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Thyroid Disorders Message Board
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Old 12-11-2004, 10:42 AM   #1
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newbie w/questions

Hi everyone. I am a 22 year old female. About 7 months ago I started having these strange symptoms. They were/are: Heart palpitations, increased sweating, shakiness in hands, difficulty sleeping/staying asleep, a feeling of a lump in my throat, nausea sometimes, overall fatigue and weakness and muscle twitches. My DR acts like I'm a hypochondriac and says I cant be hyper because I'm not losing weight. I have been to the DR 3x since my symptoms started and just a month ago I FINALLY got a CBC and all that was checked was T4 Free and TSH (I dont really know what that means.) Apparently everything was "normal." The nurse told me there are no medical reasons that I should be having these symptoms and gave me Xanax to calm me down when my heart starts racing. My symptoms come and go also. And just because I don't have ONE of the symptoms doesnt mean it's not possible to be hyperthyroid, right?? I've read some other threads with similar situations, any help would be appreciated. Please let me know if any of you have been in this same situation!

THANKS

Last edited by elggon; 12-13-2004 at 05:00 PM.

 
Old 12-11-2004, 12:15 PM   #2
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Re: newbie w/questions

Welcome to the board, be careful with the xanax its quite addictive. You certainly seem to have the symptoms, can you post your numbers on labs? This will be helpful to those who are good at reading them, I myself am not. About the losing weight, I never lost weight while hyperthyroid! I believe thats because I was never very large to start with.

 
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Old 12-11-2004, 12:19 PM   #3
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Re: newbie w/questions

Thanks. I only take the Xanax when needed, which has only been once so far. I will post my numbers here pretty soon, I'm getting the info. sent to me. The nurse told me over the phone that my numbers were "normal" which, like I said, I have no idea what that means I'm average size too, not overweight or underweight, but my DR was convinced if I was hyper I would be losing.

 
Old 12-12-2004, 10:11 AM   #4
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Re: newbie w/questions

Just bumping this up to see if anyone else has any comments.

THANKS

 
Old 12-12-2004, 10:26 AM   #5
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Re: newbie w/questions

What is "normal" for one person, may not be for another and it also depends on what ranges the lab uses I believe. Good for you about the xanax. Write a new post on labs. There are people on this board who are very good at understanding the ratios,ect.... Not everyone loses weight when hyper.

 
Old 12-12-2004, 01:11 PM   #6
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Re: newbie w/questions

Hi! I was diagnosed hyperthyroid/Graves this past summer. I had all of your symptoms besides hair falling out and no period. I wasn't losing weight, but I was eating SOOOOOO much more and not gaining. It seems still I lose a few, gain a few.

I agree- don't believe when they say you are normal, you need to get the actual results.

April

 
Old 12-12-2004, 07:21 PM   #7
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Re: newbie w/questions

Quote:
Originally Posted by AprilPow
Hi! I was diagnosed hyperthyroid/Graves this past summer. I had all of your symptoms besides hair falling out and no period. I wasn't losing weight, but I was eating SOOOOOO much more and not gaining. It seems still I lose a few, gain a few.

I agree- don't believe when they say you are normal, you need to get the actual results.

April

Thanks alot AprilPow. That's another one of my symptoms is eating ALL THE TIME, and my weight has stayed pretty much the same. Did you have a hard time getting diagnosed, or was your situation pretty straighforward?

 
Old 12-14-2004, 03:35 PM   #8
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Re: newbie w/questions

Bump bump

Last edited by elggon; 12-14-2004 at 03:36 PM.

 
Old 12-14-2004, 08:01 PM   #9
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Re: newbie w/questions

Well...I would say fairly easy. It started after having a baby. With previous pregnancies, I was back to normal within 2 mos I'd say. This time...no. I wasn't getting my period was my 1st signal. I kept calling my GYN they kept telling me it takes time for my body- blah blah blah. I KNEW something was up. Didn't know what though. They said wait 2 more months, call us back we will run tests. I kept waiting...and I noticed my moods were terrible. I would cry at anything, about to crash and burn, very edgey and aggressive. I called them back and she was like "IT TAKES TIME"...I said I JUST DON'T FEEL RIGHT! She then made me feel like a crazy person and said well you can come in a talk to the doc. I had to see a regular doc too. After i had gotten my TSH tested and it came back hyper. He kept pushing postpartum depression- then would correct himself and say "no, you have a low TSH". No joke, he said that about 3 times in my visit. I was getting irritated. I wasn't depressed. I didn't even know what a TSH was, or thyroid. I read about it online and everything became clear!! WOW! That's why I couldn't sleep at night, even though the baby was! That's why I've been so sweaty and just can't take the heat! Thats why I've been using the bathroom so much!! My hubby probably put on 15lbs trying to keep up with my new eating habit. Thats why I was shakey!! I played volleyball and my serves couldn't even make it over the net anymore b/c my muscles have become and still are WEAK! I have the pounding heart, which sucks. HAd a heart rate of 140 in bed! Crazy dreams was another thing that made me crazy. I was so tired during the day.
My situation I think was pretty straightforward although I constantly wonder "is this my thyroid?" which is very irritating.

So...all that to say...
Feb 04 had baby.
July 04 got tested and results back- low TSH.
Sept went to the Endo- confirmed hyperthyroid.
Jan 05- getting surgery.
after that- a whole 'nother war I am totally dreading.

 
Old 12-14-2004, 09:48 PM   #10
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Re: newbie w/questions

If I were you, I'd see an endocrinologist, preferably one who specializes in thyroid disease. I've not had this problem, but have read here & other places that thyroid problems are often misdiagnosed for a long time. Also that not everybody has all symptoms of hypo or hyper, making it difficult to diagnose. Also, normal TSH varies among people. And if the dr you are seeing now is an endocrinologist, I'd get another endocrinologist. Xanax, indeed! Let's get a medical diagnosis before we decide you are nuts.

 
Old 12-15-2004, 04:06 PM   #11
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Re: newbie w/questions

Thanks alot for the advice. It helps just to hear from someone who knows what I'm talking about, even if the doctors don't!

 
Old 12-16-2004, 02:50 PM   #12
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Re: newbie w/questions

Hi you all!

I dont really know how to express my feelings after reading the stories that I found here. Im lucky to have found this board I think... And finally I have found a place where I can ask the "experts".
I call you the experts since I feel that none of the doctors that I have tried out has any experience at all... Though, my last doctor has been pretty clear about my situation: He is doing anything he can to figure out my problem.

Allthough my problem officially started yesterday, I believe my problem has been going on for many years already.

I can remember when I was much younger that my doctors in Norway always pointed at my neck and sais, hey, you got Struma (dont really know the english expression, but I would think its the same as when the thyroid gland is enlargend). They sent me to take blood, but always came back with the results: nothing is wrong with you.

About 7 years ago, things changed quite much in my life.
I started to have extreme pain in my legs. I couldnt really walk much. If I walked 100 meters, it would take me 3 hours to recover enough to move anywhere. If I woke up at night, I had to crawl on my knees to get to the toilet. It took about 1,5 years before I had pain and I had to see another doctor than my normal doctor (who had given me something to smear on my legs, cos I had growing pain... he said). This other doctor was a "trainee" and she didnt know what to do, but she came up with a great idea to send me to a private clinic for sports problems. I went there, the doctor there had a look at me for 5 minutes and said: Hey, I know what your problem is. He had discovered that I had Tarsal Tunnel Syndrom (Carpal Tunnel Syndrom, only difference is that the problem is on the inside of your ancles). A few months later I had an operation, and I could walk again.
Just a few months after this I got quite large problems with my tummy. I had acute pain, had to run to toilet, if I ate out, I wasnt even sure that I would make it home... My doctor had me checked for chrons disease, coliaki, and other known things. He could only come to the conclusion that I had a permanent/cronical infection but didnt really have a treatment for it. I had to adjust my lifestyle.

Around this time I made a carreer move, and also moved location to the Netherlands. I had constant problems with my tummy. But my dutch doctor said that I had to eat more fibers.He also mentioned my "struma" or my enlarged neck, and got some bloodsamples. Nothing was wrong on those, so nothing to be done, right?
In November 2002, I was in the US for a business trip. After 3 days stay, I get so ill, that I have to go to the hospital. A few hours later, I was on the operating table to take out my gallbladder. My gallbladder had been so ill, that if it had broken, it could have cost me my life.
About 1 year ago, my doctor got sick (heartattack or so), and was replaced with another doctor. I had the same complaints to him about my stumack, he got me to a specialist, and I got the diagnoses Irritable Bowel Syndrome. Just some months before this, he gave me a prescription for Xenical, weight reduction pills.
A few months ago, I started to feel exhausted, I hated life, I hated my work, I started with moodswings, I had fights with people. My personality totally changed! I felt depressive. Im not really a cryer, but I really could not stop myself from doing it (nothing wrong with crying, but when you do it without any obvious reason... hey!). Besides this, I can say that I have had hairproblems... a bit more than normal. I have dry skin... my muscle ache. I sleep whenever I see a bed or a sofa to sleep on... life is all crap. Think most of the people who read here can relate
Oki, thinking that I was overworked, I just let it continue... what could a doctor tell me? That I was depressed and needed anti-depressants? Only that thought made me depressed
So, what happend next was that I went to a specialist for scubadiving approvement... (dont know how to really write that). He meassured my bloodpressure. One arm didnt even have any bloodstream... but he could messure 170/110... just imagine. The other arm was a bit better... 140/100. That was enough reason for me to see my doc again.
I went to my doc, and spilled my guts... they really came out... so he checked my thyroid gland again with his hands... and found out that I should do an echo, and do some bloodwork.
So... that echo was done yesterday, and the doctor who did the echo said that it was obvious my thyroid gland was damaged.
However, a few weeks ago, I got the bloodsample results, and they showed, as always, normal values...

Reading your stories here, makes me quite obvious that normal isnt always normal. These hormon production values have to be adjusted for every individual... and I guess that is something I have to fight for... I still have to go back to my doctor and discuss further progress. Cos we still dont know what causes the damaged thyroid.

But my question to you here: what do you think?`What can I expect of the further investigations? And do you think that with an obvious damaged thyroid gland, I might still be ok (despites the other symptoms I have?) Do you think my gallbladder, irritable bowel syndrom and tarsal tunnel syndrom might have something to do with this?

I would so much appreciate any answer I can get to this! Cos at this moment, I feel quite alone.
Telling my father about this wasnt so easy, cos he wouldnt know how I feel. Telling my colleagues will also not help me... friends... well... if they dont know how it is to be inside me... they also cannot relate... So Im desperately hoping that someone might be able to help me a bit with my questions!
Thanks a lot for the entries you already wrote! That makes a lot of comfort for me already

 
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