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Old 02-04-2005, 06:41 AM   #1
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Can anyone explain this, re: t3

Hi
I have had a hellish 6 months. Had a baby in July and had been on .112mcg of levoxyl for past 4 yrs. Didn't change during pg although I think it should have increased. Baby healthy anyway!
Since 1 month postpartum I have felt like crap. I have been on increasing doses of synthroid (currently on 200mcg) and also time release t3, 5mg. Doc switched me to synthroid because he thought I was not absorbing the med. It just seems like everytime my doc has increased my synthroid I feel good for 4 days and then drop again. This week I got frustrated with these horribly puffy, droopy eyelids and stopped taking the t3 and increased my synthroid to 225mcg. Doc won't return my call because I wanted to let him know what I was doing. I really feel better without the t3. I feel I may need to increase the synthroid even more. I am sleeping much better these past few nights. Even thought the t3 was time release I still felt like my heart was racing and extreme hunger about an hour after I take it. Does anyone else have an experience like this or just not feel well on t3.
Thanks for any input.
Colleen

 
Old 02-04-2005, 10:44 AM   #2
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zekat HB User
Re: Can anyone explain this, re: t3

I take the EXACT same amount of meds as you do. I am on 200mcg of Levoxyl & 5mcg of Cytomel. Cytomel is not time-released & I take it first thing in the am w/ my Levoxyl. I felt better once I started taking it, but that is just me. It sounds like you need to get back in and get your labs done. I would go back to your T4/T3 combo to see where your levels are at on that. It may be that you don't need the time-release or that you would do better on Armour, maybe. What made you and your doc decide to try the T3? There really a lot of options for you to try, but a good starting point would be current labs on your Free T3 & Free T4.

 
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Old 02-04-2005, 06:59 PM   #3
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Re: Can anyone explain this, re: t3

Keav:

Congrats on the baby! Sorry to hear about you hard time. I know that this has all been extrodinarily trying on your last nerves.

Armour has way more properties that your body needs than either a pure t4 or time release t3. I have tried both myself and wish I hadn't. They aged me, destroyed my brain and left me in agony.

The new thing these days is an Amour/sythetic t4 combo. A lot of people appear to be doing very well with it. You can just dial back a bit on your t4 and gradually intro some armour. I think you'll like it.

Good luck!

~S

 
Old 02-05-2005, 05:19 AM   #4
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Re: Can anyone explain this, re: t3

Zekat and Softcrush, thankyou both for your replies.

Zekat, the doctor started me on the T3 without really looking at my labs. He has drawn my labs every 2 wks since November. My last visit he said, "your labs look normal but I am not going by your labs, Just the way you look and feel". I must say that I don't think he really has alot of experience with thyroid. He was the doctor I went to for infertility. He knows me very well since it took me 4 yrs to get pregnant. I called him in desperation after I had the baby and was feeling so bad and had gone to another endo who wanted to lower my med even though I could barely walk. So it is really not proven that I even need the additional t3.


Softcrush, thanks for your input also. I am curious of what you are on now for meds. What did t3 do for you? I guess it is good to hear that someone else had the experience I had.
Bless you both,
Colleen

 
Old 02-05-2005, 05:39 AM   #5
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Re: Can anyone explain this, re: t3

To me, it sounds like its time for a meds change. Some people, be it hormonal or otherwise, just do better on one drug versus another. I would see if your doc would consider a med change....some people just are not as stable on one thing as they can be on another.

 
Old 02-05-2005, 06:30 AM   #6
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zekat HB User
Re: Can anyone explain this, re: t3

Keav,
as frustrating as it is, HANG ONTO that doctor! It's sooooo difficult to find a doctor who will listen to how your feeling AND be so willing to try you on T3. I think Softcrush had a great suggestion - that you try a T4/Armour or strictly Armour med regimine. Many people feel much better on the natural stuff. However, if you really do feel better right not just not taking the T3, then don't take it!!

 
Old 02-05-2005, 06:40 AM   #7
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Re: Can anyone explain this, re: t3

Zekat, I know. I just re-read my response and I should not have said that my doc doesn't have experience in thyroid. Just the fact that he put my on t3 (and time-release for that matter!) means alot. I just have a love-hate relationship with him! When he told me last visit that he was going by how I feel and look, I told him, "do you know how many thyroid pt's want a doctor that says that?". He smiled.
I was going to skip my appt this week because I was kind of mad that he didn't call me back but I think I will go just so he can see how much better I look without the t3. I can see it in my face. I just cleaned my kitchen and don't feel exhausted....how sad!
I guess this is just trial and error. Sometimes it is so hard to be patient when we just want to feel good.
Thanks!

 
Old 02-05-2005, 06:01 PM   #8
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Re: Can anyone explain this, re: t3

Keav:

I noticed you say your doc isn't well versed in thryoid. Well, I hate to tell you....most docs aren't, but THINK they are. That can make them very difficult to deal with. So, in that respect you actually may be lucky.

I am on 37.5 mcg Synthroid and 2 + 1/4 Armour. I just bumped up my armour that 1/4 today. I'm still as dead as a rag doll, but I'm far more mentally with it, and feel more tucked "INSIDE" myself.

I have tried a time-released version of t3. Now, it may be just fine for you, depending on your condition. If you still have a thryoid gland, that is considerably different from the person who doesn't (like me).

Time released t3 left me still feeling hypo-thyroid...which was just as bad as having no treatment at all. My skin, went down the tubes. I look 10 years older just 10 months. That is just one of the more heartbreaking aspects.

One of the more insidious problems with T3, is it can move the labs, and trick the doctor into thinking you have been cured. When you still complain of symptoms, he'll refer you to another specialist, thinking that IT MUST be something other than your thryoid. (Sounds like your doc, is going to be more flexible, but its still something to be wary of.)

Now...you going in understand this will put you in a much better position to deal with it. I would perhaps tell the doc you'll give it a try, but if you aren't getting a reduxion in your symptoms in a couple weeks, you'd like to reserve the right to call and ask for an Armour script.

Sound good?

Good luck!
~S

 
Old 02-06-2005, 05:13 AM   #9
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Re: Can anyone explain this, re: t3

Thanks again S!
The input here means alot to me. I never want to go back on that time release t3 again! I felt horrible on it. I , like you, feel like I have aged also. My skin was so dry I could see the cracks and the white hair has been sprouting uncontrollably. I am 35 and know that is expected but I feel it has greatly increased in the past 6 months. I do think my doctor somewhat knows thyroid but at times I do have my doubts. For example, my tsh has been low the whole time I have been on t3. My understanding is that t3 will lower tsh. Well, he ordered an MRI on my pituitary. Better safe than sorry I guess.
I am afraid to go on any t3 now that I took myself off. I do have some armour here in my house. I am going to stay on the 225 mcg of synthroid for a few weeks and see how I feel.
I am sorry that you seem to have been through so much. Glad you are feeling a bit better. Hope you feel great soon. This is so mean to say, but don't you sometimes wish you could have people experience the fatigue we feel for just one day so they will understand??
Colleen

 
Old 02-06-2005, 03:49 PM   #10
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Re: Can anyone explain this, re: t3

Colleen:

Thanks for the kind response. Yes, I do wish they would take the thryoid out of all endocrinologists. Then they won't be so quick to judge Do you think we'd get any volunteers?

The thing I read about Armour is that it contains many vital things. One of which is something that are actually the "powerhouses" for your cells. Obviously some of those cells effect your skin cells and hair follicals. That is why we get dry skin and our hair falling out when we our thryoid glands faulter. In other words you get rapid ageing.

I also found out recent discoveries indicate all cells have kind of a little motor in it's walls, like an engine in your car with a stick shift! If that cell doesn't get the information (to pass along to its neighbors) it needs, it will die, or forget what it is supposed to do and perhaps turn against the other cells(cancer).

So in the end Science is discovering that low-life...is really very sophisticated!

The nuerotransmitters in the brain, are particulary sensitive to a lack of T3 because the information interruption effects your thinking...so you notice it more there. The body actually swells while the head shrinks when you are hypothryoid. The brain needs lots of fat in order to stay in good form, but what happens when you are hypo...is much like getting SEVERELY dehydrated. So you get to be kind of like a swollen prune. What you see on the outside is really only a fraction of what is happening on the INSIDE. Pretty whacked huh?

I know...I'm such a geek. But figured I'd share. LOL

~S

 
Old 02-06-2005, 10:45 PM   #11
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Re: Can anyone explain this, re: t3

Quote:
Originally Posted by softcrush
Colleen:

Thanks for the kind response. Yes, I do wish they would take the thryoid out of all endocrinologists. Then they won't be so quick to judge Do you think we'd get any volunteers?

The thing I read about Armour is that it contains many vital things. One of which is something that are actually the "powerhouses" for your cells. Obviously some of those cells effect your skin cells and hair follicals. That is why we get dry skin and our hair falling out when we our thryoid glands faulter. In other words you get rapid ageing.

I also found out recent discoveries indicate all cells have kind of a little motor in it's walls, like an engine in your car with a stick shift! If that cell doesn't get the information (to pass along to its neighbors) it needs, it will die, or forget what it is supposed to do and perhaps turn against the other cells(cancer).

So in the end Science is discovering that low-life...is really very sophisticated!

The nuerotransmitters in the brain, are particulary sensitive to a lack of T3 because the information interruption effects your thinking...so you notice it more there. The body actually swells while the head shrinks when you are hypothryoid. The brain needs lots of fat in order to stay in good form, but what happens when you are hypo...is much like getting SEVERELY dehydrated. So you get to be kind of like a swollen prune. What you see on the outside is really only a fraction of what is happening on the INSIDE. Pretty whacked huh?

I know...I'm such a geek. But figured I'd share. LOL

~S
Now that was some very deep scary stuff..LoL

 
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