Hi you all!
I dont really know how to express my feelings after reading the stories that I found here. Im lucky to have found this board I think... And finally I have found a place where I can ask the "experts".
I call you the experts since I feel that none of the doctors that I have tried out has any experience at all... Though, my last doctor has been pretty clear about my situation: He is doing anything he can to figure out my problem.
Allthough my problem officially started yesterday, I believe my problem has been going on for many years already.
I can remember when I was much younger that my doctors in Norway always pointed at my neck and sais, hey, you got Struma (dont really know the english expression, but I would think its the same as when the thyroid gland is enlargend). They sent me to take blood, but always came back with the results: nothing is wrong with you.
About 7 years ago, things changed quite much in my life.
I started to have extreme pain in my legs. I couldnt really walk much. If I walked 100 meters, it would take me 3 hours to recover enough to move anywhere. If I woke up at night, I had to crawl on my knees to get to the toilet. It took about 1,5 years before I had pain and I had to see another doctor than my normal doctor (who had given me something to smear on my legs, cos I had growing pain... he said). This other doctor was a "trainee" and she didnt know what to do, but she came up with a great idea to send me to a private clinic for sports problems. I went there, the doctor there had a look at me for 5 minutes and said: Hey, I know what your problem is. He had discovered that I had Tarsal Tunnel Syndrom (Carpal Tunnel Syndrom, only difference is that the problem is on the inside of your ancles). A few months later I had an operation, and I could walk again.
Just a few months after this I got quite large problems with my tummy. I had acute pain, had to run to toilet, if I ate out, I wasnt even sure that I would make it home... My doctor had me checked for chrons disease, coliaki, and other known things. He could only come to the conclusion that I had a permanent/cronical infection but didnt really have a treatment for it. I had to adjust my lifestyle.
Around this time I made a carreer move, and also moved location to the Netherlands. I had constant problems with my tummy. But my dutch doctor said that I had to eat more fibers.He also mentioned my "struma" or my enlarged neck, and got some bloodsamples. Nothing was wrong on those, so nothing to be done, right?
In November 2002, I was in the US for a business trip. After 3 days stay, I get so ill, that I have to go to the hospital. A few hours later, I was on the operating table to take out my gallbladder. My gallbladder had been so ill, that if it had broken, it could have cost me my life.
About 1 year ago, my doctor got sick (heartattack or so), and was replaced with another doctor. I had the same complaints to him about my stumack, he got me to a specialist, and I got the diagnoses Irritable Bowel Syndrome. Just some months before this, he gave me a prescription for Xenical, weight reduction pills.
A few months ago, I started to feel exhausted, I hated life, I hated my work, I started with moodswings, I had fights with people. My personality totally changed! I felt depressive. Im not really a cryer, but I really could not stop myself from doing it (nothing wrong with crying, but when you do it without any obvious reason... hey!). Besides this, I can say that I have had hairproblems... a bit more than normal. I have dry skin... my muscle ache. I sleep whenever I see a bed or a sofa to sleep on... life is all crap. Think most of the people who read here can relate
Oki, thinking that I was overworked, I just let it continue... what could a doctor tell me? That I was depressed and needed anti-depressants? Only that thought made me depressed
So, what happend next was that I went to a specialist for scubadiving approvement... (dont know how to really write that). He meassured my bloodpressure. One arm didnt even have any bloodstream... but he could messure 170/110... just imagine. The other arm was a bit better... 140/100. That was enough reason for me to see my doc again.
I went to my doc, and spilled my guts... they really came out... so he checked my thyroid gland again with his hands... and found out that I should do an echo, and do some bloodwork.
So... that echo was done yesterday, and the doctor who did the echo said that it was obvious my thyroid gland was damaged.
However, a few weeks ago, I got the bloodsample results, and they showed, as always, normal values...
Reading your stories here, makes me quite obvious that normal isnt always normal. These hormon production values have to be adjusted for every individual... and I guess that is something I have to fight for... I still have to go back to my doctor and discuss further progress. Cos we still dont know what causes the damaged thyroid.
But my question to you here: what do you think?`What can I expect of the further investigations? And do you think that with an obvious damaged thyroid gland, I might still be ok (despites the other symptoms I have?) Do you think my gallbladder, irritable bowel syndrom and tarsal tunnel syndrom might have something to do with this?
I would so much appreciate any answer I can get to this! Cos at this moment, I feel quite alone.
Telling my father about this wasnt so easy, cos he wouldnt know how I feel. Telling my colleagues will also not help me... friends... well... if they dont know how it is to be inside me... they also cannot relate... So Im desperately hoping that someone might be able to help me a bit with my questions!
Thanks a lot for the entries you already wrote! That makes a lot of comfort for me already