I just got off the phone with the nurse (who by the way is soooo nice and knowledgeable I felt) with a 2nd opinion on my TT. I have set up an appt for July 1, before my scheduled July 7 surgery. This doctor also is a onolaryng.... whatever and specializes in tumors of the head and neck. He does a lot of thyroid surgery and they have a "thyroid board" at the university that evaluates everything. COOL!!! This is from the University med center here in town and I was able to ask her a few questions, from which she pulled out some reference sheet and read to me.
I asked her about "follicular lesions" - Can they always be sure they are benign. She read that in 80% of follicular lesions, they are benign and that 20% are not, that surgery is required to be sure. She agreed that my path report should have read "benign appearing" and not benign.
At any rate, she asked me to bring all my films, records, etc. with me to the appointment (my other surgeon didn't ask for my films, U/S...). She said the doctor would probably have them sent over to their "thyroid board" which consists of like 3 endos, radiologists and pathologists that understand the thyroid. I may actually be able to get a trusted opinion from this source, not that I haven't trusted others - it just seems dr's are not on the same page regarding "follicular lesions". I am sooo excited to be able to get this second opinion of expertise!!!
She also asked if I had any MRI or CT's which, I haven't. I would love to have one in helping me make this surgery decision, but I really hate running up the medical bills. Let me also say, I am not against or for the surgery, I just want to be sure I make the appropriate life long decision. Sooo, I will keep you and others posted on the final reports from 4 endos, 2 surgeons, 2 pathologists, and a bunch of radiologists on their opinions of "follicular lesions" and maybe, just maybe, there will be some sort of conclusive answer. I'm sooo excited! Take Care!
This is soooooo exciting. I am so glad for you that you have some options. I also feel better knowing that the path who did mine ( very small town) said that this "follicular lesion" did not mean cancer but said there was a whole host of other factors that go along with the path report. Maybe he did know more than I gave him credit for.
I would love to be able to do something more with my situation and have an appt next week with my pcp to try and get her to refer me to a specialist. I think back in the day it was easier for dr's and such to give you a report and you took it at face value because there was no internet to start looking up your own info.
I also think it is HIGHLY unfair for these dr's to say we should just "accept" that it is ok and not worry. There is NO way to not worry when you have this thing in the back of your mind saying what if I have this diseased thing in me and nobody knows it!
I couldn't thank you enough for taking the time to post all the info that you did and I am so looking forward to all your information.
I am keeping you in my thoughts and prayers and will hope for a speedy recovery with all good news.
Thank goodness for this board, I don't know what I would have done with this info and then when I had you to come too with the same path report it so eased my mind.
I would be happy to print off your path report and ask what is the difference here in our two? Our reports read slightly (and only slightly) different, and I would love to know why we are getting such different recommendations. I know you have posted it prior, but if you wouldn't mind....
I too, am so glad I found this board. It has alleviated a lot of my concerns, but more importantly has answered and brought up a lot of questions for me. Both of which are imperative to achieving optimum health! That is, after all, what we are looking for.
Stay bright eyed, seeking, knowledgeable and empowered! I too will pray for everyone on this board who is simply looking for good doctor advice. I think it helps to take along a loved one, who can be more objective and distant, than we are. Wish I had that someone. All my husband talks about is the medical copays - about 10 - $30 copays (just wait), instead of asking me about the facts or educating himself. I do not have a husband that is supportive. Everyday, I hear about the bills and he has never once, mentioned the surgery schedule. I haven't even told him about the second opinion for fear that's a no win situation!
How could I ever thank you for offering to print off my path report. That would be great! Do you need me to retype it or do you know where I typed it before, just let me know.
Thanks for being such a good friend and advocate in all of this. I am so incredibly sorry that you do not have a supportive husband, I really am. I hope I can offer you as much support as possible through this journey. I know it is not a husband's support, but I am here as a friend for you and anytime will answer or listen to anything.
I am keeping you in my prayers and I also think of you quite often and wonder how you are making out with all of this and how you will do with your surgery.
Please keep in touch and again, THANKS for offering to have someone "good" read my path report!