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Old 05-14-2010, 06:11 PM   #1
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what is up with my hips?

Hey, I'm new so i'm a bit confused

I have serve hip pain, its bad and I cry and scream when I get up. I can't sit up at all and it is impossible to walk, when I do I often start shaking and breathing really fast then I feel faint. Its both my hips so I have to use crutches and it really really hurts to use them and takes such a long time. I have had an xray and nothing showed up and on the MRI nothing showed up, I was really hoping they would find something so they can help me. The pain is in my groin, side of thigh, deep into my hip and the back of my hip, in both hips. I can't focus on anything, I forget a lot and can't talk or listen. There is also a clonking and sharp click it will make which hurts lots! I don't sleep till around 5/6 in the morning and haven't been outside because of it in 5 months.
I am really scared to back to my DR as he pushed my leg in the air (making me cry and scream) this made it kill so bad for the next two weeks. He then suggested I was making it click/clonk for a party trick (why would anyone do that, if it caused you this much pain - I don't even think I can purposely do that, and don't intend on finding out.) Its not just me he has said the party trick thing to - my sisters friend had problems with him to saying the same thing. I'm sure when I go into hospital I come out worse because they mess with it all.
I have hypermobility syndrome, do you think this could be caused by it? as my shoulders came out (and stayed out) for a year.
I'm so sorry I sound like I'm moaning, Its just I'm getting sick of it now :\
any ideas what this could be?
How could I mange the pain better? I take medication it makes me sick but I guess they normally do (I think its morphine) and how could I fall asleep better?
Thanks so much!
Also I hope you can understand it - I have really no concentration at the moment sorry

 
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Old 05-21-2010, 09:30 AM   #2
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Re: what is up with my hips?

Heyyy I'm not a qualified doctor or anything, but - i've had a similar experience to you with my hips (i'm only 17) and, i've had all sorts of test, X-rays, scans - you name it. But nothing came up.. so they gave me physiotherapy. My physiotherapist gave me exercises to do, which didn't really help - because any sort of movement would sent me into convulsions of pain.. but anyway, getting to the point. It turned out all my pain (which is exactly as you are describing) was because of the tendons in my hip.. they were tighter then the average tendon, therefore restricting movement and making any sort of activity nigh impossible.. it gets especially worse in the cold. So - try slowly stretching out your tendons, by doing gentle lunges and such.. see if it works? I mean, it's worth a try, right? x

 
Old 05-21-2010, 12:37 PM   #3
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Re: what is up with my hips?

I think your parents should take you to a different doctor, one with experience in treating hypermobility syndrome or Ehler's Danlos syndrome, which can cause arthritis even in teens.

 
Old 05-27-2010, 08:24 PM   #4
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Exclamation Re: what is up with my hips?

Hi,

I agree!!! Talk to your parents. You need to see an Orthopedic Specialists who specializes in Hyper mobile Joint Syndrome. I don't know where you live (and don't tell me!!) but tell your parents you need to go to a large hospital so you can find a good Dr. I would definitely get them to call around first to find the right Dr. You could do this via the internet I'm sure, you sound pretty smart.

I have a friend who is in her 30's who has this problem and I know she has had to have surgery on her thumbs to tighten up her tendons there so they don't pop out of joint. So its time to get on board with a good Dr. so you can get your life going on here! You can do it. You should also be on some sort of NSAID (non steroid anti-inflammatory) like celebrex, Mobic, etc. But see a Dr. and get these prescribed to you of course. In the meantime talk to your parents about maybe taking Advil (under their care) to help. I think Aleve is one too but please talk to your Dr. about those.

Good luck and I hope this helps. Definitely GET A SPECIALIST!!!

cj

 
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