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Old 09-23-2004, 03:32 PM   #1
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Not so common symptoms

I've had thyroid issues for 7 years now and had RAI in 2000. I've been on beta blockers for high thyroid for years and Levoxyl and now Armour after RAI for years. I've taken everything from 30 mcg to 250 mcg of thyroid daily. Currently, I take between 2.5 and 3 grains of Armour a day.

I've learned a lot. Gone to thyroid hell and back really. Just because your tests show normal doesn't mean you feel good! The tests cover a broad range and you have to figure out where normal is for you. I've found out that we use a chain saw in dose amounts where we need a fine surgical tool. I believe that something as little as 5 to 15mcg can make all the difference in the world in how you feel.

Here are some not so common symptons that I use to help me fine tune.

Hi Thyroid:

1. Pounding hearbeat-not necessarily fast.
2. Feeling of hopelessness. (Burn out stage.)
3. Thrush.
4. twisted tongue speech. (At burn out. Just prior to burn out, your tongue works so well you feel like you could out do the best rapper.)
5. shallow sleep or can't sleep. At burn out, leads to being tired all the time.
6. When something happens, you get adrenaline rush etc.--way over necessary. Waves of emotion out of nowhere.
7. brain fog.
8. You don't feel good so you get grumpy. (Burnout stage is here.)
9. You come on too strong. Talk a little too loud, think real fast and cut people off because your computer is running at warp speed. It's like being on too much coffee. -- The burnout stage is appoaching.
10. If you work out aerobically, you get exhausted unduly. Your body is overreacting to what you are doing.
11. Overactive Libido. (Sounds good until you burn out.)
12. Upset stomach. Gas. Constipation.


Low Thyroid.

1. When heading down, sleep is not good, sporatic. But when you get low, you sleep deep and long. Feels good but gets ridiculous. Can sleep 10 hours a night and then still need to take a nap in the afternoon.
2. No desire to do anything. You wonder why people just don't want to sit around and watch TV like you. It just feels way to good to do nothing and sleep.
3. Muscles break down and never recover. If you work out you get sore, then the next day more sore rather than better.
4. Lack of fluid in the joints. Lots of clicking and cracking.
5. Back pain and joint pain.
6. Stiff muscles. Stiff neck in the morning. Muscles do not work well.
7. Muscle mishaps like cramps and pulls.
8. Thrush.
9. Slow thinking. Slow speech. Tongue twisted.
10. Lack of motivation.
11. No libido.
12. You seem to get every virus out there and it lasts a long time.
13. Upset stomach. Gas. Constipation.

I'd appreciate it if anyone else experiences these symptoms or has ones to add to this list that they chime in.
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Old 09-23-2004, 03:45 PM   #2
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Re: Not so common symptoms

Quote:
Originally Posted by abigchocoholic
Low Thyroid.
1. When heading down, sleep is not good, sporatic. But when you get low, you sleep deep and long. Feels good but gets ridiculous. Can sleep 10 hours a night and then still need to take a nap in the afternoon.
2. No desire to do anything. You wonder why people just don't want to sit around and watch TV like you. It just feels way to good to do nothing and sleep.
3. Muscles break down and never recover. If you work out you get sore, then the next day more sore rather than better.
4. Lack of fluid in the joints. Lots of clicking and cracking.

6. Stiff muscles. Stiff neck in the morning. Muscles do not work well.
9. Slow thinking. Slow speech. Tongue twisted.
10. Lack of motivation.
11. No libido.
I'm new to this - at least to understanding that what I've been feeling has been thyroid related - but those listed above are all symptoms that I've experienced over the past 9 months. The ones in red are new ones that I hadn't though to associate with hypoT - thanks for posting this.

While I tested negative for antibodies (I had tested positive in the past, I've been supplementing with selenium for a few months now, my grandmother had Hashis, and my mother might have it (see below) ) I have experienced a few of the hyper symptoms:

Quote:
1. Pounding hearbeat-not necessarily fast.
2. Feeling of hopelessness. (Burn out stage.)
4. twisted tongue speech. (At burn out. Just prior to burn out, your tongue works so well you feel like you could out do the best rapper.)
5. shallow sleep or can't sleep. At burn out, leads to being tired all the time.
6. When something happens, you get adrenaline rush etc.--way over necessary. Waves of emotion out of nowhere.
7. brain fog.
10. If you work out aerobically, you get exhausted unduly. Your body is overreacting to what you are doing.
#6 was so bad this spring that my husband said that if I used the term "adrenalin dump" one more time he'd go mad.

I'd be curious to know if anyone else had experienced Thrush - this is something that has been troubling my mom off and on for a while and her doctor (who deserves to be fired IMHO) keeps telling her she can't figure out why - then again this doctor only tests her TSH (My mom has never had her FTs tested in 6 years!)

Thanks for posting this, choc.

Nat
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Old 09-23-2004, 05:31 PM   #3
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Re: Not so common symptoms

Great list and kudo's to you for taking the time to figure out your own unique symptoms and patterns!! You now have a customized road map to lead you! I'm sure it took a lot of effort in journaling symptoms and paying attention to what your body was doing....but I'm also sure it was well worth the effort.

Congrats!!

I agree with your chain saw vs. surgical tool analogy. I stayed on anti-thyroid meds at very low doses for 2 out of the 4 years that I took Tapazole. Most doctors will say that 2.5mg of Tapazole or 1.25mg of Tapazole is not an effective dose and does nothing. I KNOW that they are wrong. Slight changes in my thyroid levels would produce large symptoms. The medications we use (both anti-thyroid meds and thyroid hormone replacement) are powerful medications. Slow and steady increases or decreases always worked best for me.
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Dx Graves 4/99, tx w/Tapazole & Atenolol - Remission 7/03; Relapse 1/06, back on Tapazole, remission & off meds again 11/06.

 
Old 09-23-2004, 10:46 PM   #4
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Re: Not so common symptoms

"6. When something happens, you get adrenaline rush etc.--way over necessary. Waves of emotion out of nowhere."

yes, yes, YES. I haven't been able to express this one, but it's so true! I was losing my mind over tiny arguments, over harmless conversations that I could weave into issues.... it was really awful.

Feeling crazy is the worst part, I think.

 
Old 09-24-2004, 04:28 AM   #5
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Re: Not so common symptoms

Hi l know that feeling too!! The adrenalin overdose!¨!! Its horrible

 
Old 09-24-2004, 12:16 PM   #6
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Re: Not so common symptoms

Thanks so much everybody. It's nice to know that I am not the only one.
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Old 09-24-2004, 06:24 PM   #7
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Re: Not so common symptoms

The chainsaw thing...I think is a great way to put it. It really makes me want to go to the Naturepath and do the compounding thing. I'm lucky to live close enough to one and I'm really thinking more and more I might want to investigate that as an option. I did go to the compounding lab and the guy was just a wonderful human being. I was impressed with his gentleness and brightness. He gave me the name of the two doctors who use him for Thryoid meds.

Your list is pretty terrific too.

For me, the worst part is...I feel like I'm tripping and an imposter poltergeist has taken over. My normal self is bound and gagged in the corner of my mind. Its scarey as hell. I miss me. I feel like I'm greiving over a lost loved one, not sure when or if I'll ever see that amazing person again. Its been six months now -- I never got a chance to say good-bye.

Thanks for listening.

~S

 
Old 09-26-2004, 03:33 PM   #8
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Re: Not so common symptoms

Ok, I too have experienced the "adrenaline rush" that causes my family to "rush" away from me. My husband says I am too critical. I try really hard to not make a big deal of him leaving the tops off of jars or his socks under the bed (ok, that has always driven me crazy) but now I get boiling mad at this things that used to just make me shake my head.
I get so angry that I feel like my body temp rises about 20 degrees!

There are also times when I get the jitters. I feel like I am overwelmed and life is coming at me too fast. This is totally opposite of the "old me". I used to live on the edge of life and loved an adventure. Now, I just want to go home and lay across my bed. I used to always be on the go and now I daydream of getting in my bed whenever I am out. That is so sad

I am a 32 year old woman and I feel like I should be preparing for retirement! I am only taking one med for my hyperT (aside from calcium and multivitamin) but I don't think it is treating the adrenaline rushes!

Blessed

 
Old 09-26-2004, 04:01 PM   #9
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Re: Not so common symptoms

Hi Thyroid:

I have 1, 2, 5, 6, 7, 9, 10, 12

1. Pounding hearbeat-not necessarily fast
-- I get both fast and pounding
2. Feeling of hopelessness. (Burn out stage.)
5. shallow sleep or can't sleep. At burn out, leads to being tired all the time
---takes me hours to fall asleep and then I have a CRAZY dream, then back to hours to fall asleep!
6. When something happens, you get adrenaline rush etc.--way over necessary. Waves of emotion out of nowhere.
--- happens all too often
7. brain fog. --huh, what was I doing? Just kidding. But I sometimes can't remember what I ate for dinner, what I did the other day. I used to have an awesome memory!
9. You come on too strong. Talk a little too loud, think real fast and cut people off because your computer is running at warp speed. It's like being on too much coffee. -- The burnout stage is appoaching
--- I've noticed I've been cutting people off like crazy! I can't stand to let them finish a sentence if I have this thought in my head. I do think fast, laying in bed too, maybe why it's hard to sleep!
10. If you work out aerobically, you get exhausted unduly. Your body is overreacting to what you are doing.
---- Afterwards I am DEAD, before I wasn't. I get really shakey while working out, almost feel like my head it starting to shake! It really sucks, then I worry someone is going to see me shaking!
12. Upset stomach. Gas. Constipation
--- gas... upset stomach. no constipation.
I also have terrible muscle weakness. Sometimes hard to stand up b/c I dont have the strength!
Low thyroid:

11. No libido. hubby can vouch for that!

I also get tongue twisted, but I think it's b/c my mouth can't keep up with my thoughts!!

 
Old 04-22-2005, 02:20 PM   #10
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Re: Not so common symptoms

I know this post is a bit old, but I just wanted to add that I just went to an ENT specialist because I was having an odd pain underneath my tongue and couldn't figure out what it was from. He diagnosed it as thrush. I was on antibiotics awhile back, but it can also affect people who have weakened immune systems. I have hashi's. I guess it makes sense. I also had a thin white coating on my tongue, but didn't really think that was related to the pain.

 
Old 05-03-2005, 11:57 AM   #11
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Re: Not so common symptoms

Oh MY!
You just helped me get some hope for a diagnosis for myself...Thank you!!
I have had all those symptoms...the muscles spasms, dry skin, gas, diarrhea
sleep issues, fatique on and off. But my biggie is the dermographism (skin writing hives) I've had for over 5 years now.
I have been to a allergist that tested me for thyroid and found I had a positive ANA and positive auto thyroid antibodies but normal TSH levels.
I was then referred to a ruemotolgist who then referred me to a gastroentonologist who did an endoscope and thought I may have mastocytosis, but I didn't and now he wants to do a colonoscopy! Yikes!!
I just called my allergist and asked for a referral to a endocrinologist.
I'm so glad I surfed this board for any type of hint to what I may be going through. YOu really did a great job of putting the pieces together for me.
Had to share and say Thank you.
Wish me luck...
Dyannie

 
Old 05-03-2005, 04:39 PM   #12
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Re: Not so common symptoms

Last summer I had problems with my tongue---got so big I couldn't say things very well or very quickly---I'm sure some people thought I was drunk or drugged.

 
Old 05-04-2005, 01:23 AM   #13
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Re: Not so common symptoms

I've always run hyper so I can't really relate to the hypo stuff but I agree with everything on the list except constipation. I get just the opposite. If it's not loose bowl, then I'm having a BM several times a day.

Another thing that happened to me was I'd choke while trying to drink. It was like my swallowing reflex was all messed up and I'd end up inhaling a bit of water, or soda when trying to swallow. REALLY horrible when you're trying to drive a car!!

I never had thrush, but if I'm not super careful, I get bladder infections. Horrible things.

My husband thinks I'm super critical too and when my baby was first born I was so on edge about my autistic step son doing something to harm the baby I nearly went out of my head! I was always getting that adrenalin rush that made my feet and hands tingle and my stomach lurch up into my throat.

For anyone who takes Selenium and has an autoimmune related TD:
The tip about Selenium.... do you take that because you find that it helps lower the antibody count? What are it's benefits do you feel?

 
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