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Old 09-22-2003, 04:23 PM   #1
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Post update labs- anyone with ideas? Please help.

****UPDATE****

Here are my labs from 2 weeks ago: T3 Total= 73, T-4 Total= 5.4, TSH= 1.14.Still - very tired, hot all the time - itchy skin...I went to my old internist today
(non-HMO)- who was shocked because, with the enlargement he felt of my thyroid - and amount of thyroid antibodies I have (TPO AB= 429.0) not one endo suggested a thyroid uptake& scan, or Thyroid
ultrasound. He booked both tests at the hospital this week, and gave me the name of a great endo with a speciality in Thyroid (non-HMO too... ahh' isn't this the irony!) so, I'll be broke - but maybe saved!? Anyway, he feels that a definite auto immune disease is going on with my Thyroid... but not sure what... A different doctor suggested Lupus because I had two areas in my body with auto-antibodies(optic nerve, thyroid) - Any thoughts??

Most of this started in 2000 - within 3 months after the birth of my daughter, I lost weight rapidly, had severe mood swings, etc... my
doctor took blood, sent me to an Endo as my Thyroid levels were severly Hyper! So, the Endo calls me at work to tell me I have Graves. put me on Tapazol (sp?).
Within 3 weeks my levels were taken - they went down so much that the doctor said I didn't have Graves,and it was just a post pregnancy Thyroiditis... Well, 3
years later, I have suffered from extreme fatigue (for the last year), always feel hot - can't ever cool down! sluggish, heavy in the mid-section etc... Dr.s wrote it
off as a busy mom thing.... Well, until I got Optic neuritis in both eyes, in and out of the hospital for MRI's, spinal tap - to rule out MS...steroid treatments, you name it! I'm 32 years old and feel like I'm 90! All looked "-" for MS, but my Thyroid antibodies have tripled! Now I'm being told lupus (even
though ANA is '-') or Hashimoto's - anyone have optic neuritis and Hashimoto's?? I know it is common with Graves...Thank you for writing back!!!!

[This message has been edited by Devrha32 (edited 09-22-2003).]

 
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Old 09-22-2003, 05:16 PM   #2
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When you post your test results, it would be more helpful to get your lab ranges too as not all labs have the same ranges.
Free T3 and Free T4 tests tell more than the total T3 and total T4. Ask your doctor to do these tests for you.
Barb

[This message has been edited by Bosmom (edited 09-22-2003).]
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Old 09-22-2003, 06:17 PM   #3
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Are you on thyroid meds now? If so, you will need to go off of them for 4-6 weeks before any type of scan is done.

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Hashimoto's~Hypo
Multi-nodular
No meds, waiting for scan
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Lupus
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Hypothyroid

 
Old 09-22-2003, 07:48 PM   #4
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first of all ...at your other thread i answered you that NEITHER hashimotos NOR graves have NOTHING to do with optic neuritis.
I m trully sorry i know that you re desperate looking for some answers but optic neuritis as I KNOW is connected with MS.

so to your prob now...MY OPINION IS ..your first doc when you were pregnant made huge mistake.
It's very often due pregnancy T4 to be higher than normal ..and often doctors to be confused and think you re hyper.
You took by mistake an antithyroid medication which MAY have caused a hypo you re in now.That is one guess...
another one is that you produced hashis without any reason as an autoimmune disease.
graves and hashis can coexist producing a phenomenon which is called ha****oxicosis but on early stages of the disease because with time your thyroid is destroyed producing hypothyroidism.
so now...
about the anti-tpo you mentioned ...well..they re too many yes...but not THAT many...there are cases with 1000 1500 etc.
as long as you have a goiter with antibodies it's obvious that you need medication..i dont know if this is the right time to start your medication or even if you re on medication with synthroid or smething else but this is a matter that needs to be discussed with your endo.
As for the MS ..lupus etc...
There are many autoimmune diseases that can come with hashimotos disease.I think you have to make a check on your immunoglobulines IgG,IgA,IgE,IgM are the most common.
Complement C3 C4 are good sources to see what's going on with your immune system
A complete blood count ( white cells %analysis,HT,etc)is also available and a biochemical analysis also.
All these should be shown to a RHEUMATOLOGIST and ask for his opinion.
This is what i would do if i were you.
I say it again and i hope that you get this out of your mind...HASHIS and GRAVES have nothing to do with optic neuritis.
Talk your endo probs with and endo but look for a rheumatologist to chech up your immune system.

best of luck to you.

PS: your endo has to check your adrenals and pituituary gland too...IT'S VERY IMPORTANT to see if you have any probs there.


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Old 09-22-2003, 11:45 PM   #5
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Optic neuritis can be from thyroid disease and actually from quite a few other things, such as combined smoking and excessive drinking, vitamin deficiency, etc. If you develope hyperthyroidism, it enlarges the muscles in your eyes putting pressure on the nerve. With Hashis, you bounce between hyper and hypo sometimes. It is also sometimes one of the first signs of MS, but there are MANY of us here who read up on MS because of our symptoms and scared ourselves silly. So many of us were checked for pretty much everything and it turned out it was "just our thyroid".I would also have your primary care dr. write a letter to the insurance company and insist that yours is a special case and you need to see this certain specialist. They will turn you down the first time, then you write a letter too and attach all your drs. info and copy of his letter and demand the care you need. Never works the first time, but works often the second. Be a squeaky wheel, you pay for your care and you deserve to feel 32 again. Good luck, IWL

 
Old 09-23-2003, 01:39 PM   #6
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Thank you for your replies!!

Hi Bosmom: looked up my Free T4 - it was .94, wierd thing is 3 months ago it was 1.23. Is it normal for it to fluctuate like this? Cannot locate a Free T3 test. Hmmm.

Hi Iwannalife: Thank you for the info. I am going to look more into the connection between Optic Neuritis and Thyroid disease.

My scan is tomorrow morning, and my ultra sound the day after... nervous !

 
Old 09-24-2003, 08:14 AM   #7
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I have to disagree with IWL.Optic neuritis can be found in GRAVES disease(i made a mistake saying no)BUT on the latest stages of an untreated GRAVES disease.
It's a common thing to say i have hyperthyroidism but GRAVES disease is not the same thing.
GRAVES disease is an autoimmune disease leading to hyperthyroidism such as hashis is an autoimmune disease leading to hypo.
Hyperthyroidism CANNOT produce optic probs.
Graves disease though...can produce an EXOPTHALMOS in the beggining and with time may produce chemosis, conjunctivitis, periorbital swelling.Then at later stages we have corneal ulceration, optic neuritis, and optic atrophy.
And of course the eye muscle is not enlarged.
The exofthalmos is produced due to a high periorbital concentration of water,polysacharides and lymphocytes which produce the swelling.
So...if i am right you dont have an exopthalmos ...you dont have other eye probs so...your optic neuritis has nothin to do with graves disease.
Optic neuritis is one of the first symptoms of MS.That is what i know.
MO is that your optic neuritis has nothing to do with your thyroid....EXCEPT you have passed all the other stages of graves disease and you re about to lose your sight.But i guess you have/had NO graves disease.



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That which does not kill us makes us stronger.
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Old 09-24-2003, 08:17 AM   #8
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btw ...these are interesting urls:

[url="http://www.nanosweb.org/patient_info/brochures/OpticNeuritis.htm"]http://www.nanosweb.org/patient_info/brochures/OpticNeuritis.htm[/url]
[url="http://www.healthatoz.com/healthatoz/Atoz/ency/optic_neuritis.html"]http://www.healthatoz.com/healthatoz/Atoz/ency/optic_neuritis.html[/url]
[url="http://www.medstudents.com.br/endoc/endoc5.htm"]http://www.medstudents.com.br/endoc/endoc5.htm[/url]

Cheers



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That which does not kill us makes us stronger.
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