Wish I could help you - so awful to go thru this for so long! Good luck in getting a good Doc that will work with you!
When you find your web site info you might want to post it in the Information Archive. Someone was complaining about all the websites were old on there - and some are. The don't let you post some web sites.
Read the rules, just in case. (I'm not sure what they include as ok
- I've seen a lot of commercial sites listed on other health boards here.)
It would be nice if you include a sentence of WHAT information the site contains.
AND - thanks for all the info!