Hi, everyone! I'm a newbie and also recently diagnosed with hypothyroidism. I hope you people are patient because I feel the need to tell a bit about myself before getting to the advice I want. I don't know if this happened to many of you, but I had been feeling lousy for more than 12 years before this diagnoses. Couldn't tolerate heat, couldn't tolerate cold, couldn't lose weight on a typical low-cal diet(this drove me to bulemia, though, luckily, I have been over this problem for at least 9 years), even as a kid-I'm now 35-I always had dry sandpapery hands, lost lots of hair, weird periods, depression and very bad bloating and water retention. More recently -about 2 years ago- I was sent to a rheumatologist(is that how you call arthritis specialists?) only to be told that my intermittent shoulder bursitis, knee pain, hip arthritic-like flare, and fatigue were all due to some vague arthritic problem that does not show in blood tests-I was rh factor negative. I mentioned about the fatigue and weight gain in the hopes that this might help the Rheumy guide me towards a solution and answer to my problems but to no avail. What finally pushed me over the edge to go back to my GP to get a complete blood evaluation again (I had tested "normal" for thyroid all those past years and doctor said I might be borderline but did nothing about it..) was that I had been short of breath and was worried about heart disease(runs in my family)I have since learned that this too is a symptom of ypothyroidism. Needless to say that all these years of feeling horrible and knowing that something was wrong with me has turned me into a hypochondriac. This is sad because many times I felt I was crazy and just making up these symptoms. I learned to doubt myself. Anyways, now that I have been diagnosed I am relieved but have many unanswered questions;
Does anyone have localised muscle pain? My left thight started hurting recently...
Does any one have a swollen gland or tonsil? I occasionally get one tonsil or the other that becomes hard as rock and eventually returns to normal.
I heard that Mary Shomon's book - Living Well With Hypothyroidism is good, but after having bought 3 other unhelpful books on thyroid (they focused only on how to tell if you're hypo and how to convince you doc & such) I'm recluctant to buy yet another letdown. I'm looking for info(in book or on the net)on nutritional therapy or diet. I want to know what is the best way to eat when you have hypo since I need to lose about 40lbs. Does anyone know if she (Mary Shomon) talks of nutrition therapy in her book?
Finally, if/when the dosage is corrected will I lose the weight? And how fast? I would like to hear of success stories please!
Thanks to those who took the time to read this awfully long message. I guess I'm venting out all those years of frustration. I'll appreciate ANY help. Thanks
Hi, I'm really new to this board. As a matter of fact the first time I tried to reply it wouldn't let me, thats how new I am. Anway, I'm really greatful for having found this place. I was diagnosed with a multinodular goiter in 1997. I've been suffering with severe anxiety attacks since I was in high school, I'm 31 now. I went to councelor after councelor and no reason was ever "found". My most recent doctor did blood tests to check my thyroid and they all came back within normal limits, however she says the symptoms say otherwise and is sending me to an Endocrynologyst(sp?). Besides the anxiety attacks which include major heart palpitations, I have hot and cold sweats, weight gain over a period of time though I don't eat much cuz I have no appetite, and every now and then I just suddenly drop 15lbs. or so, my body hurts, and I get severe shooting pain through one part or another now and then, I am absolutely exhausted ALL the time, I just have no energy (not a good thing with a two year old), no matter how much sleep I get. I go back and forth between constipation and diarhea (sorry its gross I know), my hair is falling out, and I'm HIGHLY frustrated with the whole thing!!! I wish they would just properly diagnose me once and for all so I could FIX this, whatever it is.
Anway, what was my point? Oh yeah, I'm sorry you've all had to suffer in this way, but I'm grateful that there are people here who know I'm not crazy (at least I hope I'm not!). Its nice to know I'm not the only one out there, and that I probably don't have some strange rare disease that no one has ever heard of.
are always smilin, even when it hurts
are always smilin, even when it hurts
hello everyone!Iam a 32 year old female suffering from hyperthiroidism i believe.Over the past 3 and a half years i have had alot of symtoms of this i realize after reading all the stories and boards.Iv had blood work done but they allwats come back normal and still i have not been diognosed!it is very hard to go on like this any more.aAll the doctors think it in my head but i know better than that!they put me on Paxil for my panic attaks and aniexty,and im allso depressed.i want to go back to the doctor but they think its all in my head and its not!could someone please help me!
Hypothryoidism runs in my family so I shouldn't have been surprised when given bad news in '95 at age 29, but I was. I had misguidedly been put on lithium year before and believe it knocked out t-gland years before it would have naturally occured. My mother developed hypothyroidism in middle age.
When I look back, it's funny how clued out I was in regard to the symptoms: tired all the time, severe weight gain, and the whites of my eyes became very exposed as if the lids had pulled back. Even when I could no longer stand at the fax machine to send things out at work and had to bring a chair to sit, I didn't suspect something had gone awry.
All my life I've had problems with episodes of depression and thought this was a particularly severe onset. My husband finally urged me to go to a doctor for a check up when I couldn't wake up one weekend. Lo and behold, there it was in the bloodwork, hypothyroidism. Was prescribed standard dose of Synthroid.
A lot of time passed before I realized the treatment was not helping very much. It took a long time to be referred to a specialist because I did not have the energy to do simple things like take self to doctor. I know it sounds silly and self-defeating, but the simplest tasks were overwhelming. Every last drop went into holding down my job with nothing left over, especially to take care of self.
I was fortunate to finally be referred to an endocrinologist who was not afraid to try different things. After a year or so of treatment she pronounced me "thyroid resistant" and began trying different things in different doses in a quest to return me to a proper level of functioning. This doctor was fearless, sometimes she would ignore the numbers on the bloodwork to get me back to a point where I felt normal again. I was terribly impressed. Other doctors would freak when they saw my thryroid levels and caution me like I was a little girl outside after dark. They thought she was some sort of dangerous medical renegade until I would mention she was affiliated with and worked out of one of the most respected hospitals in the country.
I'm sure everything would have worked out in the end regarding the hypothyroidism if I hadn't developed abrupt onset of narcolepsy in '98.
Funny, again I didn't realize something was wrong until it was staring me in the face. The diagnosis was confirmed six weeks ago after I took two sleep tests earlier this year. So in a way, hypothryroidism has taken a back seat in my list of priorities which is odd because I used to be so preoccupied with it, almost obsessed. I was sure it was the root cause of everything that was wrong with my life. Nowadays, I just pop my Synthroid pill each morning along with a dose of Cytomel and hope that it does the job. I mean, if it doesn't do the job, how would I tell? Depression, hypothyroidism and narcolepsy have much in common in terms of telltale signs: oversleep, low energy, and fatigue.
Thanks for reading my post. It's delightful to make contact with others. One feels so alone most of the time. My signature is Waiting to Exhale but my name is Sue.
I have waited a while to post my story. I hope this isn't too long. I have been sick...very sick since i was a baby. I had jaundice as a newborn and i just didn't really improve 100%. I learned to go to school every day during elementary school, hiding the fact that i was throwing up every morning and afternoon. I was just sooo sick. I just wanted to go to school so bad. Eventually my immune system became so weak that (after going to every type of Dr. immaginable and going to about 100 of them) I became so tired and weak that I slept for 6 weeks and was hooked onto an IV. That was my Sophmore year in high school. By that time, I already had gained 20pounds (I would have gained more except I ate EXTREMELY healthy and worked out at least and hour and a half a day. I didn't lose,but i didn't gain any more than 25 pounds in all.) I had lost all feeling in my left foot, my temperature was off and I would get hot flashes in zero degree weather and I would be freezing in 100 degree weather (WIERD!!) , my hair was falling out, i had ezema that wouldnt go away, i was obviously exausted, my lymph nodes had swolen up so big in my neck that i looked like a chipmunk, i was depressed, i had bad anxiety, i started to lose my eyesight, my hearing was fading, and my memory was going with it. I wasn't able to make quick decisions and I would stumble if somebody said "what's your name?" I couldn't even remember something as simple as my name for a few seconds. EVentually after six weeks on the IV treatment (I was getting Vitamin C drips and Oxygen drips, along with the other nutrients i needed.)I was strong enough to get up and finish my sophmore year. I knew something had to be wrong with me when I didn't eat solid food for six weeks and still never lost a pound. Anyway, after more bloodwork and any other type of test you could think of, the doctors all finally decided that i was just crazy. (KEep in mind that i had been telling them that I felt like i was choking for months and I had ALL the signs of thyroid disease...AND they did blood work, but we all know that isn't always the answer.) I got so horrible that i couldn't drive anymore because I was so out of it and I really couldn't remember what i ate for lunch. I had to drop out of school because I couldn't even wake up most mornings (but i did get my GED). Right now i am 18years old and I finally got diagnosed 3 months ago. I have Hashimoto's and Hypothyroid. I feel like my whole childhood and some of my early adult years were lost due to this illness. I have spent my whole life in doctor's offices. I thought it was a normal 3 year old's life to get their finger *****ed for blood tests twice a week and throw up every day. But now that I am diagnosed I feel like I have my life back. I am not wonderful yet, but at least I know ... at least I have a name to the prison I have been living in. Every day taht I wake up and take my pill (Synthroid .15 mg) I think, "I am one step closer to gettin better. EVery day I get better and better." Some days I feel wonderful and some days I feel like I am sick again, but at least I know. I am just upset it took me 18 years to get it diagnosed, but at least we found it. Now there's only one doctors office I have to go to on a regular basis. Thank God I have a doctor that treats my symptoms and my ultrasouns and not just some lab work. I hope everyone is doing great. Hey, look at me, it's 3am and I am still awake. Right now, my weight has gone down about 5pounds and I have a lot more energy. My hair is still really dry and falling out a little, but improving. My ezema is definately going away and I don't feel like I am choking anymore. Every now and then I feel that "out of it feeling" and I hate it. Oh and I am also still very sensitive to the cold. ANywayz, this is long enough. THANX to anyone who took the time out to read this. HAVE A GREAT DAY!!!
I know I've already posted my story, but I recently posted my progress since the thyroidectomy (symptoms and reactions to Synthroid). I take a lot of supplements now, and they seem to speed the process of stabilization. But perhaps this long post can help someone get an idea of what their own reactions/symptoms may mean and how long they may last.
My Boring Personal History
Total thyroidectomy for papillary adenocarcinoma with follicular and Hurthle cells 11/2/00. RAI ablation was 1/16/01. After the ablation, I started Synthroid at 125 mcg/day on 1/18/01.
In March 2001, my levels were Hypo, and I was miserable (migraine, achy, brain fog, palpitations, dry skin/hair, pain/intolerance to light touch, etc.)
We were still ramping up the meds to find the "optimal" level, so my Endo subsequently increased me to 175 mcg Synthroid. (Typical treatment is to slowly increase the medication dosage until the patient is Hyperthyroid, and then subsequently lower the dose one increment as the "stabilizing" dose.)
In July 2001, my levels were Hyper and I knew it (staring gaze, insomnia, itchy/hot skin with hives, numb arms & legs when sleeping, emotionally numb or angry, forgetful...)
My Endo reduced my Synthroid back to the 150 mcg following this blood test.
In September 2001, I was still slightly Hyper on the 150 mcg, and he wanted to keep me that way as protection against growing new thyroid tissue. I was getting used to the 150 mcg Synthroid dose. (Still achy, but emotionally more stable. Hot skin and still bad migraines though.)
Started using Maca on October 24, 2001 and continue to take it daily. Noticed an immediate relief in certain symptoms (thinking more clearly, less body ache, more energy, improved moods, less hot flashes).
By December 2001, my recheck didn't include blood tests, but I was in better spirits. However, my slightly Hyper level made me develop very dry and painful eyes and an intolerance to my contact lenses. This intolerance and pain ended after the dry winter months.
Somewhere around February 2002, I started taking Selenium in addition to my daily dose of Maca. The residual body ache (which had by then returned) went away completely.
In March 2002, the doc seemed to think I was doing fine. My blood levels were now less Hyper, and my symptoms were much better. I was actually feeling like my old self again.
Just when everything was great, it was time for my annual thyroid scan (which has to be done in a Hypo state). So I was switched to Cytomel in May 2002, and then stopped all meds (and Maca) for three weeks in June prior my scan. Continued to take Selenium. Felt fantastic off all the meds the first couple of weeks, but then began to move slowly, had a little brain fog, and had very vivid dreams. Pre-scan bloods revealed that I was quite Hypo and ready for the scan.
Following the scan, I started back on Synthroid 150 mcg and Maca (June 28, 2002). Body ache returned, as did the headaches, mood swings, pain/intolerance to touch, depression and extreme bouts of anger. Cranky cranky cranky, palpitations and numbness/tingling. Headaches flared up and then dissipated within 3 weeks back on meds. Anger finally stopped after week #4. Body ache is improving, but still lingering now (end of week 4).
Expect to feel more myself by week #8, but it felt like my body went into shock by the 150 mcg dose. Will consider either splitting the dose after next year's scan, or taking half pills for a week and slowly increasing it.
[This message has been edited by ArtfulD (edited 07-27-2002).]
I am a 29 year old single mom diagnosed with Hashimoto's Thyroiditis for almost a year now...I have had medical and emotional (depression) problems of one type or another for years and never questioned doctors that misdiagnosed me because I knew nothing of thyroid problems and never considered these things were connected...Finally, last year aside from the physical symptoms of:
swollen feet, ankles & face
I started to experience something new, which really frightened me...I worked as a case manager for a youth program, which required me to be on the move all the time, travelling from county to county and keeping up with alot of information in my head...I noticed that I had become more and more forgetful, but I just kept better notes and explained it away with various excuses...However, travelling down a highway one day on my way to a city I normally visited atleast twice a week on business, I suddenly realised that I didn't know where I was, where I was going or why ...I was scared and questioning my mentality wondering if maybe I was losing my mind...My mother was bipolar manic depressive before she passed in 99 and I have always worried that I could inherit that...After pulling over, calling my boss and figuring out what I was doing, I pulled myself together and did my job...However, this continued to be a big problem for me and when it got to the point that I called in sick because I couldn't even concentrate well enough to get ready for work and get there, I just stayed home, cried and tried to find a doctor to help me...
I found an internist who I proceeded to inform that I was going insane and wanted medical help before I
went over the edge...We talked for a while and he ordered some blood tests...He diagnosed me with Hypothyroidism, so he prescribed Synthroid, and also Effexor to assist with the depression I was feeling then referred me to a rheumotologist out of concern for the joint pain that was keeping me awake...
After extensive testing, the rheumotologist further diagnosed me with Hashimoto's Disease...The thing is, he spoke as if it wasn't a big deal as long as it didn't spread to other organs as they were concerned about Lupus, etc...I walked out of there honestly not thinking it was a big deal and was even relieved because I knew what it was and the doctor didn't seem too concerned...I took my medicine and felt better, tried to diet unsuccessfully a few times and just basically went back to normal existance...When I'd feel better, I'd start 'forgetting' to take my medicine and end up sick again...Looking back now, I don't know what I was thinking...I was denying everything I guess because I didn't want to be sick...Well, mind over matter doesn't always work...
Recently, I've returned to taking my .1 mg Synthroid, my 75 mg Effexor for the depression, am researching online for information on treatment, nutrition information, etc and have ordered several books including Mary Shomon's "Living Well with Hypothyroidism"...I'm determined to fight this disease and live as normal and happy of a life as possible...I am finally beginning to come to grips with the reality of Hypothyroidism and Hashimoto's...
Right now, I'm at home very sick with a flare up...I've been at home all week with a nasty headache, extreme fatigue, freezing, and a really swollen thyroid that has actually started to hurt a good bit...It sucks, but I just remind myself that there are alot of people out there sicker than me and I can handle it...
I'd like to thank all of the people who post on this board for sharing your stories and information...Its very important for those of us newly diagnosed with thyroid disorders to be able to reach out and locate others who understand what we're going through that we can learn from...It helps alot to know that we're not alone and we're not going out of our minds...
After reading the board on Thyroid problems I feel that maybe there is a light at the end of the tunnel for me, afterall. About two years ago I started feeling horrible. Every muscle in my body ached, extreme fatigue...I went to bed at 5:30 or 6 in the evening and slept until 6 the next morning when I had to force myself to get up and go to work...no energy whatsoever. I gained about 40 lbs which made me extremely depressed. I couldn't have exercised or walked if someone held a 32 to my head. I had CAD with a stent placed about three years ago and was placed on Zocor. About a year after that I asked the doctor to switch me to Lipitor because I thought it was cheaper. That is when my problems started. I went on line and there were horror stories about Lipitor with all the same symptoms. I went to my doctor again and again and he always said my TSH was normal and it couldn't be the Lipitor. I took myself off the Lipitor against his wishes, and started feeling better but still had fatigue and muscle aches but not quite so severe. I seen another physician who took more tests and stated my thyroid test was high and put me on Synthroid which I just started at 50 mg's once a day. I started this about 3 weeks ago with no results yet. I now wonder if it was hypothyroidism all along.....maybe drug induced??? I am trying to explore my own health issues, trying to find answers. I need to feel good again, with energy and a zest for living. I am a grandmother and I need to be involved in my children's and grandchildrens lives without being a drag.
Thanks for listening.
enufisenuf: i was prescribed levothroid and my hair loss was much less, then my doctor for some reason switched prescription to synthroid and my hair started falling out again. i told him this, but he said it cant be the meds because theyre the same thing. i asked him to change back to levothroid just to see. he did and my hair stopped falling out. the same thing was happening to my mom on synthroid. she asked to switch to levothroid and her hair is getting thicker. maybe you can try levothroid instead. good luck!
Hi, I have posted questions on this board but I have never really told my story. I will try now. I am 37 years old. About a year ago I was having major GI problems. I am pretty shy and it took alot for me to go to the doctors. My family talked me into after I ended up in the er one night in so much pain from it. The hospital after doing a ultrsound to rule out any problems with my heart, spleen, appendix,etc. Thought I might have irritable bowl syndrome. I followed up with my doctor. While I was at my doctor I happen to remeber to ask him,(which at the time was amazing because I forgot everything all the time) What could be making my eyes swell? He said it could be my thyroid. I asked how we could find out he said lets run some test. So he wrote up the test for me to get my tsh and t4 tested. He allso went on to ask me if my hair was falling out. I imediately responded YES!! I thought my hair was thining not putting it together with a medical problem. I told him I get a handfull every shower. He asked me if my skin was dry? Can I just say he was naming everything I had been dealing with for a long time. Some things I put off to must be a age thing and delt with and never considered medical.
Then I had my test done and the office called and said I needed to come in to talk about my results. So a few days later I did. My tsh was 6.7 He then asked me if I had had these symptoms for along time? I said 3 or 4 years at least. I had since the first appointment read about the thyroid and realized the memory problem was part of it and so was the brain fog. I always thought I had adult A.D.D. My whole family did we joked about it. Well he said I was hypo and that it's possible a thyroid infection that would go away but he wanted to test my antibodie. He wanted to know if anyone in the family was hypo, I told well the only one I knew of was my gramps.
I had my antibodies tested. When I went back to the doctors office a week later to find out my results. My doctor flipped!! He said I have must of had this for a while. My antibodies TPO were 4,670. Range was 0-34 was normal. He right away put me on synthroid. He told me I would be taking this the rest of my life. He started me on 50mcg's the first week then to 100 mcg's. I was feeling better but not quite what I was exspecting yet. So I read and read... I baught every book they had at my book store on it. Including thyroid solutions. (which I loved) So much I took it to my doctors my next appointment and he barrowed it to read. My mom thought that was nutts. I was impressed that a doctor was willing to do that. I told him with all my research including this chat board I felt he ought to try me on t3. He agreed and put me on 5mcgs twice a day. I have to say I love t3. It really made the difference. I feel almost completely normal.
Learning all of this and realizing I had a autoimune disease that ran in familys. My grandfather he I new was hypo and his health is very bad. I pleaded with my mom to have his antibodies tested and he allso has hashi's. He now is in the last stages of alztimers and has congentinal heart disease which I understand can stim from hashi's.
At this point I demanded my mother and sisters get checked. It took alot but they finally did my mother is hypo with hasi's and is now seeing a endo. I have a twin sister with alot of my symptoms but is only slightly hypo without antibodies
But the worse thing that happen was my older sister. Went to have her's checked and they found a nodual. Her lab work for hypo was normal so they did a ultrasound. It is a single nodual, 1 centameter. Has no fluid and is hard. They did a fna and it came back inconclusive. The doctor felt with all the symptoms I have listed along with her voice has become very horse to do surgery. I am so scared. Now that is all I am reading about and have learned alot about thyroid cancer. He allso diagnosed her with fybromyagilia which Im not to sure he is right on that one but I am more concerned about the nodual. She is having surgery Sept6.
Now I pretty much hate the thyroid but maybe in some small little way hopefully I saved her life since I forced my whole family to get checked. I just never dreamed my sister would be going through this now.
Sorry for making this so long. I know its alot but occasionally I ask questions on here and I felt maybe it was rude that I hadnt told my story. Thanks for reading. Please everyone say a little prayer for my sister Tammie. Thankyou