Do You Know What Wilson's Thyroid Syndrome is? Have you been diagnosed with it?
I am 37 and was what you would consider healthy. I started gaining weight uncontrollably and no matter what I did I couldn't shake it. I had a hysteroctomy in 2000 and wasn't put on any hrt because of cancer issues. I went to the doctor and he found lumps in my throat and since I have had an ultrasound, which discovered a 3 cm tumor. Then I had to have an ultrasound guided biopsy of the tumor and that result was non malignant. From there I had an uptake scan and then I had a cat scan of my lingual tonsils and my thyroid. Everyone is pretty stumped about what is going on with me, except on doctor he had me take my temp. every 3 hours 3 times a day and from that he has figured I have Wilson's Thyroid. If you have this condition and you can explaine to me what you have gone through so I don't feel like such an alien I would greatly appreciate it. I am supposed to go to an ENT tomorrow to discuss the issue of my enlarged lingual tonsils and then next month I have to go back to the doctor that diagnosed the Wilson's to begin treatment of it. I have gone to so many dotors and have had so many tests I feel like a ping pong ball it a tournament of professionals. I want to get healthy and back to my life as it was. Please give me hope!
Re: I am sooooo confused, does anyone understand Wilson's Thyroid Syndrome?
Hi, uckie. I am not an expert in this area either and quite honestly am a newbie however , my doc tried that Wilson's thyroid syndrome on me too. Basically I had same symptoms as you rapid weight gain, low body temp like 96. I was feeling tired mainly and extremly frustrated with the weight gain. The Doc put me on Amour and I was taking three a day for bout 7 months. I have recently been having more problems and they have ripped them away stating I am not to take em anymore.. My doc that put me on the thyroid meds said that my throid panel was normal but my body temp was too low that is why he suspected wilson's thyroid syndrome. I guess I was a guine pig
Re: I am sooooo confused, does anyone understand Wilson's Thyroid Syndrome?
Many experts think that Wilson's is not much different from plain old hypothyroidism. Symptoms are the same.
One difference is that the treatment uses a product that only Wilson or his approved pharmacies can provide. I'll stop short of calling the theory a scam... but having only one treatment, available from only one source, is one of a scam's criteria.
Plus, the protocol is very hard to follow... all that temp-taking would wear me out. No thanks.
If I were you, I'd pursue the thyroid angle first, with a doctor who's very knowledgeable in thyroid disease. Instead of relying on the unreliable temp method, get real lab tests done -- TSH, free T4, free T3, and thyroid antibodies - TPO and Tg. That will tell you what you need to know about your thyroid.
Re: I am sooooo confused, does anyone understand Wilson's Thyroid Syndrome?
My two cents, for reference:
* Wilson has been fined and had his medical license revoked
* Wilson has a history of out-of-court settlements and complaints/charges.
* Wilson appears to make his money selling books, tapes, and timers (to time the temperature readings).
* After consulting three thyroid specialists about my own thyroid condition, two said they were very suspicious of Wilson, one said he actually tried Wilson's protocol and it was not reliable, a third said he hadn't heard of him.
* His books are thought provoking (I bought both pt. and doc manuals), but appear to never mention Hashimoto's or Grave's, the most common thyroid disorders. No footnotes. No index. Front pages include an endorsement from someone named (I'm not joking) "endocrinologist, Los Angeles".
* Mary Shomon's "Living Well with Hypothyroidism" quotes three leading thyroid doctors who question Wilson's theory.
* The ATA (american thyroid assoc.) stated in 1999 that "The ATA's thorough review of the biomedical literature has found no scientific evidence supporting the existence of "Wilson's syndrome."
* It's not clear the "wilson syndrome" is distinct from "Thyroid resistance" (a.k.a. "T4-to-T3 conversion" problems).
* It's usually bad form to name a syndrome after yourself, but worse when there's already a syndrome by that name ("Wilson's Disease", a copper metabolism disorder).
* At some point, you gotta start wondering.
Re: I am sooooo confused, does anyone understand Wilson's Thyroid Syndrome?
Quote:
Originally Posted by ThomasTheHumble
My two cents, for reference:
** It's usually bad form to name a syndrome after yourself, but worse when there's already a syndrome by that name ("Wilson's Disease", a copper metabolism disorder).
* At some point, you gotta start wondering.
