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Old 01-07-2003, 12:20 PM   #1
Junior Member
Join Date: Oct 2002
Posts: 23
lindsayl HB User
Unhappy Graves disease and sexual / erectile dysfunction

Hi all, I'm in need of help / advice / personal experience...
My boyfriend of many years has graves disease. In the past year we have been having problems in the bedroom. He is unable to orgasm during sex. now, in the past few months he is unable to keep his erection. He has gone to the doctors and they have adjusted his dosage but the problem hasn't gone away. He is going to his g.p. at the end of the month to discuss this further although understandably he is feeling a bit awkward about the whole thing. Has anyone out there had the same experience and if so is this fixable? I'm being incredibly supportive but personally, I"m really having a hard time with this. I've kept this to myself for a year as the last thing I want to do is discuss this with friends..... any advice.. would be appreciated!

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Old 01-07-2003, 07:29 PM   #2
Join Date: Jan 2003
Location: Georgia
Posts: 9
stanno HB User

I was diagnosed with Graves 11 months ago and I am having the identical same problem. I had my testosterone levels checked and they were basically
zero. More tests coming next week! I'll try to let you
know what is found out. Might be a good idea to check
his levels.
Stan Smith R.Ph.
Clowns to the left of us,
Jokers to the right.....

Old 01-08-2003, 06:18 AM   #3
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Join Date: Oct 2002
Posts: 23
lindsayl HB User

Thanks for your response stan, keep me posted k?

Old 01-08-2003, 06:38 PM   #4
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Join Date: Aug 2001
Location: Euless, TX
Posts: 1,635
Meep HB UserMeep HB UserMeep HB User

Low testosterone is a common problem with hyper and hypothyrroidism in men and women alike. In women, it usually manifests itself as low libido. In men, the effects are far more visible.

Since this is very disconcerting to a man, when he has problems with this, it adds a psychological side to it too, compounding the problem. HE feels like the very essense of his maleness is failing him, and your support is a WONDERFUL thing. He's a very lucky man to have you.

I don't know if you would want to share with him that you posted about his problem, because some men would feel threatened by that. Maybe he would be OK, with it, but in my opinion as a man, it may be better to keep it quiet to protect his already fragile ego. You see, I am/was hypo and had low testosterone and can relate to the problems you describe.

Also consider, though, that there are other things that can interfere with erectile function, such as excess serotonin (as in taking SSRI antidepressants like Zoloft, PAxil, Prozac and the like). A lack of Acetylcholine, which is also an important neurotransmitter can also cause erectile dysfunction.

Many antihistamines as well as other over the counter drugs can cause problems, too.

I hope this helps. I wish you and that lucky man all the best.

I am not a doctor, nor have I ever played one on TV...

Old 01-09-2003, 08:39 AM   #5
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Join Date: Oct 2002
Posts: 23
lindsayl HB User

Hey Meep, thanks for your response, I really appreciate the info. I don't think that I will mention that I posted, but I certainly can say that I did some research on the net. He does have allergies and takes clartin but not on a regular basis, I wonder if that has something to do with it.
What I'm wondering is, is what is the cure for this? Does adjusting his medication normally cure this? Is something like viagra an option or are their drug interactions that can occur? As I mentioned, he is going to the gp for a checkup and to discuss this, I just want to make sure that he has info and he knows what questions to ask.
Thanks again!

Old 01-09-2003, 08:38 PM   #6
Join Date: Jan 2003
Location: Georgia
Posts: 9
stanno HB User

I will keep you posted.
There shouldn't be any problem with Viagra as long as
he isn't taking any medications known as "nitrates".
Basically nitroglycerin, nitro-dur, isordil, etc for
angina. Viagra was helpful to me insofar as, er, maintaining an erection, but unfortunately it is no
help at all when it comes to being able to "finish".
Also, if your libido is low, viagra will not increase
it. You have to already have the libido, from your
testosterone, to prompt the viagra to do it's job.
Meep stated that low levels were quite common with
this and I am glad to hear that, I have been concerned
that there may also be problems with pituitary function with all these other hormones out of whack.
In any event, bear with him and you appear to have the
patience of Job, as my wife also has. We have not had
decent relations in that area since December 1998, and
it took until February 2002 to track down my problem,
and we are STILL working on this part.
My endo and family physician say "don't give up!".
Yes, that is easy said, and rough in the doing.
I will let you know how my tests come out and what I
am told to do. My fam dr has given me 400mg testosterone injection weekly for 4 weeks and am now waiting for that to wash out so that the tests will be
accurate. The injections seemed to help as long as I
was getting the high doses and getting them weekly,
but that a "cheek a week", can get OLD!

Stan Smith R.Ph.

BTW: I have never ran into anyone who had the problem
Meep was discussing when taking Claritin. It seems to
be relatively benign.
Clowns to the left of us,
Jokers to the right.....

Old 01-10-2003, 06:13 AM   #7
Junior Member
Join Date: Oct 2002
Posts: 23
lindsayl HB User

wow, thanks for the info. He is going in at the end of the month so I will be sure to mention all of this to him. His libido is pretty much non existent as well so I understand your point re: viagra. It's just a lot to handle right now, we've been dating for 5 years and I'm ready to get married and start a family, he has been putting this off for a while now although I'm putting my foot down. My clock has really kicked in full force and I"m craving children and so want to start a family. He seems to be making this whole thing a smaller deal than it is (I"m sure it's just out of embarasment and just being uncomfortable about the whole thing). Anyways, sorry I'm rambling, just don't really feel comfortable talking about this with everyone. Thanks again for the support and info!

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