About 6 months or so ago my dad had half of his thyroid removed because of a goiter. The biopsy came back negative and that was that. He has had no further testing and is told that having half a thyroid is just as good as having a whole one. My dad suffers from constant pain and high blood pressure that they have had a hard time controlling until now. He just went back to the doctor (quack) because of increasing pain in his legs. He was given more medication. The doc has him taking more medications than I think is reasonable but my dad thinks this man walks on water.
I strongly believe that he is suffering majorly from Hypothyroidism. He gets mad at my mom when she suggests he find another doctor. So, me being his daughter that has a thyroid problem wants to convince him that he needs testing and a good doctor.
I browsed throught the information archives but can't find what I am looking for. He does not know how to use a computer so I want to print out some stuff to show him. I need a site that will tell me how chronic pain, high blood pressure and the like all coincide with thyroid disorders. I need it all spelled out in black and white. No hinting about it, no suggesting it might be related, just point blank says this is this. I think it is the only way that he will understand. I am going to suggest some books for him to read also.
My dad's life depends on getting this information so any help would be greatly appreciated. Thanks in advance!
Oops! Forgot about not being able to post the web addys here. I visit so many message boards (other thyroid sites, US Marine Corps boards, etc) that I forget who does what sometimes.
The doctors have not tested anything as far as his thryroid goes since he has had the surgery. They claim it is not needed. Him being one of those older ppl who don't understand never says anything cause he always assumes the doctor is right.
He was given two new perscriptions this week for his pain. That was on top of all the other meds he is taking. Come to find out, those same two perscriptions were also given to his brother who goes to the same doctor. Something sounds fishy to me and I think it is in my dad's best interest to find another doctor FAST!
He has high blood pressure, degenrative arthritis, had a knee replacement, elbows operated on, thumbs moved or whatever (his hands look like monkey hands now) and the list goes on. He is always sleeping, grouchy as everything, extremely forgetful, cold all the time, and constipated. He used to be a very outgoing person and his appetite was unbelievable. As has gotten older he has gained some weight that we always attributed to age. During our pregnancies, we jokingly compared our growing bellies with his.
Now that I know more of what is going on, I feel like thyroid disorders may have been his problem all along and he is still continueing to suffer because ot the ignorance and stupidity of some of the medical community. .
I will try to google some of his symptoms and see what I get. Maybe I can at least talk him into getting his doc to do the tests and let me see the results.
Make sure they didn't cut his parathyroid glands during surgery and that his calcium levels are ok. If they nicked his parathyroid glands, arthritic type pain is uaually a main symptoms of bad calcium levels as a result of damage to the parathyroids. He needs to have his calcium checked.
Last edited by nastyhashi; 02-10-2005 at 03:00 PM.
Urge him to at least to get his levels checked thyroid and calcium. Usually after surgery they keep checking calcium levels but who knows!
Tell him if he won't switch docs to please get levels checked and see where he is at. It takes a while to get levels normal on thyroid meds and until that is achieved you get tested pretty often. He may be hypo thyroid now.
If you want it spelled out in black and white, here you go:
In your favorite search engine type in "parathyroid symptoms" and see if that sounds like your dad. If not, have him check his thyroid levels but between the blood pressure and aches, it sounds a lot like calcium levels being out of wack due to a botched thyroidectomy and/or parathyroid disorder as a result of the thyroidectomy, which is fairly common. He needs to have his calcium checked to rule it out. Anything over 11 for calcium is not good and low is obviously not good either.
As a precaution, it probably would not hurt to have him take a few tums or calcium supplements each day at a different time than his thyroid meds. Wait at least 3 or 4 hours after taking thyroid meds to take calcium. He might feel better within a few days if its low calcium that's causing the trouble. He can probably also use a nice CMP (Comrehensive Metabolic Panel) to see if he's missing some major nutrients overall....might be mangnesium too.
I just talked to my mom and she is really worried. She said that he acts almost like a little child. She believes that his blood pressure is up again because his face stays flushed. I went over the checklist that I got out of the archives and she said that just about everything on there describes him except for all the female stuff.
Of all the medications that he is on, thyroid meds are not one of them. While talking with my mother, I have discovered about the time all this started. Almost two years ago he had a severe bout of vertigo. So severe that his ent put him in hosp. They did an MRI and that is how they found the goiter. He was told to come back a year later. The growth had gotten bigger so they did the surgery. This ENT has been my dad's doc for quite while. At one point he had high calcium levels which caused bone spurs on his cervical bones that were pressing on his spinal cord. He has had basically his entire spine removed. He has a steel rod in his back and a cadaver (sp?) bone in his neck.
I am really worried about him and my mom thinks that he is going to get mad at me. I am going to try approaching him with my problem and say that I did research for myself and show him what I have found. Hopefully I can make him understand that he needs help or he is going to die. I need to at least get him to get some testing done. I want to try to get him to see a thyroid specialist and not even mention that his doctor is a quack. Maybe if he can start seeing another doctor for his thyroid, get medication and start feeling better, he will leave that other "doctor" behind. Might be wishful thinking but I have to try. I am kind of his favorite so maybe I can get through to him. Gonna try the search on parathyroid symptoms and see what I get. Will let everyone know how it goes.
Last edited by Crazy4ever; 02-10-2005 at 07:23 PM.
The Cal Davis website has a lot of good health information. Here's the URL for the 8 pages its devotes to hypoT. Be sure to click the links on the bottom of the first page to see the other 7. ~
It has a comprehensive list of signs and symptoms; the problem is, that it also states that a partial TT "rarely" requires followup treatment... that the remaining tissue makes up for the absence of the other half. Now to me, "rarely" doesn't mean "never", but your dad may not see it that way.
Another site I recommend is that of Thyroid Australia. At the bottom of this page ~ http://www.thyroid.org.au/Information/Conditions.html ~ it says this: "A goitre is simply a swelling of the thyroid gland. The presence of a goitre is a good indication that something is probably wrong with the thyroid ... The cause of the goitre should be determined before appropriate treatment can begin."
The way I interpret that statement, your dad may have had a thyroid shortage even before his surgery, and so it became worse (or at least, didn't improve) afterward. I also think that April's and Nasty's theory about the parathyroids holds some weight too, and should be thoroughly investigated.
I wish you all the best in trying to get through to him. My own parents had a doozy of a quack MD in whom they placed a world of trust. We kids couldn't talk them into switching, and eventually, the guy did let them both down.
In the end, you can only do what you can do, and accept that some things can't be changed despite your best efforts.
Thinking of you... mw
My dad was busy all day on Saturday so I never got to talk to him. I did print out a bunch of stuff off the internet from the sites midwest suggested and some others. I went through everything and highlighted the important parts. I put it all in a manilla evelope and left him a little note saying that I was doing research for myself and found some stuff that I thought he really needed to read. My mother acted like she didn't know anything about it because we didn't want him to think she put me up to it.
I called him yesterday and talked to him for a few minutes. Told him that I found a lot of stuff that pretty much described him exactly and thought that he needed to be tested. He said that he was tested after the surgery and everything was fine. I explained to him that that may have been the case at the time but he really needed to be tested again. He has to take my mom to the ENT next week and said he will talk to the doc then. This is the same doc that did his surgery. He said he didn't want anyone else to mess with his thyroid except for this ENT. I gave him a copy of the check list and told him to fill it out and take it with him when he goes. There were some other things that he said and did that is making me think that he may be realizing his regular doc isn't all that great. I also told him that since I was put on meds that I am feeling a whole lot better. I am now considering calling this doctor and discuss all this with him so he will know what is going on when my parents get there. I am afraid that they will either forget to tell him everything or forget to ask about it all together!
Thanks for all your help and lets all keep our fingers crossed!
Well, my parents talked to the ENTyesterday and he has agreed that my dad needs more testing. He has an appointment next week. The doctor said for me to quit worrying about him cause he will take care of him. He said that he ran all those tests when he first had is thryoid out and they were all fine, but it has been a while and he showing more signs that it needs to be done again. I hope they do find that he is hypo so he can get on the road to recovery with proper medications and follow up care. I will post again when I find out more information.
Thank you everyone on the boards because without your experience and knowledge, both I and my father would still be suffering at the hands of incompitent doctors.
That's wonderful news!
You obviously said the all right things to make your dad agree to talk to the doctor. And the doctor sounds like a caring and trustworthy sort, which will make the process that much easier.
Fingers crossed for all of you...