I'm sorry that you continue to go through such hell! Enough already...huh?! You know, like I told you earlier, I did have those tremors in my arms, off and on, but that was before I got diagnosed. After I started taking TR, in a matter of weeks, it went away completely, only to return last year when my T3 levels got too high. When you say tremors, you mean that, like your arm would shake? That's what I mean by saying I had tremors. Now the buzzing sensation that you have, well I had that too. Again, it was before I was diagnosed, but a few times off and on throughout the past couple of years, but I think it was when my levels were still on the hypo side. It would feel so odd, nasti, like a little vibrator was in my foot! I even had that buzzing in the center of my chest before as well, and once in a very private place that I don't care to mention on this board!
(even if you can't see me blushing!) Weird symptoms with these thyroid disorders....some are too strange to even describe, or even impossible to describe! So I guess you could say that before I was diagnosed, I did have both hypo and hyper symptoms too. I would have hot flushes in my neck and face, and pins and needles "shocks" on my neck and face as well. I was actually more hot before I started meds, and then later would be freezing to death. I don't really notice having so many fluctuations since I've started on meds, just feeling very hypo, (more than before) afterwards, till my TSH and Free T4 got to a near normal place.
I feel so bad for you, as it sounds so miserable, and then not knowing if you are truly hypo or hyper, well..that just has to be so distressing for you.
My cousin, who had Graves, well she had the RAI and just was sick as a dog, went through the RAI, and was just fine in a matter of a couple of months. That was like 8 years ago, and she hasn't had any problems with her levels, her meds and everything is beautiful for her. I should've been so lucky! She encouraged me to do the same, (have RAI) which I didn't want to do untill my levels came to a good place, first wanting to see if I'd be okay then. (which so far so good) But I really didn't have any wild fluctuations since I started meds....just hypo, everything slowed down, and painful at times. I feel like if I WERE in your shoes nastihashi, I might just seriously think of going with the RAI. Then you you could start meds without the fear of going hyper, and having all of your symptoms getting worse. I really don't know what else to offer...I'm not that gifted in these thyroid matters, only knowing where our levels should be. You must have some high antibodies? It was you who has both hypo and hyper diagnoses? (I never even knew that was possible, before I heard that from you). You do sound as if you are more hyper than hypo though, with the elevated temp and racing heart and all. Did you ever try the meds? What happens when you do?
My heart goes out to you, and prayers too. Hang in there girl...