Desperate for advice Please help
I have posted to the boards in the past a few times and have not been able to report in the last month because of the struggles I have been going through. I was diagnosed with graves disease on 3/30 of this year and had no idea what a nightmare the situation ahead of me was going to be.
Once I had a confirmed diagnosis, I did come home and research on the net. Thank goodness I found these boards. After 2 or 3 posts, I was convinced that I was going to give the ATD's a try before doing the RAI. Soooo,,,,,, the confusion and long winding road starts here.....
Free T3 7.1 Normal Range 1.5-4.1
Free T4 2.60 Normal range 0.80-2.00
I started on a very low dose of tapazole 15 mg a day split 3 times every 8 hours. Well, i was starting to feel better and 4 weeks into my treatment I started having mouth,tongue and throat pain. I was told by my dentist that it was from mouth ulcers. My dentist then contacted my endo and I was told to stop the tapazole immediately and go to her office for white blood cell count, as she thought it could be agranulocytosis.
My levels were getting better, they were as follows:
After 4 weeks of tapazole...
Tsh <0.01 Normal Range 0.30-3.00 same
Free T3 2.6 Normal Range 1.5-4.1 better
Free T4 0.97 Normal Range 0.80-2.00 better
WBC came back within normal limits, so she couldn't say if it was indeed agranulocytosis andsuggested once again that I should just be done with the meds and just do RAI. She gave me two weeks to clear the mouth ulcers and then I was to go back for a decision in what to do with my treatment.
My mouth never did really clear up 100 percent, but I thought it was getting better. I have to be honest, after all of my research and posts and replies, I am just very hesitant to go with the RAI until my last resort. I have severe hyper symptoms and am finding that with these symptoms I am struggling with making any decisions.
Anyway, I needed to move on to the next step. I started ptu and in less than a week I had severe mouth pain, burning tongue and gums and a sore throat again. Well, this time my dentist said and confirmed by microscope that it was a oral yeast infection. Oh My goodness. I freaked. I have thrush (yeast infection) in my mouth, she said it was probably yeast all along.
Sooo, now my endo says I can try the tapazole again as yeast is not a side effect of tapazole but could be due to something else. I have been on antibiotics 2 or 3 times since January and maybe my resistance is low. Who knows, but I have never had anything like this and i am absolutely disgusted with even the thought of it. Not to mention it is very unpleasant.
Has anyone ever had this? If so, did you ever figure out what it was from.
Does anyone think that the ATD's are related? Or do you all think it was just a coincidence that this all happened at the same time.
Any thoughts, ideas, experiences, advice or help with me understanding what to do. I hope I am making the right decisions by continuing to follow my gut instinct to work with the meds. I hope that this mess doesn't last another day, because I might have to resort to the RAI.
Anyone have positive things to say about RAI?
Okay, I am done. If anyone actually read this novel, I appreciate it with my whole heart. I need help and am at my wits end.