Re: Thyroidectomy - Now What
That just sounds wrong Stessy, I think you WILL have to be on thyroid meds, and I have never heard anyone say anything else. Did anyone say anything about having RAI treatment or anything? Sounds to me like changing endo's is the right thing to do. Real quick rundown of what I had to do after papillary cancer was discovered on my thyroid. They did a TT, They (endo) put me on Cytomel in hospital, 2 weeks later I saw endo who took me off thyroid meds for about 6 weeks until my TSH was above a certian number (don't remember how high) They then did RAI treatment in hospital (2 day stay) and a Whole body Scan to make sure the cancer had not spread, and check to make sure they got it all (it had not spread and they did get it all) Then the endo put me on synthroid and said I was to have the Whole body scan once a year for 5 years and then once every 5 years after that. I have heard that if the cancer is small enough that they skip the RAI (mine was 2.5cm). Please remember this was all about 13 years agos, and things do change check around with others who have had more recent surgerys. Please don't do what I did and not get copies of the records and keep them. Believe me when I say that in 10 years you may not remember all of the fact's right. Surgeons and Endos move or retire and the records get lost. I am having a heck of a time getting mine now. You need copies of all labs, pathology reports from surgery, and Dr's reports including the surgeon. It may even help you get better care once they realize you are proactive in your healthcare. Good Luck and Best Wishes.