I've just been diagnoses with hashi's. If anyone has questions or a good source for information I's really appreciate it. They found a tumor(nodule) in my thyroid, si that normal? Is this why I haven't felt good in 19 months? Is this the reason I have pains in my right leg from mid thigh all the way down (all regular test v]came back normal but the pain is horrible)? What does fibro and CFIDS mean? Do I need to go to an endocrinologist?
Originally posted by doyle5: I've just been diagnoses with hashi's. If anyone has questions or a good source for information I's really appreciate it. They found a tumor(nodule) in my thyroid, si that normal? Is this why I haven't felt good in 19 months? Is this the reason I have pains in my right leg from mid thigh all the way down (all regular test v]came back normal but the pain is horrible)? What does fibro and CFIDS mean? Do I need to go to an endocrinologist?
Thanks for any info. Annette
A module is not normal. They will probably do an ultrasound and/or a radioactive iodine test. If the nodule is termed "cold" it will have to be aspirated to make sure it is non-cancerous (most are so don't worry prematurely). Yes, Hashi could contribute to your unwell feeling, don't know about leg pain, though.
Fibro = Fibromyalgia (could be the cause of your leg pain)
CFIDS = Chronic Fatigue Immunological Dysfunction Syndrome
Yes, an endocrinologist is the specialist who handles thyroid disorders.
All the best!
[This message has been edited by peregrine (edited 08-07-2003).]
Thanks for the information. Do you know of a good book that will give me more information on this? I was told by my ENT that the tumor was benign and all is well. When I received a copy of the lab report it said 2 of the three biopsy's taken were fine but the third was abnormal. When I showed to my regular doctor she was upset. The lab work said I need to rule out hoshi's first. She ordered the test and I do have it. The lab report said hypo. Thanks for the info.
I don't understand. What test has been ordered? Or . . . are you finished with all your tests? You indicate you had biopsies so I gather the nodule was aspirated and that 2 out of 3 were normal. Correct? If the remaining was not normal I would think that the normality or abnormality of that smear still needs to be ascertained. They ALL need to be declared normal. I do not know of any books, but perhaps others here do. I would do research on Google under thyroid disorders.
If you need to start at square one on the subject of hypothyroidism, there are several good books.
I've read Thyroid for Dummies; Living Well With Hypothyroidism by Mary Shomon; and Solved: The Riddle of Illness, by Stephen Langer, MD. They're all easy to read, understandable and complete.
Your leg pain sounds to me like sciatica. My DH has had it. I doubt it's related to hypoT, although I can't say it's impossible. A chiropractor would be able to help you with it.
__________________ "We can complain because rose bushes have thorns, or rejoice because thorn bushes have roses." Abraham Lincoln
To me, your leg pain really sounds like sciatica, as midwest said. I used to have a lot of pain on my left leg (specially after driving too much). It was not related to being hypo at all, since after I started exercising it went away. Stretching helps a lot too.
This whole Thyroid issue has been a journey for me and not a pleasant one. I am still frustrated with the medical system in general. My symptoms started post- partum and were basically dismissed. I can recall my Dr. saying- Thyroid isn't your answer. Well- it appears it was- as I tested positive for the antibodies and have a thyroid nodule. My other tests were within the range. This is not unusal for Hashi's which often does present post partum. I became pregnant again shortly after and this time the symptoms were attributed to pregnancy, etc. Finally, I switched doctors and when the nodule was found began being heard, to some extent, in terms of Hashi's. Leg pain was a big symptom for me. I went to a chiropractor at first but in hindsight believe that this pain along with my other muscle and joint pain are related to Hashi's. Mary Shomon who wrote living well with Autoimmune Disease speaks in her book of her struggle with Muscle and Joint Pain. The leg pain has been bad for me as it is difficult to stand. I am scheduled to deliver baby # 3 by C-Section on 8/19/03. I then will meet again with my family Dr. in terms of HOPEFULLY starting meds. My ENT also spoke of meds so if the family doc won't I will pursue the issue with my ENT. Keep us posted.