What would you do?
So, I have come to ask for advice. I am in a bind and don't know what to do, so I figured that I would ask those of you who understand...
My symptoms say hypo to me: memory problems big time, sluggish, no energy. I also have some symptoms that still confuse me-- a derealization sensation when I'm feeling bad, along with disorientation sometimes. A lot of the time, I feel like my brain has absolutely no activity. It's like not a single neuron is firing and I just sit there and stare. It's like when you're tired and you just sit there and stare, but I do it most all the time. I also have no recall and cognitive processing. I can honestly say that I feel like I have dementia and I'm only 25.
The conflict: My labs (at least to every endocrinologist, including my current one) say HYPER. On 6/6 I had these labs:
TSH 0.01 (0.45-4.5)
FT4 1.9 (0.8-1.9)
FT3 2.2 (1.8-5.4)
At the time of my labs, I had been on 100 mcg Synthroid and 5 mcg Cytomel for at least 5 weeks.
The dilemma: My endo wants me to decrease my meds because my TSH is "too low". I have been on 88 mcg Synthroid and 5 mcg Cytomel for 4-5 days now and starting yesterday, I feel like absolute crap! I don't even have the energy to fight my endo at this point. I am at a complete loss as to what I should do. I am starting to get desperate. I feel like we may be going in the absolute wrong direction with my meds.
I often wonder if this is even my thyroid causing my problems. My boyfriend says that it seems so weird because I will have some good days and then I will have some bad days. He just doesn't understand why it would fluctuate so much if I am taking the same dose everyday. To be honest, I don't really understand why it would fluctuate so much either.
I am so discouraged and don't know what to do next. What would you do?