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Old 03-04-2004, 08:23 AM   #1
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clippitty HB User
Unhappy salty taste

Hi,

Does anyone have a salty mouth and Hypothyroidism and Sjogrens?
I am trying to figure out if these 2 conditions are resulting in the salty mouth plus having a constant feeling of the flu, fatigue, and jitteriness and upset stomach. I have taken tests-Upper Endoscopy-ENT-Gastroentorology.
All of these are normal. Any help would be welcome. Thanks, Sharon

Last edited by clippitty; 03-04-2004 at 08:26 AM.

 
Old 03-04-2004, 08:56 AM   #2
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Re: salty taste

Hi Sharon,
Prepare yourself for a long answer.
At least 20 years ago, my mom began having a terrible, salty taste in her mouth. She went to at least two dentists and six doctors to find out the cause. Not one of them could suggest anything helpful, and the last one she saw suggested she see a psychiatrist. She knew the problem was in her mouth, not in her head, so she nixed that idea and gave up. Fifteen years later, she was diagnosed with hypothyroidism, but by that time she had learned to live with the salty taste and never connected it with the hypo.

Fast forward another 5 years... I read in the doctor's column in my newspaper that thyroid problems can produce a salty taste in the mouth.

Two more years pass, and bingo! ... I begin having a salty taste on my tongue, and I discover I am hypothyroid.

As I have learned first-hand how very little most doctors know about thyroid disease, I realize why none of those "experts" my mom consulted knew what was what, and how their attempts to make her feel nuts because of their ignorance is par for the course.
My current angel of a doctor has never heard a patient complain of this symptom before me, but he has an explanation. Each person's body has its own enzyme processe that are unique to them or their lines of ancestry, and this particular quirk is just one of mine and my mother's that has appeared with the hypoT. He didn't feel the need to tell me I'm crazy... Why can't they all be like that?!?

Last edited by midwest1; 03-04-2004 at 08:59 AM.

 
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Old 03-05-2004, 01:10 AM   #3
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pickapro1999 HB User
Re: salty taste

Quote:
Originally Posted by clippitty
Hi,

Does anyone have a salty mouth and Hypothyroidism and Sjogrens?
I am trying to figure out if these 2 conditions are resulting in the salty mouth plus having a constant feeling of the flu, fatigue, and jitteriness and upset stomach. I have taken tests-Upper Endoscopy-ENT-Gastroentorology.
All of these are normal. Any help would be welcome. Thanks, Sharon
Hi Glad you ask that question. I am newly diagnosed with hypo and I thought that it had something to do with the meds. because it didn't start until I started the meds. Mine is not all the time just once in a while, about twice a week. Is yours constint? Let us know how you are doing..
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Kris

 
Old 03-08-2004, 05:07 PM   #4
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Re: salty taste

I had a salty, dry mouth and was told that I might have Sjogren's. I went through all the test and visited with 3 specialists. They all concluded that I did not have Sjogren's and that is more likely thyroiditis. My symptoms started almost a year ago with dry mouth, salty taste, swollen tongue, swollowing problelms, hair loss, heart palpations, sweats, weight loss and insomnia. I also had a thyroid nodule. Hmmm, I really thought that would've tipped off my endocrinologist but, since thyroid tests stayed in the normal ranges he was just sure that wasn't the problem. So, here we are almost a year later and the endo and a rheumy have agreed, I've had a major case of thyroiditis. I am now in the process of waiting for current thyroid tests results to come back. Most all of the symptoms I've had have disappeared and all I can complain about now is being waaaaaaaay tired and sleepy all day. This has been one long year. I suspect that I may be going hypo now and am hoping I don't have to wait another year to get some relief. Thankfully, I have a great GP that is working with me.

Don't know if I helped you much with your question but hope you will find some relief soon.

 
Old 03-08-2004, 09:09 PM   #5
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Re: salty taste

[B]Hi Midwest, Pickapro,KandiKane and Kris,
Thanks so much for responding. Finally, I have gotten an answer! I have had the salty taste for 3 months. I have seen 4 doctors. The last one a gland specialist.
He said in his 45 yrs. of medicine he never heard of hypo. and salty mouth being related. I have been trying to connect the 2 and now you have just confirmed it.
How do you get rid of it? Or can't you? Sharon

 
Old 03-08-2004, 09:18 PM   #6
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Unhappy Re: salty taste

KandiKane, Midwest, and others,
Hope I am not repeating myself, as I just wrote this someplace else, but thanks for all the info. I have had this salty taste for 3 mon. and have been trying to connect it and hypo. The 4 doctors I have seen have been of no help. Even the gland doctor said he never came across this salty taste and hypo together. But, according to your experience, it would seem as if they are connected. Any way to get rid of it? Thanks again, Sharon

 
Old 03-09-2004, 06:45 AM   #7
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Smile Re: salty taste

The way it was expained to me was that the swelling and inflamation of thyroiditis caused my throat and glands to also be swollen and inflamed thus making the salivary glands malfunction, etc. I don't know if this caused the taste problems or not. Seems likely to me that it certainly could. However, my rhuemy told me that I should expect everything to return to normal with the expception of the thyroid gland which is likely to become hypo. I should have my tests back tomorrow and am anxious to see what turns up. I'll post my findings here with the hopes that it might be of help to you.

Note: my only remaining symptoms are slightly dry mouth. However, I have developed a couple of new ones - fatigue, indigestion and sciatica. Seems like a trade off to me. LOL

 
Old 03-09-2004, 07:23 AM   #8
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Re: salty taste

Hi again clippity,
My salty taste has improved about 80% as my thyroid hormone levels have been rising. I can't speak for my mom, since I don't have details about her treatment or levels; but she doesn't complain about it anymore, so it must be better. Neither of us has Sjogren's though, and I don't know whether the taste can be sometimes connected with that disorder.

If your taste is connected to your hypo and not at all with the Sjogrens, it probably would improve when you reach your optimal thyroid dose.

 
Old 03-10-2004, 05:50 PM   #9
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Smile Re: salty taste

Clippity,

Got my lab results and they were normal. Now I am totally perplexed. Doctor said that we will be re-checking periodically which seems like a good idea. I guess for the time being the explanation for my symptoms is "thyroiditis".

Was really hoping that I would have something of value to share. If you get any further information about your symptoms, etc. please post them.

 
Old 03-13-2004, 12:24 PM   #10
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Re: salty taste

Clippity,
I was wondering what was wrong with me also!! I went to the doctor this past October with symptoms of just feeling bad. He ordered blood work and my TSH came back at 22. With more blood work, a thyroid ultrasound and an MRI of the Pitutary, I was diagnosed with Hashimoto's Disease and I have a goiter. I have been on Levothriod for 7 weeks so I figured this taste in my mouth was the medication. I am so releived to know that I am not the only one with this. Thank you for writing. I would love to know how to releive this dry mouth symptom.

 
Old 03-14-2004, 11:59 AM   #11
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Re: salty taste

Hi,
I also get a salty taste in my mouth almost on a daily basis. I had a thyroidectomy last summer followed by RAI and thought it was due to my treatment. I also get swollen parotid glands and a dry mouth everytime I eat. My Dr. keeps saying it's a side effect of the RAI, but I'm wondering if I may have Sjograns.

Hilery

 
Old 03-14-2004, 07:26 PM   #12
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pamelaAM HB User
Re: salty taste

I had a total thyroidectomy in October followed by RAI in December and about a month after the radiation, all of a sudden everything tasted terrible salty to me. Regular water tasted like salt water from the sea. It lasted about 2 weeks and was horrible but then it went away. So in my case it may have just been a reaction from the radiation. But it's funny that it didn't show up til a month AFTER the radiation.

 
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