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Old 01-03-2004, 04:57 AM   #1
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Question TSH is normal....still don't feel right

My TSH results have been normal (just under 1) for a year now and I still don't feel well....still brain fog, muscle aches, tiredness, poor sleep, etc. I was considering asking my doctor for Armour. I've been on Synthroid now since May 2002 when i was diagnosed as hypo with TSH of 13.
My question is...if your TSH is in the normal range does that mean that your body is converting the T4 (synthroid/levothyroxine) to T3 properly? and does that mean that i just need to give it more time to feel more like myself.
I must say that i do see a definite improvement since May 2002 as i couldn't even drive then as my reflexes were shot and was sleeping about 2 to 4 hours per night and was a basket case and could barely function at all.
I am able to drive now and can do other tasks i was unable to do such as exercise more than 2 minutes without feeling like i wa going to keel over from exhaustion. My breathing is better and my nails don't split hardly at all anymore like they did for years.
Once again, do i just need to give it more time?
I see my doc. on wed. jan. 7 so i want to be prepared.
cossette

Last edited by cossette2; 01-03-2004 at 04:59 AM.

 
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Old 01-03-2004, 06:25 AM   #2
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Re: TSH is normal....still don't feel right

Have you had your free numbers checked?
My TSH was only 1.6 when I was diagnosed hashi/hypo and now is almost nil, so you don't go by just your TSH alone. Your free T3 and free T4 need to be checked also. If they are not at optimal level, your symptoms will not go away. I would definitely ask for Armour if your Doc is willing to prescribe it. Most people need T3 along with the T4. Keep in touch with us.

 
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Old 01-03-2004, 08:15 AM   #3
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Re: TSH is normal....still don't feel right

Thanks for the info. Getting tested for other than TSH is like pulling teeth around here, but i will be asking her to refer me to the one and only endo. in our city and maybe he'll do the other tests. I have a friend who goes to that endo and he would not do the T3 test as he said it's not needed. Sounds like he's not with it.
Well, I'll ask for Armour (the canadian version) and see if it works. I guess it can't hurt to try it. I've waited this long, I've got nothing to lose and everything to gain.
cossette

 
Old 01-03-2004, 10:16 AM   #4
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Re: TSH is normal....still don't feel right

Sorry, I didn't even realize you were in Canada.

Just to let you know, I just ordered or at least put in all the info. for the testing on Healthcheck. I don't know if I am supposed to say that or not, but what can it hurt? It only cost me 75.00 plus 12.00 shipping to get all of the tests done....TSH, Free T4, Free T3. Might be something to think about if you can't talk your Doc into testing your free numbers. I'm sure there is something like that in Canada, you just have to search. Then you take it back and say "This is why I'm feeling bad...ect. ect." There is plenty of information on these boards and other places all over the net to back you up. Best of luck to you!

Michele

 
Old 01-03-2004, 01:39 PM   #5
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Re: TSH is normal....still don't feel right

My TSH was 1.8 when I was diagnosed.
My T3 and T4 are converting properly but my T4 wasn't high enough.
It's different for everyone.

And Just because you are inthe "normal" range... doesn't mean it is "normal" for YOU.

My TSH was at 0.53 at last check and I feel better than I have in a long long time.

 
Old 01-03-2004, 02:35 PM   #6
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Re: TSH is normal....still don't feel right

I am on Armour, my TSH is under 1 at .88, and I still feel crappy....but I think it's due to my free levels not being high enough yet. I thought Armour was a magic pill and it's hasn't turned out that way for me
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Hypothyroid

 
Old 01-03-2004, 03:44 PM   #7
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Re: TSH is normal....still don't feel right

lovemy3guys--

Don't feel like the lone ranger..I've been on Armour for 3 months now and I continue to feel like Sh**. Starting to think there's something else wrong, but when I start looking at others lists, and then this one again, everything says it's this stupid thyroid thing. I wish this never ever happened...

 
Old 01-04-2004, 04:05 PM   #8
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Re: TSH is normal....still don't feel right

Hi.........the two previous never said if any other thyroid screening was done for you. Taking some of these medications absolutely do nothing, or next to nothing, if it's for the wrong problem!
Let us know please??

 
Old 01-04-2004, 04:46 PM   #9
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Re: TSH is normal....still don't feel right

Opalfirejuicica--

Yes, I've been screened for thyroid disease, and I've been having my levels checked often. I also just found out that it's Hashimoto's thyroiditis, (which I knew it was going to be auto immune, as AI diseases run rampent in our family) My antibodies were 1000, normal is under 35. I've just had a hard time. I do feel better than when I was on Levothroid, as that caused me to have joint pain and stayed freezing cold on it, among numerous other symptoms. I 've only been on Armour for 3 months, and I was starting to feel better, but then my endo decreased my dosage about 2.5 weeks ago, (said I was getting too much) and I started feeling lousy and hurting again a lot more after that. Decreasing the dose has helped me to sleep a lot better though. I just absolutely have no energy, and I feel so weak.
I think my problem is this just went on too long before I got a DX, and it's going to take time to heal. Some things have definitely got better, then some things are the same or worse. Muscles ache off and on, acid reflux started shortly after starting Armour is killing me, hair still falling out off and on, the driest skin (on face) and scalp you can imagine, but this tiredness is the worse thing of all. I think everyone thinks I'm nothing but a whiney, lazy, little hypochondric.
I'm doing all the right things, taking lots of supplements, eating right, couldn't rest more than I already do. Only need to add exercise, but no energy to start that yet.
So tomorrow I get to go see a "Health Behaviorist" or some BS like that...just another word for shrink, I think. Dr. has tried to narrow down all my pain and problems to "stress", even the rash on my forehead that I've had for 15 months now!!!! (I happen to know rashes are a symptom of autoimmune disease!) Yet she contradicts herself when she says' "it could take another 5 or 6 months for you to heal". And stress is bull, I don't have any stress now that I don't work, no money worries, kids are grown and out of the house, hubby--no problems there. Only problem I have is my stinking thyroid gland! I'm starting to feel as tho I'm losing control of my life.
I've quit talking to my friends too, as I can't stand hearing some of the comments they make about my symptoms. Let them all get this and see what it's like, they better not come crying to me. I'm just so depressed, I'm sorry to sound so negative you guys.

DEDA
PS-Maybe my endo's the one who needs to see a shrink, to try to figure out why she lacks compassion, when she chose to be a Dr.

 
Old 01-05-2004, 08:17 PM   #10
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Re: TSH is normal....still don't feel right

Quote:
Originally Posted by cossette2
My TSH results have been normal (just under 1) for a year now and I still don't feel well....still brain fog, muscle aches, tiredness, poor sleep, etc. I was considering asking my doctor for Armour. I've been on Synthroid now since May 2002 when i was diagnosed as hypo with TSH of 13.
My question is...if your TSH is in the normal range does that mean that your body is converting the T4 (synthroid/levothyroxine) to T3 properly? and does that mean that i just need to give it more time to feel more like myself.
I must say that i do see a definite improvement since May 2002 as i couldn't even drive then as my reflexes were shot and was sleeping about 2 to 4 hours per night and was a basket case and could barely function at all.
I am able to drive now and can do other tasks i was unable to do such as exercise more than 2 minutes without feeling like i wa going to keel over from exhaustion. My breathing is better and my nails don't split hardly at all anymore like they did for years.
Once again, do i just need to give it more time?
I see my doc. on wed. jan. 7 so i want to be prepared.
cossette
Cossette,

Please continue to find a way to get other tests done and be persistent until you give Armour a try. My TSH is normal and I suffered for years! Taking Armour has made a world of difference for me, especially with the brain fog, and depression, taking T3 is the only way the brain fog went away.

Mintchoc

 
Old 01-20-2004, 01:06 PM   #11
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Re: TSH is normal....still don't feel right

Quote:
Originally Posted by Deda
Opalfirejuicica--

Yes, I've been screened for thyroid disease, and I've been having my levels checked often. I also just found out that it's Hashimoto's thyroiditis, (which I knew it was going to be auto immune, as AI diseases run rampent in our family) My antibodies were 1000, normal is under 35. I've just had a hard time. I do feel better than when I was on Levothroid, as that caused me to have joint pain and stayed freezing cold on it, among numerous other symptoms. I 've only been on Armour for 3 months, and I was starting to feel better, but then my endo decreased my dosage about 2.5 weeks ago, (said I was getting too much) and I started feeling lousy and hurting again a lot more after that. Decreasing the dose has helped me to sleep a lot better though. I just absolutely have no energy, and I feel so weak.
I think my problem is this just went on too long before I got a DX, and it's going to take time to heal. Some things have definitely got better, then some things are the same or worse. Muscles ache off and on, acid reflux started shortly after starting Armour is killing me, hair still falling out off and on, the driest skin (on face) and scalp you can imagine, but this tiredness is the worse thing of all. I think everyone thinks I'm nothing but a whiney, lazy, little hypochondric.
I'm doing all the right things, taking lots of supplements, eating right, couldn't rest more than I already do. Only need to add exercise, but no energy to start that yet.
So tomorrow I get to go see a "Health Behaviorist" or some BS like that...just another word for shrink, I think. Dr. has tried to narrow down all my pain and problems to "stress", even the rash on my forehead that I've had for 15 months now!!!! (I happen to know rashes are a symptom of autoimmune disease!) Yet she contradicts herself when she says' "it could take another 5 or 6 months for you to heal". And stress is bull, I don't have any stress now that I don't work, no money worries, kids are grown and out of the house, hubby--no problems there. Only problem I have is my stinking thyroid gland! I'm starting to feel as tho I'm losing control of my life.
I've quit talking to my friends too, as I can't stand hearing some of the comments they make about my symptoms. Let them all get this and see what it's like, they better not come crying to me. I'm just so depressed, I'm sorry to sound so negative you guys.

DEDA
PS-Maybe my endo's the one who needs to see a shrink, to try to figure out why she lacks compassion, when she chose to be a Dr.
First of all, Deda, please allow me to say how I feel for you. There's many of use that feel the same and have had the same slurs thrown at us, so we don't say anything anymore. We just stay in our little private hells.
By the way, my name is a combination of my birthstone, opal, my personality, somewhat fire-like, and my hungarian birthname, Jucika (an endearment form); hence Opalfirejucika. You kind of have to get inventive every once in a while for your emails.
Please go see another set of doctors because you have many issues that need to be resolved, including keeping an eye on your AI. As an amatuer, it sounds like the AI is overshadowing your other problems, or may be a cause of it all. AI can come out in many forms, or be caused by something else entirely. Have you been cleared for Lupus, in particular? I know there's no definitive test for it, but a specialist could work with you....or have you gone down this route before? As a help, have you considered taking a mild anti-depressant until this is cleared up somewhat. The anxiety of not knowing what's wrong can cause an enormous amount of stress on top of the problem, sometimes making the problem (though you don't know what it is) even worse. Consider it.
As a wild gesture, have you considered going on a Blood Type diet. It's worked wonders for me in regards to my migraines (though not my thyroid). It may not resolved anything, or could help with the AI.
Please hang in there and keep us posted!

Last edited by opalfire; 01-20-2004 at 01:11 PM.

 
Old 01-21-2004, 06:24 AM   #12
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Re: TSH is normal....still don't feel right

Deda and LMTG,
I didn't feel a whole lot better until recently when I added synthroid to the Armour because my FT4 level was too low. The biggest problem with Armour is not getting enough of it to make the difference. When Dr. Lowe wrote me, he said that the majority of people who are hypo end up or should be on a dose of 1.5 to 2 grains to hit the optimal level.
Please, please read the article written by Dr Barry J Durrant-Peatfield again. You guys are in a rut and need something or someone to pull you out. You're probably undermedicated along with most of the world.

 
Old 01-21-2004, 11:01 AM   #13
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Re: TSH is normal....still don't feel right

Opalfirejuicika--

Thank you for your reply and suggestions. I'm now feeling a slight bit better. Waiting to see my endo next week. I did consider Lupus at one time, but the reason I'm pretty certain that this misery all stems from my thyroid, is because at one point, (when I was on a higher dose of Armour) I felt a lot better, and my symptoms were subsiding, and some had even gone away. A few days after decreasing my dose, (by only 1/4 grain) I start feeling like crap again, with lots of muscle aching, breast pains, all kinds of stuff, it's getting to where I can't even tell anyone how I feel anymore, it's all so confusing. My dr has run just about every blood test there is, and they were all normal, thank God. Also with Lupus there is usually joint pain, which I don't have. The rash on my forehead turned out to be seborhheic dermatitis, and it's now under control with an anti fungal creme. I think if only I could get my sleep straightened out, that I could feel sooo much better. When the doc decreased my Armour I DID start sleeping a lot better, but unfortunately it didn't last. Now I'm back to rotten sleep again. Last week it seemed that I just couldn't get to sleep anytime before 4 AM. Last night I took Tylenol PM and managed to get to sleep about 1:30, (hey, that's early!) but then woke up an hour later. Also the past few days, all of a sudden, I'm having to pee all the time after I get to sleep. What's up with that? I usually don't wake up to pee, (when I do sleep). Why do so many people with thyroid problems have trouble with our sleep, either sleeping all the time or can't sleep at all? Since the first week that I started thyroid meds back in July, I have had erratic sleep. Never did have this before my DX. Yes, I know that part of this is depression and some anxiety as well, but I just don't want to deal with the side effects of anti d's right yet. I was on Zoloft 8 yrs ago, and it was very helpful, but after a few months on that, you can forget about ever enjoying sex again. Life is miserable enough with this thyroid problem, okay? I have had to give up so much already...my job that I loved, cigarettes, (4 months now, but still craving), and now have to watch my diet due to having acid reflux. 2 years ago, I would have never thought my life would be like this. LOL I know I sound like a basket case, but I'm really not. Most of the time I'm pretty happy and grateful too, for I do have a lot of great things in my life.
When I see my doc next week I must convince her that I need more. She thinks 2 grains of Armour is just SOOO HIGH! I think she is just very conservitive about meds, but she's gonna get an earful from me. She's such a control freak, when the nurse comes in and shows me where to sit, and says Dr.-- will be in in a minute, please sit here. Doc comes in and says, "what are you doing sitting there, move over here", EVERYTIME, no matter where I'm sitting!! I think she's a little crazy to tell you the truth. But I'm stuck with her for now, or else I have to drive 1 hour away to see another, and I don't really have the energy to do that...YET. So, I'll just stick with her for a while, and see how far I can get with her. My DH promised to go with me to my next appt. and advocate for me as well. But thank you OpalFJuicika for your concern and trying to help.

Miper--Thank you for suggestion to read article, I'll look that up later today. I agree with you completely that I'm probably on too low of a dose. Hey, when you correspond with dr. Lowe, do you have to pay for consulting with him? Thanks for your reply.
Hope everyone here has some relief soon, and good health to all!

DEDA
PS--Being sick like this I have saved a FORTUNE!!! I used to be out shopping all the time, out to lunch, sporting events, casinos, etc. High gas prices? Who cares when you only fill up every 4-6 weeks! LOL Our bank acct is growing!! LOL

Last edited by Deda; 01-21-2004 at 11:09 AM.

 
Old 01-21-2004, 03:51 PM   #14
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Re: TSH is normal....still don't feel right

No, I wrote him an email and he wrote me back. It was about a page long. It was really nice and directed to me not some generic email. You might try it. You can also write his wife. I have talked to her too. Please, it may make you feel better. Sounds like you're having a rough time.

 
Old 01-21-2004, 11:22 PM   #15
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Re: TSH is normal....still don't feel right

Hey miper--

Wow, can't believe he takes the time to do that, and doesn't charge for it...unbelievable! Thanks, maybe I will write to him, print it out and give it to my Dr.
I'm glad to hear that you're feeling better now. How much Armour and T4 are you taking, (if you don't mind)? Did you really feel better after adding the T4? I'll run it by my doc, but I know she'll think it's crazy. ::snicker::
Thanks again miper,
DEDA

 
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