It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Thyroid Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 09-12-2003, 01:42 PM   #1
Member
 
Join Date: Jun 2003
Posts: 94
Golden Girl HB User
Post Rheumatologist?

After having the thyroid test (except for Free T3), hormone test, B12 deficiency and anemia test done, my Doctor has suggested I see a Rheumatologist. Does anyone know why? My main complaint is fatigue. When the nurse called me today my office was full of people and I could not ask alot of questions. She told me to think about it and let them know.

Oh, and of course all the tests are normal.

 
Old 09-12-2003, 01:46 PM   #2
Senior Veteran
 
Join Date: Jul 2003
Location: Spokane, WA USA
Posts: 714
Iwannalife HB User
Post

Can't know if your body is using the thyroid hormone unless you have a free T3. Ask them for that first. IWL

 
Sponsors Lightbulb
   
Old 09-12-2003, 02:34 PM   #3
Veteran
(female)
 
Join Date: Oct 2002
Location: Roselle Park, NJ
Posts: 342
Ginger9708 HB User
Post

Hi,
I was also sent to one a few months back when the doctor was sending for tests. My blood test came back with an increase in white blood cells (meaning inflammation). After two visits with the rheumatologist, it was determined that I had no signs of arthritis and said it was my thyroid. I was then sent on my way and that was it. It was embarrasing because I was the only young person there. I guess they just want to rule certain things out for now.

 
Old 09-12-2003, 07:39 PM   #4
Senior Member
 
Join Date: Aug 2003
Location: Dudley,N.C.
Posts: 111
ANNETTE H HB User
Lightbulb

The rheumatologis knows Lupus. I was sent to one because of crossover symptoms,Hypo-T,arthritis and Lupus.Mine turned out to be a spot of arthritis and several spots of bursitis.AND of course my life time companion Hypo-T http://www.healthboards.com/ubb/heart.gif

 
Old 09-13-2003, 03:47 AM   #5
Member
 
Join Date: Jun 2003
Posts: 94
Golden Girl HB User
Post

I am going to ask for the Free T3 test after that I don't know what else to ask for except for the IgG Food Intolerance Test. I have been calling around and no one seems to know anything about it.

I don't think there is a need to go to a rheumatologist.

 
Old 09-13-2003, 09:05 PM   #6
Senior Veteran
 
Join Date: Jun 2003
Posts: 738
AngelaA HB User
Post

Probably because anytime dr's can't explain fatigue and pain in women they like to label it Fibromyalgia and tell you to shut up and quit complaining. At 23 I was the youngest person in the rheumontologist office. Yep got some stares. I went through $7000 worth of blood tests for 30 different diseases. Uhm... if I remember correctly they didn't run a thyroid panel. I thought I had arthritis, after all it does run in the family. The dr was adamant that the culprit was Lupus or Schlerdoma (however its spelled). Results were inconclusive; I was labeled with Fibromyalgia and shown the door. He said "we don't know how to treat it there is nothing we can do". I moved to Arizona and symptoms started to gradually taper off probably because it isn't so damp and cold out here. Finally found a REAL dr who diagnosed me as hypo-T and after being on Armour a few months I stopped hurting. Well except for past month my right leg started hurting after 2 weeks straight of rain. I broke that leg last summer, so seems likely this is arthritis. It feels different than what they labeled as Fibromyalgia. I don't dispute that I had Fibromyalgia symptoms, but I don't believe it is a disease; it is a symptom of Hypo-T.

So to make a long story short...ditch your doc, find a more enlightened one to treat your thyroid and go to the rheumotologist as a last resort.

 
Old 09-13-2003, 09:11 PM   #7
Senior Veteran
 
Join Date: Jun 2003
Posts: 738
AngelaA HB User
Post

Have you had antibodies test including ANA? Definitely get a FT3 done. Maybe even liver function if your thyroid panels look good. Meanwhile take selenium, magnesium and some glandulars.

 
Old 09-14-2003, 03:13 AM   #8
Member
 
Join Date: Jun 2003
Posts: 94
Golden Girl HB User
Post

Angela- I am sorry you have been through so much at such an early age. I don't have pain like most of the people on the boards do. The pain I did have was in my upper shoulders and seem to get worse before my peroids. I did go several months ago and had my Doctor to test to see if it was arthritis but it wasn't. I started using progesterone cream 2 weeks ago and I am feeling so much better. Most of the pain in my shoulder has gone away and I have gotten some of my energy back. I feel better both physically and mentally. I was taking the selenium but stopped taking it when I had the last blood test done. I may start taking it again. My Doctor will run tests it's just that I have to do the research and tell him what I want.

I have not had the anti-bodies test done.

[This message has been edited by Golden Girl (edited 09-14-2003).]

 
Old 09-14-2003, 10:31 AM   #9
Senior Veteran
 
Join Date: Jun 2003
Posts: 738
AngelaA HB User
Post

GoldenGirl- Definitely have the antibodies tests done it can confirm Hashi's and the ANA test is often used to determine Lupus. My best friend told me they have tried for 4 yrs to tell her she has Lupus though her tests have always been negative. So they constantly are re-testing trying to prove it. I went to neurologist for headaches thought it was migraines or related to two head injuires I had previously. For some reason she sent me in for blood tests for Lupus and also a B-12 & ferritin. Seems dr's seem to be stuck on Lupus as a diagnosis for everyone... or at least females with a variety of symptoms.

 
Old 09-14-2003, 12:17 PM   #10
Member
(female)
 
Join Date: Jul 2003
Posts: 77
happy4us HB User
Post

Hi,
I'm going through all this now and seeing a rhuemotologist. My GP did run an ANA and it came back extremely high which can indicate Lupus. I too was shocked to be referred to this doc instead of an endocrynologist. HOWEVER, the specialist doesn't believe I present enough symptoms to be labeled with Lupus. He has diagnosed me with Hashimoto's Thyroiditis with goiter and nodules. He wants to continue seeing me instead of referring me on to an endo so he can monitor for signs and symptoms of Lupus. A Rheumotologist treats all auto-immune diseases and if you are fortunate enough to find a progressive one then you'll probably get better treatment.

Although my labs are pretty well in range, he's starting me on Synthroid to treat my MANY symptoms. It's just a matter of time before my thyroid stops functioning altogether anyway. This will prevent my goiter and nodules from continuing to grow and hopefully avoid surgery later.

I asked him if it is common in a patient diagnosed with Hashimoto's Thyroiditis and having a high TPO (thyroid antibodies) to also have extremely high ANA. His simple answer was yes. They are both auto-immune diseases. All it says is that your body is turning on your organs as if they were foreign such as bacteria and viruses. You can have Lupus that causes Hashi's (and other organ damage) and test positive on the ANA or you can have Hashi's only and test positive on the ANA.

Hope this helps.
Rhonda


 
Old 09-14-2003, 02:31 PM   #11
Member
 
Join Date: Jun 2003
Posts: 94
Golden Girl HB User
Post

Rhonda-
Did the Rheumatologist run tests on your thryroid also? I thought I would call the Doctor's office tomorrow and ask why they are referring me to a Rheumatologist.

 
Old 09-14-2003, 06:01 PM   #12
Member
(female)
 
Join Date: Jul 2003
Posts: 77
happy4us HB User
Post

Golden Girl
I first saw an allergist after suffering from hives and swelling for 3 weeks. I assumed I had an allergy. The allergist (my son's doctor) is very intelligent, progressive, and compassionate and she's the first one to run thyroid tests. She told me then that hives are very rarely as a result of allergies. She checked the T4, TSH, TPO and Thyroid Peroxidase. My antibodies are EXTREMELY high so she referred me back to my GP.
The GP (whom I hadn't seen in almost 6 years because I'm never sick!) ran a thyroid panel and also a CBC w/dif, ANA, Glucose, ect. His nurse said I was being checked for everything under the sun. I also had an ultrasound for the goiter and found that I have many nodules. The largest measures 1.4 centimeters across but they believe it is probably benign and I have to have the ultrasound re-checked in 6 mos. The ANA came back EXTREMELY high also so he referred me to the rheumatologist. In case you don't know, the ANA is a general test used to screen for auto-antibodies (anti-bodies that attack your organs) and is a good indicator of Lupus, Scleroderma, Rheumatoid arthritis, and about 30 other auto-immune diseases.

So, when I went to the rheumatologist I already had researched what all my labs meant and I had even told my hubby I thought I had Hashimoto's. I admit I played dumb at first in the dr.'s office to hear his explanation of everything. That way I knew whether or not this guy was telling me things that were consistant with the research I'd done. If he hadn't told me what I expected to hear or had not had compassion then I had already set up a second opinion appointment with another rheumatologist in another hospital in another city. As it turned out after I got his attn (he started with the "book" attitude) then he became very willing to talk to me. At that point I had many questions about what it meant....not what it was. I think he realized I knew more than I was letting on and he ended up printing out the info that dr's use to study and treat this for my information. It's just a bit over my head (understatement!) but with my medical dictionary in my lap I get through it and feel more assured. This all took 2 mos from the time I first had hives.

So...if I were you I'd ask every doc I've seen recently to fax a copy of my labs and x-rays to me. That way you'd know for sure what they have tested and could post here with results or check other resources. You have a right to know what they're doing with you. It's your BODY and your MONEY that you pay them for goodness sakes!

BTW- Because I had copies of both my labs with me when I went to the rheumatologist I by-passed having to wait for lab results again. He had the last copy but not the first or the radiologist report. I was able to provide the additional info to him right then and there. Don't assume the medical profession is taking care of it all. They miss a lot.

Please let me know what other questions I can help you with. I am very new at this myself and I know having a response is very important to me too. I don't claim to know everything, but I feel like the three doc's I've seen have all been progressive and compassionate. If you've read many of the posts here you find that's not generally the case for most folks. I am very fortunate....and very stubborn. I had already decided what type of treatment I felt was comfortable for me before I went to the rheumatologist.

Take care- Rhonda


[This message has been edited by happy4us (edited 09-14-2003).]

 
Old 09-14-2003, 06:07 PM   #13
Member
(female)
 
Join Date: Jul 2003
Posts: 77
happy4us HB User
Post

Golden Girl
Also - all my thyroid tests (Free T3 not done yet) are considered "normal." But, since I have symptoms (fatigue, memory problems, concentration problems, weight gain, ect) my doc is treating me with Synthroid which I started last week. Obviously for me my thyroid is going to die at some point. There's no question about that. And doc doesn't think we should wait until it "poops out" (his words) and I feel even worse to get started on making me feel better. I haven't read anything medically about feeling this way when levels are normal....but I guarantee you that I'm not a baby and I do feel crappy! Thank GOD for my doc. Hoping I'll feel better in a few weeks!!! Rhonda


 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Saw Rheumatologist Today - Opinions Please *Robin* Fibromyalgia 7 10-19-2011 03:24 PM
Difference between an internist and a rheumatologist HOTFLASHIN Fibromyalgia 3 10-05-2009 10:13 PM
PCP versus Rheumatologist sillygirl Lupus 4 04-08-2008 11:26 PM
Rheumatologist vs. Neurologist? christine07 Neurology 8 01-21-2008 08:08 PM
Rheumatologist for spinal stenosis Pebble Beach Back Problems 2 08-30-2006 04:39 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Armour
Cytomel
Levothroid
Levoxyl
Potassium
  Synthroid
Tapazole
Unithroid
Xanax
Zoloft




TOP THANKED CONTRIBUTORS



sammy64 (666), midwest1 (627), FinnMaid (308), Reece (224), lisa789 (196), Tree Frog (80), mkgbrook (72), cd37 (56), ladybud (45), Bran'sNana (44)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (896), Titchou (832), janewhite1 (823), Gabriel (757), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 01:40 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!