I have to travel to see my endo whom I saw 3 months ago. I received a call
from my local doc that endo wanted me to increase med again and its only been 12 days since I was increased. The nurse with the endo called and said
to refer to my local doc. He wasnt up on thyroid is why I traveled in the first place. My Tsh has dropped and FT4 is getting into the middle range finally.
I am sensitive to the Levo. and was told to be patience and all they want
to do is push. I feel more depressed now. I feel I am a good faithful patient.
I feel Noone deserves to be treated like I have been the past few months.
Do we as thyroid patients get the runaround or what?
I know exactly how you feel. I was just thinking today, after waiting all day for my endo's office (nurse) to return my call, how I really don't feel appreciated or respected at this endo's office. I HAVE NEVER HAD ANY GOOD LUCK WITH ENDOS! I've had Grave's Disease for years and had only a handful of Endos. Mostly my thyroid has been successfully managed by my general doctor. I only went to a endo this time because I was surely feeling desperate when my thyroid "crashed" and I felt that I really needed a specialist. After dealing with the endo, I remembered why I don't go to them! Anyway, you have my sympathy. Do whatever you have to do to get what you need from the doctor you're seeing now and move on if you have to. Become as educated about your condition as possible and when ever you go to the doctor, you'll be armed with knowledge and confidence. I thought maybe I was being over sensitive about how I'm being treated (or not treated)...but all of us can't be wrong...IT"S THEM!!
AMEN LUCY! It can't be just US....there are far to many of us talking about how we get "treated" or actually "untreated". I was sent to an endo one time...and it lasted about 3 visits worth. She wasn't INTERESTED and KNEW IT ALL. Period. It was with a Diabetes clinic and you just felt you were cattle being herded through. FORGET THAT!
I used to read the other thyroid boards and think, no....Dr's aren't like this....these internet people are just wound up! LOL....now LOOK who's here... ME! lol
When it happens to you...it makes you a believer.
SueM....I hope that it improves for you. I know how discouraging and helpless it feels to be where your at!!!! Big hug to you!
Don't feel so bad, I actually DID get fired by my Endo. I called to make an appointment one day and was told by his staff that "I had been discharged". I said what do you mean, discharged...I was supposed to call today to make an appointment? The lady at his office told me I supposedly missed my last appointment and therefore the doctor no longer wants to see me. 2 days later I got a formal registered mail letter from my Endo stating I had in essence been fired and with the letter he sent along a copy of all my lab work as well as a list of some other Endos in the area.
I was sooooo ****** off I almost sent him a stool sample in the mail. It turned out it was the best thing possible because this doctor was a total as$ho$% and gave me bogus advice right from the start.
LMAO!!! Hypodude!! Too funny about the stool sample!! That's a good one! Glad it worked out for you, though. Most times things that look bad in the beginning are usually working out for your best anyway! Boy!! Im laughing even harder when I picture your doc's staff opening up that mail!! Whooo Hoooo!!! LMAO!
A big Thank You to LucyPearl, LynnHan,hypodude,and Soccerspeed,
Your support and advice makes me feel better. Its easy to feel down
when youve been so ill with all the symptoms. Today I feel like its better
I know how Endo feels so I wont keep wasting my time.
What a learning experience. Thank You Suem
We really do get "the runaround", which is expensive and energy and time-consuming, but we're learning a little more with each experience, to pass on to our children.
Some GP's just admit they don't know much about thyroid, and it does seem that endocrinologists may like to show off to the GP's by sort of going over our heads to involve them. Nothing personal, just pride.
I swear....at my visit to my ENT last week, trying to find the cause of my perfect Free's and high TSH, my ENT and I were running through the hormone process together and how it works in the body and he said "Jeez, you seem to know more about the Thyroid than most doctors". Thankfully, instead of feeling like I was trying to "one-up" his experience or knowledge, he actually welcomed my comments in a search to get me better. On subjects where my information was not correct, he graciously corrected me and explained why my info was not correct and we moved on to the next potential cause of my trouble. The appointment went as quickly as any other one did, even with my thorough input. I did not guide or overstep his expertise. Of course he is the doctor and he makes all the final calls. He did however, acknowledge that "a regular person" can figure this stuff out if they study enough and took my input and put it to good use in helping to get me fixed. Im not suggesting I "know it all" when it comes to Thyroid, but I am suggesting that if you do your homework and manage to find a doctor that trusts you know what you are talking about, your overall experience will be more pleasant.
There are many doctors that just do not get some of these unique situations all the time and like everyone else they can forget what they learned. I particularly noticed "moments of clarity" with a thing or two that I mentioned where it looked like the doctor had a flashback to Thyroid 101 in med school and all of a sudden became a wealth of new information....almost like what I said triggerred his memory and it all came back to him from a medical standpoint. Sometimes knowing too much about your condition is a pain in the *** cause its hard to just follow advice once you know more about the subject. Once you find the right doctor for you, though, your knowledge, along with the doctor's knowledge and expertise can become a valuable combination in getting you fixed.
Hypodude, keep us posted, as to whether you're on meds for your Hashi's.
Some doctors, according to another forum that I'm probably not supposed to mention here, just admit they had next to nothing about thyroid in their training. Some bluff, don't even know if you're right or wrong.
The test of whether he's the right one for you is whether you're getting successfully treated, isn't it? (I'm awaiting my first antibodies results, at age 68, never could find a doctor knowledgeable enough to even test for it. Finally, an endocrinologist ordered it. So surprising I forgot to mention that I was completely out of some of my diabetes meds, will have to try to get a same-day appointment somewhere else Monday! )