we re-start our lives again, and that is a very positive thing, because we are young enough to have another entire life!

your friend, Janet

Shortlegs,

Hello, it is nice to have you join us. You are certainly in the right place, and are welcome to be here. I would like to ask you if you would start a new thread, to introduce yourself, and talk a bit about your situation. That way everyone can find you easily and respond directly to you. Goodness knows, how we all need some organization! It is always so nice to hear that you have found inspiration in some of the stories here...

To start a new thread, simply click on the tab that says,"start a new thread" and a brand new spot will open just for you.

Meanwhile, please feel free to get all of this out here, as that is so helpful to many of us. Just having the same questions that others do, and the same concerns is a relief after feeling quite alone for so long. Waiting for the doctors can be enough to send a person over the edge, and while you wait, you always have us to wait with you, to share in your good news and to comfort you in the bad. And as Mulchie reminds us, we have to learn to work these doctors to our best advantage.

A warm welcome,
Janet

 
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