I'm not sure whether my symptoms have been related to thyroid or not, but I am now hypo though I have tremor. And the deal is that sometimes it is bad and sometimes it goes away.
Has anyone else experienced this? If so, please post so I can have some peace of mind!!
Hugs,
Kael
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Are you talking about muscle twitches? I have heard a lot of people complain of this. I have it also, sometimes it is sooo annoying especially if it is the eyelid, I had that one last for days, usually they only last a short while and are gone.
Keep in mind thyroid effects everything and can cause a wide array of strange symptoms. What a bummer
I get the tremor, too. That is, if we are talking about the same thing. For me, it isn't anything like an eye twitch. It goes like this:
1) start feeling confused (can't concentrate)
2) a panicky/tingly feeling comes over me
3) heart starts racing
4) start feeling extremely warm
5) hands start shaking (not something that is exremely noticable... only to me)
6) feel very disoriented
Is this what you have been feeling, or is it just me?
I never had this problem until I started Synthroid over 6 years ago. Thought it was diabetes... tests said no. Thought it was low blood sugar... tests said no. I recently stopped using Synthroid, so I can't really say that it was my problem. Hopefully my new meds will take care of this.
Yes I do notice these symptoms when I restrict my diet alot or havent eaten much all day then this will start to kick in around mid afternoon. I do notice when I eat it will help some.
Actually - here's my whole story - it's been very scary.
About four months ago now, I started having some cramping in my left calf - eventually the sciatic nerve felt irritated. I saw a chiro with no relief and progressive weakness in calf and toes. (strength has returned here now!)Then the nerves started twitching only in that leg. Over days the nerve twitches "moved" up the left side of my spine all the way to my head and eventually encompassed my whole body. I even had them inside my ear canals and in my sinuses. Along with this, I felt so sick in my muscles (like the worst flu ever) that I thought I was dying. Eventually, much of the time the twitches became relentless - and I also had internal buzzing along my spinal cord that affected my internal organs so badly that they caused me dry heaves almost nightly. (My symptoms are almost always more severe at night.) Now I read that many here on this board experience nausea and even vomitting at night and in the morning. At my worst point, I was not sleeping more than 2 hours at a time because my nerves had gotten so sensitive that when they touched anything static for long enough (like the bed) they began to buzz and twitch wildly - so much of my body must touch the bed to sleep that it overloaded my system and I started to get literal rushes of adrenaline that woke me up. My arms and legs became progressively weaker and for a few days I had burning under my skin all over my body. For several weeks, I was basically disabled by this. I lost 20 pounds though thankfully my appetite has now returned and the weight loss has stopped.
I have had normal MRI's and Brain scan, normal nerve conduction and muscle tests (but 4 weeks ago)-and normal blood tests ... all except for a positive ANA titer of 1:640 and abnormal thyroid levels (I have been treated for hypothyroid for years) which is now being monitored by an endocronologist. I also found that I have elevated thyroid antibodies of 141 with the norm at 35<. He says that he hasn't really seen symptoms this severe caused only by thyroid, however.
I have seen two rheumatologists and two neurologists and they are baffled because my symptoms don't exactly match any box that they could put me in.
The good news is that I have started sleeping better (though still nowhere near normal) and I'm left with tired and aching muscles, mostly calves (better sometimes, worse others) and this overall body tremor that is somewhat like Parkinson's disease - though no one can see it - I can just feel it. And I'm still weak and get fatigued easily. Now my ankles and feet and calves have begun swelling slightly by the end of the day. You'll see my questions posted all over this board in search of an answer.
Don't know if any of this sounds familiar to anyone, but thought it wouldn't hurt to post here. I'd like to believe that all of these symptoms are related to my thyroid, because that makes them treatable. It is frightening to lose control of your body and not know what is wrong. This has cost me my summer and thousands of dollars in medical bills. Someone suggested possible subacute thyroiditis - that's the closest reasonable explanation I have been able to find.
Sorry to go on and on - needed to vent.
Hugs,
Kael
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Practice Compassion...Heal The World
Ginger,
Sounds like you are experiencing a blood sugar drop. Blood sugar problems can be common with thyroid disorders so you should watch that and be sure to eat a good snack to keep from getting the drop.
Yes I have had the twich in my left eye and along with that bad cramps in my fingers to the point of tears in my eyes. What I have read and talk to others about that it dose have to do with the thyroid problems.
Since taking my meds I don't get the twitch in the eyelid.
I do get a tremor in my hands just after i wake up for a little while but goes away.
I get tremor in my legs when I walk or stand on the for to long but I take a walking aid with me when I go for a walk that helps alot.
I m not sure if this is what you are meaning but I hope this makes sence to you what Im saying.
I've had the eye twitch problem off and on. A friend suggested it was a magnesium definciency, so I started taking a supplement. The twitches go away, but then the magnesium is upsetting to my stomach. Not sure what the solution is.
Tiny Tot all the symptoms you list sound like hypoglycemia to me. How did they conduct your blood sugar test? I have hypoglycemia in addition to hypothyroid.
[This message has been edited by AngelaA (edited 08-09-2003).]
Wow..I guess our thyroid disfunctions cause all kinds of problems. I have the twitches on my eyelids, back part of my thighs and calves and sometimes the top of my feet.-Roni
Kael,
I, too, had muscle twitches all over my body and an internal buzzing. It was very overwhelming and I couldn't sleep either. I've been on synthroid for 9 months and my levels were a little hyper. I started going to a Naturopathic Doctor and am feeling a lot better. I still take my meds but have stopped dairy foods and started vitamins. The thing that that made the biggest difference was calcium/magnesium with vit. D. I take Sisu 1:1 with vitamin D. I started taking 2 a day and now take 4 and the twitches have gone away. The muscle and joint aches have lessened too. I take 1 in morning(4 hours away from synthroid), 1 in afternoon and 2 before bed. The magnesium relaxes you and helps you sleep. Hope this helps. Good luck.
you are a Godsend to me. Thank you for replying! I am going to send you a separate post in case you don't see this. I have been watching your threads too and I have some very specific questions for you, only if you don't mind.
Many Hugs,
Kael
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Practice Compassion...Heal The World
I also have twitches and they drive me crazy...you can see my muscles jumping...it's painless though. And I recently started having the internal buzzing...I had read about it and couldn't imagine what it feels like. Well, here is how I explained it to my husband....it feels like if you had a pager set to vibration mode and held it against your skin....lol
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Hashimoto's~Hypo
50 mcg's of Synthroid
DX'd in May 2003
Hi all,
Glad I could help through my suffering. Sisu 1:1 is the brand name of calcium/magnesium with vit. D. I don't know if you can get it in the U.S., but I would think so. I starting having muscle twitches while I was still hypo and then the internal trembling came after that. I think a lot of it was due to stress from being sick. This is my first serious health problem and it was really overwhelming. I'm a stay at home mom with 2 young kids and I found it difficult to just do my daily activities. I cried all the time. We overshot my tsh twice and I went hyper so I went back and forth between hyper and hypo symptoms. Not conducive to good sleeping. I think I have finally found my correct dose, .100 (knock on wood). I've only been on it for 3 weeks, so we'll see. But the vitamins and homeopathic medicines have helped me through all this. I think without them, I would nearly have killed myself by now. Good luck.
Tiny Tot all the symptoms you list sound like hypoglycemia to me. How did they conduct your blood sugar test? I have hypoglycemia in addition to hypothyroid.
[This message has been edited by AngelaA (edited 08-09-2003).][/B]
AngelaA,
How do you handle the hypoglycemia? I am pretty sure that is what I have, but doctors keep testing for diabetes (which I don't have). I try to handle the attacks by eating something (either something sugary or saltly, whatever works to calm it down), but I want to stop it before it happens.
A few weeks ago I switched from Synthroid to Armour. Now I can't tell if it is hypoglycemia or just me adjusting to this new medication. What test would I have to ask for to see if I am hypoglycemic? Are there any tests??? I just want this to go away... it is very cumbersome seeing that the attacks usually happen during the morning hours when I am at work.
TinyTot, I have noticed since I started Armour a month and 1/2 ago that I am more prone to the hypoclycemic attacks. I don't know if it's just because my system is starting to work better or what. Be sure your breakfast isn't sweet and has plenty of protein, so you won't take the plunge so quickly. Have little snacks during the day, still protein if you can. I have always been hypoglycemic, but it used to take alot longer period to happen. It's actually the opposite of diabetes really. It's just your body saying, "Feed me". IWL
WOW! I get the twitching too in my eyelids, legs, hands, feet...but the internal buzzing in the back of the neck/spinal cord!! I thought that was just me. I have never said anything (even to my husband) because I thought it was just me being "weird" or something. But I can totally relate! Especially to Kael. This board has been SOOOO helpful to me! I hope it is for everyone else too. BTW Does anyone else get severe dizzy spells? My X-doc put me on Buspar for anxiety because he thinks that is causing the whole heart/ shortness of breath thing...which I have stopped taking YUCK!!! I thought it might have been what was causing the dizziness, but I STILL have it! Waddaya think guys?
[This message has been edited by imsotired (edited 08-22-2003).]
re: hypoglycemia
In 96 they were looking for diabetes and I had a 3 hour GTT glucose tolerance test but ask the doctor I have heard about the 5 hour GTT being more specific in finding hypoglycemia (?) In the 3rd hour I was 56 low. It took a while to figure out what hypoglycemia is. It is different from diabetes. How to explain...In a diabetic they do not have the insulin to transport the sugar ie: high sugar so they need insulin. For the HG, the more sugar you ingest the lower your sugar level falls (too much insulin being produced)and then you feel the wonderful feelings of dizzy, lightheaded, confused, slurring speech feeling absolute exaustion, recurrent boils, uti, yeast infections, you name it. Before I learned I was HG, I used to drink loads of coffee dumping 3 tsp sugar per cup!!!!trying to wake up. No WONDER I was beat. I was doing the wrong thing all along which yielded the opposite desired affect.
I then did a 380 turnaround and eliminated sugar from diet, sugar free foods, things made w/nutrisweet. I cut down and almost all fruits (a mistake learned years later).
The important thing is to modify the sugar intake but still eat fruit. It is important. I have the sugar monitor kit.
does anyone get tremor or twitches with hypo? 
IWL
