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Thyroid Disorders Message Board
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Old 09-16-2004, 11:52 AM   #1
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nimbeth HB User
JohnsBabe- I have Question?

Hi,

I have read some of your replies to others. I was wondering based on your replies, if you were diagnosed hypo on symptoms or did blood work show something wrong. Also, did your docotor give you blood work to find something wrong with your adrenal glands?

The reason I am asking all of these questions is because, I have many hypo symptons (cold hands and feet, low body temp., tired, unable to sleep well, low libido, consitipation, headaches, irregular periods, unable to lose weight.)

I saw and endo, he did a TSH, FT4, and other labs as well as a coritsol test. (all came back fine.)

Should I be more persistent and find another Doctor that will listen to my symptoms. I just now that is not normal to feel like this.

I live in the South Florida area. Do you know of any good doctors?

Thanks for listening!

Nimbeth

 
Old 09-16-2004, 12:45 PM   #2
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Smile Re: JohnsBabe- I have Question?

Hello, Nimbeth...and Welcome to the Board!

I was diagnosed by my current doctor as hypo based upon symptoms and bloodwork. He also diagnosed me with adrenal fatigue based upon my symptoms and I'll be having a saliva test soon for good measure.

Back in June I saw my primary care physician because my symptoms had become severe, especially my exhaustion and hair loss. My bloodwork showed a TSH of 4.8 (none of the free's were tested) and she said this was "normal" and that she had no idea what was wrong with me. She said she wanted to see me again in 3 months.

Well...3 months is a long time to wait for answers when you're feeling so badly! A friend referred me to her doctor who correctly diagnosed her hypothyroidism after 3 doctors had overlooked it...and that's who I'm seeing now.

My doctor feels that a TSH of 2.5 and higher with symptoms should be treated. He also prefers Armour over synthetic meds...which is my preference as well.

About the saliva test -- this is going to be what's called an Adrenal Function Test that will test cortisol for morning, noon, evening and night, plus test DHEA-S. My understanding is that this gives a more accurate picture of how our cortisol is functioning throughout the course of the day.

If your doctor won't help you with a saliva test you can order the kit yourself online. My doctor uses ZRT Laboratories and you can find more info on their website at [ removed ]. There's other labs that also have the saliva test kits and it's all done through the mail. For myself, I'm also going to have my female hormones tested with the same saliva samples.

Please post the results to your latest labs (along with the ranges) so we can take a look at them. I'm new with all of this but the very knowledgeable members here might be able to see something that the doctor is not seeing. From what many others have said here, endos aren't the best in dealing with thyroid problems.

I personally would look for another doctor since you're not being listened to!! I posted info for a doctor in Florida in another thread for you...maybe this will be an option for you. Also, DO's and naturopathic doctors tend to be very good about treating thyroid disorders.

I hope this helps some...and keep in touch here! You'll learn so much that will help you in your quest for answers and better health. We're here to help each other!

Victoria



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Old 09-16-2004, 12:57 PM   #3
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Re: JohnsBabe- I have Question?

I'm not JohnsBabe, but do you mind if I offer some advice?

I read on a thyroid website that it takes an average of 6 consultations to find a doctor who knows enough about thyroid to make a diagnosis. One woman who came here a while ago had seen 36 doctors before she found one who prescribed the medicine she needed for her hypoT. I was lucky; it took only 3 MDs to finally get it right. So don't give up!
When looking for an MD, do a mini-interview on the phone, before you bother to make an appt. Ask if the doctor treats many hypothyroids, and ask if he/she treats based only on the TSH test. You want a doctor who treats based on the free hormone tests plus symptoms. If the answer is 'TSH only', don't bother with that doctor. Also ask if he/she ever prescribes Armour thyroid. A doctor who appreciates the merits of Armour knows much more about thyroid than one who only prescribes Synthroid or another of the synthetic meds. They will generally be more open-minded about trying several treatments and dosages until you achieve wellness.
If your insurance doesn't object, try an osteopathic (DO) doctor. They generally pay much more attention to symptoms and the integration of bodily systems than do traditional MDs or endos.

We hypo people have learned (usually the hard way) that thyroid tests can never be dismissed with a one-word interpretation of "normal". Always ask for a copy of the lab report, and learn how to read it. (If you have your test results from last time, post them here if you want to. We can help you interpret them.) Even if your results fall within the so-called "normal" lab range, those results may not be your normal. Each individual has a set-point for T4 and T3 that is normal for her, and any MD who tells you that just being within the lab range is OK is woefully mistaken.

You would think that an endo would be the specialist who could best help thyroid sufferers. Not necessarily. Most of them specialize in diabetes and know extremely little about thyroid. Most also refuse to prescribe Armour or even synthetic T3.... Such close-mindedness helps very few people.

So my resounding answer to you is "YES!!!" Be more persistent. Start your thyroid education now, because the more you know, the better your chance of being treated the way you need to be. Start by reading our "Information Archive" sticky thread. From there, get a copy of Thyroid For Dummies by Dr. Alan Rubin. From there, progress to Solved: The Riddle of Illness by Dr. Stephen Langer. These will help you understand how the gland is supposed to work, and how often the disorder goes undiagnosed because of medical ignorance.

I suggest you try the Armour website for a list of Armour-prescribers in your area if no one here has a suggestion.

 
Old 09-16-2004, 01:05 PM   #4
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Smile Re: JohnsBabe- I have Question?

Great advice and information, midwest1, including checking the Armour site for doctors!

 
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