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Old 12-13-2004, 10:40 AM   #1
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FairyGrl79 HB User
Advice from someone who knows...

I was wondering if I could explain my symptoms and see if you guys think maybe something is up. I know you can't tell me anything for sure, but I hate to say I would trust your opinions more than I would a doctor at this point.

I have been tested twice for thyroid disfunction, of course they only tested my TSH. The first time it came back 1.64 and the second time it came back 1.46. They also tested my total cholesterol both times as well. The first time it was 258, the second it was 203. I am 25 years old, female, and have a history on thyroid problems on both sides of my family. My dad is hypo, and his mom and both sisters are hyper. My mom's sister and aunt are both hyper.

My old doctor was the one who originally wanted to test my thyroid due to panic attacks and what she called brisk reflexes and high pulse. She asked if there was history of thyroid problems and I said I wasn't sure (found out later that there was and what a thyroid even did!)

So anyway, here I am, after two tests, both normal and I don't know what to think. I have a high pulse, or so it seems to me...I know normal is usually around 72 or something...mine has been up to 130 or so plenty of times. I am always aware of my heart beating because it always feels like you feel when you have just got done running and your body is trying to slow back down, but your heart is still beating pretty quickly (hope that makes sense) in the last two or three years I have had unusual periods...I was always so regular before and now I have had to switch birth contol pills once in the last year because I basically just stopped having a period for no reason. I always feel edgy or like jittery inside. I don't know how to explain that but I feel like I am jittery on the inside and the outside, especially in my hands...people laugh because you can literally see them trembling as I go to write or type or anything really. I am either constipated or going three times a day too, and I am ALWAYS bloated! The last thing that I have taken notice to is weight loss. I wouldn't say it has been drastic, or all of the sudden, but recently I said in the last four to five months, I have went from around 128 to 116 pounds. I feel like I eat more than ever, always snacking, which I never used to do, but yet, I seem to be losing weight...so much that people are commenting to me about how much I have lost every time I see them.

I am not sure if I have a thyroid problem or not...I can't get my doctors to check anything else but TSH. But I plan to go in and try one last time to get them do more that just that one simple test...if not, I guess I will move on to a new doctor. I just thought I would see if you could tell me what you think? I appretiate you guys listening to me! It helps more than you know!

Thanks, and sorry this is so long!

 
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Old 12-13-2004, 03:07 PM   #2
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elggon HB User
Re: Advice from someone who knows...

Quote:
Originally Posted by FairyGrl79
I was wondering if I could explain my symptoms and see if you guys think maybe something is up. I know you can't tell me anything for sure, but I hate to say I would trust your opinions more than I would a doctor at this point.

I have been tested twice for thyroid disfunction, of course they only tested my TSH. The first time it came back 1.64 and the second time it came back 1.46. They also tested my total cholesterol both times as well. The first time it was 258, the second it was 203. I am 25 years old, female, and have a history on thyroid problems on both sides of my family. My dad is hypo, and his mom and both sisters are hyper. My mom's sister and aunt are both hyper.

My old doctor was the one who originally wanted to test my thyroid due to panic attacks and what she called brisk reflexes and high pulse. She asked if there was history of thyroid problems and I said I wasn't sure (found out later that there was and what a thyroid even did!)

So anyway, here I am, after two tests, both normal and I don't know what to think. I have a high pulse, or so it seems to me...I know normal is usually around 72 or something...mine has been up to 130 or so plenty of times. I am always aware of my heart beating because it always feels like you feel when you have just got done running and your body is trying to slow back down, but your heart is still beating pretty quickly (hope that makes sense) in the last two or three years I have had unusual periods...I was always so regular before and now I have had to switch birth contol pills once in the last year because I basically just stopped having a period for no reason. I always feel edgy or like jittery inside. I don't know how to explain that but I feel like I am jittery on the inside and the outside, especially in my hands...people laugh because you can literally see them trembling as I go to write or type or anything really. I am either constipated or going three times a day too, and I am ALWAYS bloated! The last thing that I have taken notice to is weight loss. I wouldn't say it has been drastic, or all of the sudden, but recently I said in the last four to five months, I have went from around 128 to 116 pounds. I feel like I eat more than ever, always snacking, which I never used to do, but yet, I seem to be losing weight...so much that people are commenting to me about how much I have lost every time I see them.

I am not sure if I have a thyroid problem or not...I can't get my doctors to check anything else but TSH. But I plan to go in and try one last time to get them do more that just that one simple test...if not, I guess I will move on to a new doctor. I just thought I would see if you could tell me what you think? I appretiate you guys listening to me! It helps more than you know!

Thanks, and sorry this is so long!
I can understand what you are going thru. I'm a 22 yr old female with some of the same symptoms. Anxiety, shakiness in hands, heart palpitations, feel like my heart is going to come out of my chest! Increased hunger (no weight loss) sometimes difficulty sleeping, increased sensitivity to heat. Ummm, thats all I can think of right now. Oh, fatigue and weakness, and the same goes for me as far as bowel movements. One extreme or the other. My symptoms come all on at once, and usually last about 4 days then go away, but will return eventually. How confusing is that My DR doesnt think its thyroid because Im not losing weight, he actually thinks im a hypochondriac. I finally got a blood test, and all my levels were normal too! He says I have no medical reason to be having the symptoms I do. But I am CONVINCED that it's my thyroid. I'm glad to know that there are other people in my same situation. I also have a lump feeling in my throat, forgot to mention that. How often are your symptoms, and do they go away by themselves? I'm stuck now and don't know where to go because apparently my results are all "normal."

 
Old 12-13-2004, 07:28 PM   #3
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Benzi HB User
Re: Advice from someone who knows...

If you feel uncomfortable with a diagnosis or a DR's lack of empathy, the best thing you can do is find another DR. You can also asked to be referred to an endocrinologist. I had to go to many DR's before I was given the diagnosis that in my case probably saved my life. I had thyroid cancer, I knew something was very wrong, and no DR. would listen. Every single blood test, thyroid scan ect... came back normal "to their way of thinking" I ended up in getting the chief radiologist in some big trouble after he told me that "I was imagining the lump in my throat" But so be it and it got me a REAL Endo and it was cancer, rather large in fact by this time. I am not suggesting that this is going to be your diagnosis, actually quite the reverse, but don't let these DR's bully you!

 
Old 12-13-2004, 07:35 PM   #4
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dea4 HB Userdea4 HB Userdea4 HB User
Re: Advice from someone who knows...

Your dr is only testing TSH which is a pituitary response, its not a thyroid hormone. You need to insist that he also test your FREE T3 and FREE T4 as well as test you for antibodies TPO and TSI. With your family history you need to press this dr to do more testing, the TSH can be very deceiving, the FREE levels are your actual thyroid hormones and need to be evaluated as well. Both FREE levels NEED to be in the upper 1/3 of the labs range, just being "in range" will not mean you are o.k. and have no problem.

Keep us posted.

 
Old 12-14-2004, 04:56 AM   #5
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irys HB User
Re: Advice from someone who knows...

Quote:
Originally Posted by Benzi
If you feel uncomfortable with a diagnosis or a DR's lack of empathy, the best thing you can do is find another DR. You can also asked to be referred to an endocrinologist. I had to go to many DR's before I was given the diagnosis that in my case probably saved my life. I had thyroid cancer, I knew something was very wrong, and no DR. would listen. Every single blood test, thyroid scan ect... came back normal "to their way of thinking" I ended up in getting the chief radiologist in some big trouble after he told me that "I was imagining the lump in my throat" But so be it and it got me a REAL Endo and it was cancer, rather large in fact by this time. I am not suggesting that this is going to be your diagnosis, actually quite the reverse, but don't let these DR's bully you!
Wow.. I wonder what the chief radiologist said after he found out you had cancer!

 
Old 12-14-2004, 06:55 AM   #6
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FairyGrl79 HB User
Re: Advice from someone who knows...

Elggon, my symptoms don't really go away, there are just some days better than others I guess you'd say. I have other things too that I didn't mention in my first post because it was already long enough to begin with. I constantly have muscle cramping or soreness. I will wake up at least three days a week with either soreness in my biceps, or in my calfs, or a number of other places. I honestly believed at first that there was something seriously wrong with me and that I had some horrible disease (cancer etc.) That is why I went to the doctor to begin with and then the whole depression/anxiety started. They put me on Xanax and Paxil. I hated it, and maybe took it for a week before I told them to forget it. I knew I wasn't depressed, and the anxiety was all based around me being concerned that there was really something wrong with me. Now I have basically learned to deal with the symptoms day by day and not worry so much that something is deathly wrong with me. But I do know that something is off. You can just read your own body, you know what I mean?

Dea4, I will ask my doctor for the tests you mentioned. I have ready many times that TSH isn't the best indicator of thyroid function but can't seem to get that across to the doctor.

Maybe it is not a thyroid problem, but with all the history in my family, and all the weirdo things going on with my body, I just think something is up and they don't want to take the time to figure it out.

Also, one other thing, I don't know if this is anything or not, but have noticed that when I swallow, I can see this little bump that will stick out around the bottom on my throat/neck. It is about the size of a peanut I guess, and I can't see it when I just look, only when I swallow. I tried to feel it while swallowing with my finger, and it seemed a tad bit tender...not bad or anything, just a little tender. It is probably nothing, maybe I just want it to be because then I would have something more tangible to show the doctor. I am not sure exactly what it would look like if it were enlarged or had a goiter.

Well thanks for all of you guys help. It is so nice to know that someone is willing to listen and give you opinions. Let me know if you have any other advice/insight.

 
Old 12-14-2004, 08:24 AM   #7
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Benzi HB User
Re: Advice from someone who knows...

Quote:
Originally Posted by irys
Wow.. I wonder what the chief radiologist said after he found out you had cancer!
LOL I don't think he worked at the hospital very long after that, I made sure to call the CFO of the hospital to tell him what happened. I guess I should not laugh at his misfortune but after what he put me through I did feel like laughing when I heard he was no longer employed at that hospital. Who knows I may have saved some other poor person the agony of hearing his stupid comments.

 
Old 12-14-2004, 03:45 PM   #8
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elggon HB User
Re: Advice from someone who knows...

FairyGrl979: I was also put on Xanax because my DR. thought I was having anxiety, but my anxiety was due to the fact my heart was POUNDING out of my chest, which was caused by some reason. They just don't know what it is, because everything is "normal." Thanks for your response, keep us updated on your progess. I will be getting my results in the mail and will post my so-called "normal" numbers just in case anybody knows anything about them.

 
Old 12-15-2004, 05:23 AM   #9
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irys HB User
Re: Advice from someone who knows...

Quote:
Originally Posted by Benzi
LOL I don't think he worked at the hospital very long after that, I made sure to call the CFO of the hospital to tell him what happened. I guess I should not laugh at his misfortune but after what he put me through I did feel like laughing when I heard he was no longer employed at that hospital. Who knows I may have saved some other poor person the agony of hearing his stupid comments.
Well, he was probably laughing at you, I mean, he didn't take you seriously right? So, he didn't deserve to be there.

Good for you, I'm glad you called and complained! Rock on!

 
Old 12-15-2004, 06:21 AM   #10
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Crazy4ever HB User
Re: Advice from someone who knows...

FairyGrl79 and elggon - keep pushing until you get a doctor that will listen to you! It has taken me close to 9 years for someone to actual test me and look at my results they way they should. I went to the doctors because my hear kept skipping a beat. I was told at that time that I had elevated T4 levels and there was nothing to worry about. I didn't know enough back then to push for more testing. Then, about 2 years ago, I start having all kinds of problems. I was diagnosed with Polycystic Ovarian Syndrome and Insulin Resistance by my OB/GYN and then dumped off on my regular doctor who had no clue about any of this. After doing research on my problem, I came across a message board where someone had mentioned that women with PCOS usually also had hypothyroidism. BINGO! All the problems that were related to PCOS were also related to my thyroid. I saw the Physicians Assistant shortly after that because I had a bad bout of vertigo and was having shortness of breath. He tried to tell me that I was having a panic attack and wanted to give me anti anxiety pills. I went to see an ENT that I hadn't seen in years. He tested me for thyroid and checked it against that last test that I had 5 months prior and said that I was Hypo and started me on Levothyroxine. I have since found another doctor that is a Thyroid specialist and found out that I do not have PCOS but Hashi's. My cramps and heavy bleeding during my cycle has become a whole lot better and I do not have as many headaches or sinus infections since starting on the meds. Just got to get my levels where they need to be and LOSE SOME WEIGHT!

Go to the Armour website and see if you can locate a good doctor in your area. Someone that doesn't believe that your are a hypochondriac or crazy! It is your body and you know when there is something wrong with it. You have the right to seek the medical treatment that you deserve. Keep pushing for you doctor to do the testing, but also do some research and find another one that can help. You may also want to check with area Ear, Nose and Throat doctors since you say that you have that lump in your throat. They will know more about what they are looking for than a regular physician.

 
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