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Old 10-25-2004, 11:24 PM   #1
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peanutgal HB User
Question Can Mono trigger thyroid dysfunction?

Hi. Sorry so long!!

I have been exhausted for 3 years now. Showering is too strenuous so I take baths. A good day is a day that I could motivate even that feat. I want to work but I am so scared that it will be too much. I used to be a high paid professional consultant.

I was diagnosed with mononucleosis 3 years ago - but I have never fully recovered. Each time I go to my doctor my white count is a little higher. Last visit 2 weeks ago, it was at 15,000. My SED rate is slightly elevated as well. I suffer from chronic TMJ . My ears always feel like they are full of liquid and pressure - but I don't know if the ear pressure is inflaming the jaw or the jaw inflamation is putting pressure on the ears. ENT appt. in 2 weeks to work on that issue.

But the lethargy is incapacitating. I feel numb anymore. I went sky diving to see if I could snap myself out of this fatigue but I landed safely to the ground and gave an unemotional response of, "that was surreal." It was.. I mean, I felt like I was having some outer body experience. No fear, no adrenaline... no nothing. I was so disappointed. My dad's theory wasn't working.

Now.. here are my questions. I have 2 rather distinctive lumps on the side (near the back) of my neck. One feels like the size and shape of a lima bean and it is hard as a rock and fixed in position. Right in front and below it is another lump that feels more the size of half a robin's egg and it too is hard and fixed. They protrude slightly but hard to see as my hair line grows way down the back of my neck on the sides. Are these inflamed muscles or a thyroid? My husband feels them too only on that side. I have looked over and over at the lymphatic systems diagrams and don't really see anything in that area that could be a lymph node and it appears the thyroid is a little further forward. I don't want to cry wolf to my doctor as I am feeling like a hypochondriac as it is. She seems to almost be rolling her eyes at me lately.

Right before the mono I went to my psychiatrist because I thought my Prozac (40mg) was not working any longer. All the "physical" symptoms of depression had reappeared. I found out a week later that it was mono but none too late as my shrink has changed my meds over to Effexor. Now, I wasn't eating a whole lot during the mono. In fact, I was never really awake enough to eat but still managed to put on 37 lbs. in less than 6 weeks.

I "assumed" <---naughty word, that the meds put the weight on me so went back to shrink and switched to celexa/now lexapro. My weight has NOT BUDGED since that whole thing. I could starve for 2 weeks and not lose an ounce. I don't eat that much and still manage to gain a few lbs every 6 months. Again, using that naughty word... I was "assuming" it was my sedentary lifestyle since this debilitating fatigue.

I have had lots of thyroid function tests prior to the mono that came out "fine" according to my doctors but I haven't had one since the mono.

I have fairly drenching night sweats at least 3 times a week
I have extreme facial hair/neck hair/body hair "Queen of Tweeze" as I call myself
Negative for TB
Negative for diabetes
No sore throats
Negative for ear infections
LOTS of sinus pressure but no runny nose or even plugged nose
I have those lumps in my left side of neck
I have leg tremors upon exertion
I have traveling muscle/joint pain almost daily
Episodes of blurred vision - like a glaze over my eyes (no drainage)
Chronic TMJ/Fullness/Tinnitus & Numbness along jawline
My WBC is 15,000 (Increases slightly with each Dr. visit)
My SED rate is 25
IVP shows no sign of kidney problems but protein in urine
I am a 37 year old female, overweight but not obese
Currently Take Lexapro 20 mg for depression (hereditary chemical imbalance)

Extreme fatigue for 3 years since mono with short intermittent cycles of feeling "almost" back to myself but never completely and then I must overdo it because I fall back into the fatigue again.

Does this sound common of thyroid problem? I posted in Chronic Fatigue and a reply suggested I post here for your thoughts. I hope you can help.

Thanks so much and blessed journeys!

Last edited by peanutgal; 10-25-2004 at 11:26 PM. Reason: forgot something

 
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Old 10-26-2004, 02:41 AM   #2
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Re: Can Mono trigger thyroid dysfunction?

Hi Peanut,

I'm so sorry for what you are going through. I just wanted to tell you that the specialist that I see who is brilliant, told me that when I first went to see him, that mono (or glandular fever as it's called here in the UK), is one of the main triggers for thyroid problems. I had a bad virus and then food poisening that finally knocked my thyroid out, so yes,it is possible.

Have you had your thyroid levels checked? If you have, post your Free T3 and Free T4 numbers here and the experts will have a look! If not, I would ask to have tests.
You must get the Free levels tested not total.

I'm not sure about the lumps on you neck. But if I were you, i would get these looked at. Maybe you could see another doctor if yours is not giving you the advice and support you need. I know what you mean when you say yours is rolling eyes. You end up feeling like a major pain. But at the end of the day, your doctor goes home and you are left feeling like death. Please think about yourself and your partner.

Maybe someone else here has a clue about the lumps?? In the meantime, I would order some tests. At least you can rule out thyroid problems.

Good luck,

Felix x

Last edited by Felix73; 10-26-2004 at 03:24 AM.

 
Old 10-26-2004, 04:30 AM   #3
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Re: Can Mono trigger thyroid dysfunction?

Hi, I'm just new and really can't give you advice except to say that I also had mono, at the age of 43. I had my thyroid problems before that. My doctor believes in administering antivirals for mono. He says many doctors would disagree with him by but he has had a lot of success with them. I took them and was only down for three weeks, which is not bad for a 43 year old. However, the mono caused a weird side affect with me. It caused the veins in my legs to become inflamed. My legs really hurt and were hot and red. Twice my doctor sent me for ultra sounds of them to make sure I didn't have DVTs, blood clots in the deep veins, from laying around with the mono and being overweight. He had never seen this before. I felt like you did when I was down with the mono. I really could care less about anything and I was quite sick, depressed, with very little appetite. I can't tell you anything else except the older you are when these things hit, the weirder the extra effects on your health. When kids have these things, they come through them easier. I think it would make sense to ask your doctor for thyroid testing. You have enough symptoms of hypo to warrant them.

I hope you will find out what is going on with your health and that you will feel back to yourself soon. Don't worry about the doctor thinking your a hypochondriac. You know your body better than anyone else. And, you have more interest and time to investigate what is wrong. You are doing the right thing by looking for help and going to the doctor and asking for the appropriate testing. I can't see any good doctor denying you the tests when you have the symptoms.

Take care and good luck.

 
Old 10-28-2004, 03:22 PM   #4
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Re: Can Mono trigger thyroid dysfunction?

Thank you both for the encouragement and support! It means the world to me to have someone understand my situation. I had another day today where I slept. It was beautiful outside too. I wish I could muster the strength or even the desire to go out.

I have changed my PCP this week and scheduled an appt. with a new dr. I chose a D.O. this time. (I heard they listen better). I will certainly post my levels here and see what the general consensus is.

Thank you again & Blessed Journeys ~

 
Old 10-28-2004, 05:47 PM   #5
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Re: Can Mono trigger thyroid dysfunction?

I had Mono as a teen, but think that my thyroid problems had already begun by that point. Many people report, however that they are diagnosed as hypothyroid after a major illness like Mono. It is possible that the stress of the illness brings on the thyrod issues. It is also thought by some doctors that a viral infection of some sort may set the stage for an autoiummune problem like Hashimoto's to manifest itself.

An interesting preliminary study I ran across some time ago indicated that people with Hashimoto's thyroiditis who had previously had Mono might be at a slightly higher risk for thyroid cancer than those who hadn't had Mono.
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Old 10-28-2004, 06:31 PM   #6
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Re: Can Mono trigger thyroid dysfunction?

one quick question... how is your diet?? I only ask because SOME of your symptoms may be food allergy related. The ear fullness and sinus pressure without obvious sinus infection and ear infection COULD be related to foods. Do you eat dairy and or wheat?? I had chronic ear fullness and was told I had everything from eustachian tube dysfunction to acid reflux but when I finally cut out all dairy and wheat it got a TON better. Sounds to me like you have a thyroid issue for sure, and I would bet the depression is attributed to it- not heredity. Get the tests everyone here suggests- and read as much as you can- the people on this board are very helpful and knowledgable!! Good luck!

 
Old 10-29-2004, 12:26 AM   #7
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Felix73 HB User
Re: Can Mono trigger thyroid dysfunction?

I agree Sladedog,

It seems that having a serious virus infection and/or thryroid problems means that you are more likely to suffer from food allergies or intolerances. I was tested properly when I was really ill a few months ago. It turned out that things I had been eating fine for years were causing me problems - dairy mainly but also nuts. These allergies may resolve themselves once you are in good health but its def worth having a decent test done. Just make sure you choose a good lab that tests for anti-bodies.

Felix x

 
Old 10-29-2004, 07:49 AM   #8
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Re: Can Mono trigger thyroid dysfunction?

I can't tolerate nuts either- they are one of my main migraine triggers!

 
Old 11-03-2004, 12:07 PM   #9
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Re: My diet

My diet is... er.... well.... I suck :-( *sigh*

I never eat breakfast, I rarely eat lunch, maybe just a snack, and then dinner usually consists of healthy foods covering the food groups. I take a multi-mineral/vitamin supplement and B6 supplements. My appetite is not healthy, so I don't eat. It takes me 1/2 hour to choke down a small banana before noon. I just can't stand food that early. I have a cup of coffee or two but that is about it. I don't drink cola's, only water and lots and lots of it. Probably 10-12 glasses a day. (at one point I considered maybe the water itself was poisoning me)

The pressure in my ears started after I fell on some black ice and hit my head. Went to ER because I was in a bit of shock and they took MRI stating I was fine. My ears have never drained and that was in 1995. The second year after the fall I swear I would hear pounding on the wall from the room behind me only to realize that it was all just sounds in my ears. If I stand up fast, drop my head down, lie on my stomach or even on my side in a certain way I hear loud rushing sounds and my heartbeat. My head feels full like a pressure cooker and sometimes I swear it is going to explode. Everything in the room seems to go back and forth - not vertigo but more like pulsating side to side in harmony with my heartbeat.

Waking up is always the worst. I takes me at least 10 minutes to gather my senses. The room is always moving when I awake. It feels as if the bed itself is doing that agitating motion or I am sinking and rising into the mattress. I always just lay there and think, "this is the weirdest sensation.." I can't swallow while holding my nose - it is as if the pressure won't allow it.

I have always just attributed all of this to eustachian tubes. Docs say they see nothing wrong in there. ENT appt. nov. 11th, I am looking forward to see if this is something fixable. I had originally conceded to live with it but in consideration of the fact that I am so unwell lately - I am willing to explore all these crazy things just to get my dang life back.

It could be allergies and believe me that I something I will explore. But my husband and I are wondering if it is external... such as dust mites in the mattresses or something since I always wake up feeling congested in my nasal passages but that clears after about an hour of being awake. That is the only time my nose seems to be plugged - is mornings.

thanks to everyone with ideas - these are so very, very helpful and your input is encouraging me to keep looking into why my health is so poor and resolve it.

Hugs,
peanut

 
Old 11-03-2004, 01:21 PM   #10
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Re: Can Mono trigger thyroid dysfunction?

Maybe the fall "whacked" your neck out of place. A fall like that can cause whiplash and give some of the varying symptoms like you post.

Perhaps a visit to a good chiropractor would help. If it is your neck and you get some of it 'fixed', then you can see what else is left.

 
Old 11-03-2004, 03:16 PM   #11
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Re: Can Mono trigger thyroid dysfunction?

You mentioned that you had TMJ. I have it too along with the low thyroid problem. I get pretty dizzy every now and then, but I wonder if you're also grinding your teeth all night like I do. I think that can make you wacky in the morning. My dentist made me a latex night mouthguard, but I don't like how it changed my bite. Definitely get your thyroid checked. I'm up to 137mcg of Synthroid. 25mcg did nothing for me and that's probably what they'll start you at. Check the TMJ message board too, if you haven't already gone there. Good luck and keep us posted on your progress.

 
Old 11-03-2004, 03:55 PM   #12
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Re: Can Mono trigger thyroid dysfunction?

Both great suggestions! As for the whiplash, I used to think maybe it was something along those lines. Maybe a cervical compression or dislocated disc but I don't have any shoulder or arm pain. I do have something "crunching" and moving around at that bone that sticks out above the shoulder blades but it doesn't hurt. It is uncomfortable and need to see if chiropractors are covered under my insurance.

The TMJ ... ugh....... talk about a pain in the butt!! That is why I am going to see ENT. I am hoping he can tell me if it is causing the pressure in my ears or the pressure in my ears is causing the discomfort in my jaw. I had one of those mouth pieces made years ago but I couldn't stand it because I felt like I wasn't getting enough air through those little holes and it was an ugly yellow clear thing. I looked like some monster creature and I had just got married. Needless to say, my bite and teeth have shifted so much since then, even if I knew where the thing was, I am sure it wouldn't fit. :-(

I have been feeling better this week which is a good thing. But as crazy as this sounds, I am upset that I didn't get a diagnosis when I was down and out. I know if I bounce upward and start getting back on track, I will have another lapse and start all over. It is a crazy cycle this thing I have - whatever it is. Then I start to wonder if it is just sloth. Am I just lazy? Do I just go into periods of complete shut down? But when I am down and out I know for a fact that it is real. That it isn't all in my head. It makes you feel like a lazy person when your get up and go has got up and went with no explanation, ya know? In your own eyes but also in the eyes of those around you. How do you explain what you are feeling to someone who has never experienced such debilitating exhaustion and weakness?

Then I search and search for what might be wrong with me. Desperate for assurance that it isn't just all in my head. Something in writing that says from a doctor that affirms to me it wasn't. To know what is causing this would change everything. I could set course in life knowing what my limitations are or what the triggers of it are. I could rest assured that when I lose all my strength and vitality that it will pass. That it has a name. That it is real. That I can learn to live with it.

I just want to know what "it" is.

 
Old 11-03-2004, 04:36 PM   #13
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Re: Can Mono trigger thyroid dysfunction?

You mentioned food poisoning. Back in 1992 I got very, very ill. It started when I went out to dinner. I had just ordered and hadn't even eaten yet but got really sick feeling. I thought I was going to vomit so I rushed to the restroom. It was full of people.. so I put cold water on my face instead. (first sign of true illness when a woman washes away all her make-up off in public... haha) We left the restaurant taking our food to go. That night I got a severe lower backache like nothing I had ever experienced in my whole entire life and went to ER. They ignored me, sent me home with tylenol or something.

Next day more nausea... then weakness. Temp of 103, fiance put ice on my wrists and back to dr. in morning. Flu or something they said. Gave me rx for imodium and something else.

2 more days later, bloody diarrhea, vomitting hourly w/dry heaves. Next day dr. appt sends me to ER and I am admitted and put into surgery for appendicitis. Apendendix removed, temperature still around 102 and not dropping for over a week. Tests proved positve and negative for salmonella. Never did find out what that whole thing was about. There were no reports of food poisoning in the area. The only thing I ate that no one else ate was some scrambled eggs.

Had diarrhea for a year following. Had colonoscopy - told IBS and to start going for walks. Seemed sort of dismissed. I thought okay... so it is in my head. Okay.. fine. Back to work I went but not the same. I dismissed my bouts of lethargy and not feeling "quite right" to the aftermath of major surgery. But here I am ... still sick more than healthy. I did have a couple really wonderful years in there. (smiling) Then the mono and it started all over again only more and more frequently.

After the surgery I was prescribed some really powerful antibiotics. I am thinking they were like 500-1000 mg. I remember laughing at how potent they were and joking that I was going to rise like bread from the yeast infection that was sure to come. :-)

I swear I read somewhere that antibiotics can trigger something... does anyone know what?

 
Old 12-07-2004, 09:49 AM   #14
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Re: Can Mono trigger thyroid dysfunction?

Quote:
Originally Posted by peanutgal
Both great suggestions! As for the whiplash, I used to think maybe it was something along those lines. Maybe a cervical compression or dislocated disc but I don't have any shoulder or arm pain. I do have something "crunching" and moving around at that bone that sticks out above the shoulder blades but it doesn't hurt. It is uncomfortable and need to see if chiropractors are covered under my insurance.

The TMJ ... ugh....... talk about a pain in the butt!! That is why I am going to see ENT. I am hoping he can tell me if it is causing the pressure in my ears or the pressure in my ears is causing the discomfort in my jaw. I had one of those mouth pieces made years ago but I couldn't stand it because I felt like I wasn't getting enough air through those little holes and it was an ugly yellow clear thing. I looked like some monster creature and I had just got married. Needless to say, my bite and teeth have shifted so much since then, even if I knew where the thing was, I am sure it wouldn't fit. :-(

I have been feeling better this week which is a good thing. But as crazy as this sounds, I am upset that I didn't get a diagnosis when I was down and out. I know if I bounce upward and start getting back on track, I will have another lapse and start all over. It is a crazy cycle this thing I have - whatever it is. Then I start to wonder if it is just sloth. Am I just lazy? Do I just go into periods of complete shut down? But when I am down and out I know for a fact that it is real. That it isn't all in my head. It makes you feel like a lazy person when your get up and go has got up and went with no explanation, ya know? In your own eyes but also in the eyes of those around you. How do you explain what you are feeling to someone who has never experienced such debilitating exhaustion and weakness?

Then I search and search for what might be wrong with me. Desperate for assurance that it isn't just all in my head. Something in writing that says from a doctor that affirms to me it wasn't. To know what is causing this would change everything. I could set course in life knowing what my limitations are or what the triggers of it are. I could rest assured that when I lose all my strength and vitality that it will pass. That it has a name. That it is real. That I can learn to live with it.

I just want to know what "it" is.

It's kinda interesting what this thread is about. Myself, I was in 2 car accidents in 2002/2003. The first one giving me a minor concussion the 2nd one wasn't as bad, but I had some whip lash from it. I too have TMJ, and have had it ever since I was very little. I also have tons of symptoms of hypothyroidism (something I'm working on resolving now). It's interesting to see how this all correlates..

Anyway, my TMJ issues were/are horrible. This year however I've been visiting a chiropractor and it's helped me 100x over. I highly recommend it. He hasn't resolved my tmj problem completley, but the pain has been reduced signifigantly.

For me when my jaw was particularly bad, my ears would feel full - like they were full of water, my jaw and ears would feel swollen.. it was really terrible. That might be what you're experiencing..

As for the mouth pieces, they're much different now. They're basically like thick retainers that you wear either over the upper or the lower teeth. You can still talk (and even breathe! yay!) and usually they're made out of a rubber-type material.


Oh! And those little nobs in the back of your neck? Your neck is probably out and needs a chiropractic adjustment. I had those too, right along the base of the hairline on the back of my neck - my chiro got rid of them in about 30 seconds.

I hope this helps you!

 
Old 12-08-2004, 04:52 AM   #15
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Re: Can Mono trigger thyroid dysfunction?

Peanutgal i just wanted to add that your diet could account for your weigt gain. You are telling us you rarely eat until dinner. That is a big no no for any weigt loss or even maintanance.
Once you eat you start your metabolism you are wasting a whole day of burning calories.
Think of your muscles as a furnace without wood no fire same as your metabolism without food no burning. As we get older this becomes more important every year even if in the past starving worked you have programmed your body into starvation mode. your body is hording everything you eat because it knows it will be 24 hours at least for another meal.
No matter how hard get something in your system early(healthy of course) if weighht losss is a concern.
With your lethargy this is so important you have no exercise to burn calories either.
I wish you the best.
Lisa
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