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Old 02-03-2005, 02:02 PM   #1
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Disappointing Visit to Endo

I have been waiting for my apt with my endo for weeks, hoping/praying that at last she would treat me. Well, she treated me, but as you'll see it was a very disappointing experience!

As I have noted before, I have a heavy family history of hypoT and Hashi's and have experienced ever-increasing fatigue, along with all the other typical symptoms like hair loss and cold extremities. My TSH in late Dec. was 2.88. My most recent labs are:

TSH 3.180 (.35-5.5)
Free T4 .82 ((.61-1.76)
Total T3 107 (60-181)

I also tested positive for antibodies a year ago (TPO 35.1 (<2)).

When I told my endo my symptoms, I was reading from a notebook so I wouldn't forget anything. She said "That sounds like a review of systems for hypothyroid" and rolled her eyes somewhat (suggesting I took the symptoms from some source and didn't really suffer from them, or what??).

She said my TSH had gone up "a little" (from 1.5 to 3.18!). She said, "I can give you medicine but it won't make you better." I took her up on the medicine part. She took several boxes of 50 mcg synthroid and literally thrust them at me and ushered me out the door. The whole apt was over in less than 5 minutes.

To cap it off, the order they gave me for my next labs ONLY orders a TSH test, no free T4 or T3. And when I asked her about retesting my antibodies she said "Why? There's no anti-antibody pill." I am not kidding you.

This woman has stated previously that she does not think a person with a TSH under 4 is hypo. So even if they have all the symptoms, antibodies & family history, they are either malingering or it's some other unknown cause (she encouraged me to work with my psychiatrist on different psy. meds for my fatigue).

I have rarely felt so misunderstood or patronized in all my life.

So I have a few sample boxes of synthroid, a doc who only gave them to me to humor me, and no where else to go!

 
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Old 02-03-2005, 02:18 PM   #2
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Re: Disappointing Visit to Endo

If your lab order has FreeT3 and FreeT4 listed, check them off yourself. I've done it many times. If it's low, you have more grounds for treatment. By the way,I've never had a Dr say boo to me about "why the free's were tested". Mine have always been low so I think they were a little ashamed that they didn't request the test themselves!
Just a thought.

 
Old 02-03-2005, 08:44 PM   #3
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Re: Disappointing Visit to Endo

Quote:
She said, "I can give you medicine but it won't make you better."
She's probably right, because she apparently doesn't know enough about thyroid disease to prescribe the right medicine in the appropriate dose. Heck, she doesn't even know the basics. I've heard similar stories about endos over and over on the board. I had my own "endo experience" as well.
Quote:
To cap it off, the order they gave me for my next labs ONLY orders a TSH test, no free T4 or T3.
She didn't order these because she has no clue that they are the best indicator of thyroid health.
Quote:
And when I asked her about retesting my antibodies she said "Why? There's no anti-antibody pill."
I reluctantly concede she's probably right on this point, although she was amazingly rude in the way she said it. The treatment for hypo is the same, no matter the cause. Testing the first time is useful because it indicates developing thyroid issues, even before the other thyroid tests are out of whack. But repeat testing really isn't all that useful, IMO.
Quote:
This woman has stated previously that she does not think a person with a TSH under 4 is hypo. So even if they have all the symptoms, antibodies & family history, they are either malingering or it's some other unknown cause
She's wrong. Period. But she isn't the only endo to think that way. Most would agree exactly with her.

This woman is an arrogant and unempathetic witch. I urge you to find someone who actually can recognize hypoT when it stares her in the face, and who knows what its effects can be. You are clearly hypothyroid, and you will get worse without treatment.
You don't owe your loyalty to someone so inept. Please don't give up! There are doctors who will treat you with effectiveness and respect.

 
Old 02-04-2005, 05:20 AM   #4
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kiya HB User
Re: Disappointing Visit to Endo

Urgh - you've had the same kind of week as me, FG. I'm sorry. It's awful to feel misunderstood and patronized. The worst thing is being treated as if you're making it all up or a complete headcase. All I can say is doctors don't know how people feel. They can only listen to the symptoms and make judgement on that. Unfortunately it seems they can be blinded to their patient's plight by the numbers on test results.

I don't know what else to say. I'm still reeling from Tuesday's visit to the endo.

 
Old 02-04-2005, 07:03 AM   #5
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fatiguegalore HB User
Re: Disappointing Visit to Endo

You guys are so wonderful! Thank you especially Midwest1 and Kiya (I know you recently went through this too).

What I think I was most offended by is the clear implication that she thought I wrote down all the symptoms of hypo without genuinely suffering them -- in order to get synthroid! Unbelievable.

One thing I forgot is that in addition to all the other symptoms and lab values, she told me my thyroid is enlarged now too.

Well, even though she gave me synthroid, I feel I must find another doc. What if I think my dose should be upped? What if I want to add in cytomel, or heaven forbid, try Armour? I would have to fight with her all the way.

BTW, she is one of the "top docs" on another board. (!!!) There are no decent endos in this town. I will just plug along to find another doc. But meanwhile I don't want to offend her because she's the only one who's ever given me replacement hormone.

I am scared to check off the other boxes on the lab form. If she found out, I am afraid she would "fire me" as a patient, and then I'd have no medicine!

I thank you all so much for your sympathy. I've heard these stories over and over. Why does the medical establishment understand so little about thyroid -- even the so-called specialists?!!

 
Old 02-04-2005, 08:18 AM   #6
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SarahF HB User
Re: Disappointing Visit to Endo

Look beyond endos... my family doctor treats me based primarily on symptoms.
After reading all your experiences, I may just write my doctor a thank you note.

 
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