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Old 02-04-2006, 03:39 PM   #1
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Complicated < You Will Understand (question) Please Answer>

Hi, does any one know if there has been a survey or research into, natural medication (Armour) and synthetic medication (levothyroxine), the comparison and contrast between them.
What I am trying to say, is there any evidence that you live a better quality of life with the natural medication, i.e. don't die of complications connected to the thyroid, is there evidence that you live longer on one or the other. Do you still have the symptoms; if you are taking Armour or levothyroxine (I know you do with synthetic as I still get symptoms)

I live in the UK and wish they just did more research into this, we can't have any other option of medication other than Levothyroxine, we don't get our adrenal glands tested, before being put on thyroid medication, we don't get a test for Free T3 ect, they are useless over here.

I am currently trying to form a thyroid meeting group or something, I want so much to spread and make Thyroid issues and Hashimoto's known here in the UK, I don't understand why we can't have the same options that people have in the US, there is rarely any choice of having a TT even if the removal would make the persons quality of life better, I just want to HELP other people in the memory of my mother...

I want to learn enough, so perhaps I could make a difference here in the UK, change laws or something, I don't fully know, I just want to be able to help people who don't even know what a thyroid is, then they get diagnosed with something like Hashi's hypothyroidism, and the Doctor who knows nothing himself says here's a pill (Levothyroxine) take it once a day for the rest of your life, follow instructions on the box and away you go, and oh yeah there will be a re-test once in a while to make sure you are in the "normal range" even though there is no such thing, as we are all different, and if there is a "normal range" in my opinion it isn't even right, from the research I have done anyway.

Sorry that was a little of track, and I am sorry if that didn't make much sense, I am Mandy's son "Kieren" (Kiz) I often come on here to help my Mum 41, as she id not to good with typing and spelling, I just wrote this question and included some of mine and her opinions, IF any of you could reply I and my Mum would be grateful.
I really want her to go through with, making a difference in England on thyroid issues, I see her suffering from the symptoms, and want to make her quality of life better. The Doctor's here seem to not give a damn though. I am sure you know what I mean, you will be speaking through me for a while now as I am sure you can understand what my Mum is going through, with the death of my (so loving, caring and gift to the world) Nan. Her Mum, I am currently helping her write a story to post in the Death and loss forum, which will be posted in the next week, I will inform you when.

All I can say, is God Bless the person who created this site, and God Bless the people who help out each other so much, I don't thing many of you realise what a great big help and support you are, some of you on here really need gold medals, I just hope My Mum goes ahead to make so many peoples quality of life better, I will be here with her all the way, always supporting her...

I am so sorry I have gone quite off track here, just hope you can find what I originally asked, the question my mother asked me to post.

On behalf of MAD MAZ (Mandy) xxx
Kieren ....

There are so many questions I would like to ask, I hope I can get round to the
Thanks again (Big smiley face)

Hope I am accepted just as well as my mum was thank you greatly for helping her, you are saints. (She will still post don't you worry, like I said I am just helping) xxx

Last edited by MAD MAZ; 02-04-2006 at 03:48 PM.

 
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Old 02-04-2006, 03:54 PM   #2
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Kieren... what a wonderful son you are ,your mother must be very proud of you and your lovely nan. Im in the Uk too and l think we have it bad compared to some other countrys. Your Mam needs some time right now to come to terms and grieve for your wonderful nan, l havnt lost my mother but l have lost my dad so l have some idea of what shes going through they say time is a healer and it is but its a slow long travel down a long uncertain bumpy road..im sorry l cant help you with your question about armour and levothyroxine just tell your mam everyones thinking of you all, we are all here in our own way and can relate somewhat , the best way to start a group is to ask at your local hospital or gp surgery and if theres a group in the area they will tell you, if not they can give you some idea of what to do. Take care Kieren and take care of your lovely mam xx thinking of you all

Last edited by niecsey; 02-04-2006 at 03:57 PM.

 
Old 02-04-2006, 04:17 PM   #3
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Niecsey; you put a wonder smile to my face when I just read your reply, thank you. I will certainly ask the local hospital for some help, I really can't think of much else to say, other than thank you again, I certainly will leave time for my mum to grieve her wonderful loss; my Nan is mostly likely looking down right now and saying, "Why are you moping around the place? have fun" She was always the one to say have fun with your self, even though she couldnít not get out the house her self, like I said, I (and my Mum) will be posting her story shortly on the other forum. Feel free to read when it is there. Thanks again. Kieren

P.S Is there any good Doc's up north, "mam"...?

I will keep you posted...

Last edited by MAD MAZ; 02-04-2006 at 04:18 PM.

 
Old 02-05-2006, 01:42 PM   #4
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Hi Keiren x couldnt tell you if theres good docs up north as you know when your with the nhs you get what your given!! ive no complaints really with my docs . The stress of what has happened will make your mam feel worse it cannot be avoided and she has had alot of stress before your sad loss too. I really really hope things get better with her asp thinking fo you all xx take care

 
Old 02-06-2006, 11:28 AM   #5
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Thanks for you reply Niecsey; it's really appreciated, yeah I understand what you mean by "you get what your given with the NHS". But you'll never guess what my mother has done, she has started paying for me and my yonger to go private. I really want her to go private, but she says she can't afford it. Hi lovely is that, the sooner I can persuade her to go private, and make sure she gets some tests done for her Adrenal glads and Free T3 ect.
It is such I sad loss, the funeral is this Thurday so you can gather how manic it's been around the house...

Thanks again... xx Kieren xx

P.S If anyone has an answer the the question I first posted, I would be highly greatful, Please reply someone. :-!

Thanks again, hope everyone is OK Kieren.

 
Old 02-06-2006, 01:27 PM   #6
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Shes obviously a very loving caring mother and doesnt want any of you to suffer like she has. Ask her to go private herself util shes sorted then say she can do it for you too when shes well. Do you have a thyroid problem too? I will think of you all Thursday take care of one another xx

 
Old 02-15-2006, 05:31 PM   #7
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Thank you again for your reply Niescey. Well now Thursday has been and gone now (2nd) all I can say was the service was wonderful I don't think it could have gone any better. It has still been a little hectic though, that is why I haven't replied to you for such a long period of time, Mum had an ultra-sound scan Tuesday just gone, which came back clear; of which I believe you probably already know about... Mum has to have more tests because they found nothing wrong with the Gall Bladder although the pains she is having could be due to gall bladder dysfunction or something to do with the Bowel; all I can do is try and keep her calm and get her to relax, until the 22nd... Still grieving over the loss of her mum and my Nan I can only hope she comes back all clear, and that perhaps one morning she just might wake up free of pain. (Prayer).
As for me I am missing my Nan more than ever, and I do not have anything wrong with my thyroid; as yet anyway they do say that thyroid disease is inherited, although believed to have been passed down in my family it runs on the women side as Thyroid related illnesses do. I then can only hope that my sister does not retrieve the disease.
I just wonder and sometimes find it hard to believe that the pains my mum is having at the moment has anything to do with the Thyroid although this factor is highly probable, because Mother always used to be on the go before she got Hypothyroidism. Could her pains be a sign of a second autoimmune disease, or could they still be related to symptoms of an underactive thyroid? Who knows?

Thanks for your reply yet again,

Yours Kieren. I will post when I get a chance or two.
X

Thank you for the support you are giving my mum she talks about how wonderful the people are on this site

Last edited by MAD MAZ; 02-15-2006 at 05:33 PM.

 
Old 02-16-2006, 12:36 AM   #8
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Kieren,
I hope your mum's ok, it's so hard being ill while you're dealing with a loss like that... makes it feel like the whole world is against you - you sound to be being very supportive, she's very lucky to have you!
keep an eye out for thyroid symptoms appearing, I'm hypothyroid and I got it from my dad - not sure if hashimoto's can be passed down the family the same but I know mine is my dad's fault (and let him know it haha!)

Becky

 
Old 02-16-2006, 01:52 AM   #9
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Hi Kiereon

How are you ?,, My name is nina and i was reading your post and it was very touching, i really hope you mum is well.

I am from the uk, i am only 25 but i have had a terrible time, I see one of the top thyroid doc, they are advertised on about.com, they are lists of the best in the world including the UK,,
Since going to see one of the best, i am now on T3, The proffessor i see is the very best, he did every single test possible...
I have been to see so many consultancts is the uk,, and believe ot or not most of them didnt even know what t3 was, so it was a nice suprise when i went to see a proffessor, he was open minded and actually listened to me and didnt fob me of, and he was willing to help me, he didnt just look at my test results, he investigated further thats when he found that my t3 was very very low,,, so he prescribed it to me, ,, so it was such a relief after years and years of getting no where and feeling so depressed and low.

We are all here for you and with the help and support i have every faith that you will get there in the end,

If i can be anymore help, please post me a thread..

Take Care NINA x

 
Old 02-16-2006, 02:15 AM   #10
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Hi Kieren x dont worry about not replying l know where you are in the great field of things right now and answering me aint a priority........ the people here are fantastic its helped me loads of times knowing your not alone is a big weight lifted from your shoulders and theres always someone whose been there done that got the badge and tshirt Your Mam is so lucky to have such a caring son she must be really proud of you, you will all come through this stronger people although nothing ever feels the same after such a loss but you will all cope its early days yet my dad died near xmas and at least 5 went past before l enjoyed xmas again there is always a feeling of someone missing at xmas though more than other times l think of my Dad at least once a day doesnt matter what im doing whether its for a split second or a few minutes. Stress has a massive impact on the body and if your already sick well it manifests itself in a hundred ways aches and pains for example. I really hope your mam gets her thyroid sorted asp and can continue to mend take care Kieren xx

Last edited by niecsey; 02-16-2006 at 02:16 AM. Reason: typos........... l type to fast!

 
Old 02-16-2006, 06:30 AM   #11
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Nina221

Hi Nina, I live in the UK and am looking for a good Thyroid specialist, can you let me know the name of your consultant who is doing such a good job for you.Thanks

 
Old 02-16-2006, 08:33 AM   #12
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Nina

Thanks, I will find his name on the net


Keith

 
Old 02-16-2006, 01:31 PM   #13
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Thank you to all of you for your replies. Nina, I have done what you have said, and found some specialists, who I am going to get in touch with, at some time.
Liverock, just a question, do you yourself have a thyroid related problem, or is it a Cholesterol problem. I would like to know thanks; I may be able to help. Do what Nina said and I am sure you will find the specialist... Why is it that you need a specialist anyhow?

Thanks Kieren.

 
Old 02-16-2006, 07:35 PM   #14
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Hello,

Haven't found anything on comparisons of different thyroid medications. I have read that it is really dependant on the individual. Some people do better on one med while others do better on another. It's more of a trial and error to find out which one works well for you. This is something that has to be worked out with your doctor.

As far as quality of life I have also read that there are a lot of different supplements that could assist in improving one's quality of life with Hashi & Hypothyroidism.

I have been diagnosed with Hashi & Hypothyroidism myself and have found a pretty good book that I would highly recommend, "Living Well With Hypothyroidism" by Mary Shomon. The author covers subjects on conventional and alternative treatment. I'm finding it quite informative.

 
Old 02-17-2006, 05:01 AM   #15
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Re: COMPLICATED < YOU WILL UNDERSTAND (QUESTION) PLEASE ANSWER>

Quote:
Originally Posted by MAD MAZ
Liverock, just a question, do you yourself have a thyroid related problem, or is it a Cholesterol problem. I would like to know thanks; I may be able to help. Do what Nina said and I am sure you will find the specialist... Why is it that you need a specialist anyhow?

Thanks Kieren.

Thankyou for your interest Kieren. Like a lot of people I have been bounced around a few so called specialists after suffering what I now know as a burnout through job stress.

My GP was useless and insisted initially that the fatigue I was suffering from was all in my head. When he had run the full gamut of drugs he insisted on giving me, which took about 2 years, with my fatigue and brain fog getting worse, he finally sent me to an endo doc who was even worse. He insisted there was nothing wrong with my adrenals or thyroid without even doing any hormone tests!
Instead he sent me for an mri scan because he interpreted my brain fog as a possible tumour.

After this I knew I would have to start learning about adrenals and the thyroid myself. I had some saliva hormone tests done and they confirmed low cortisol during the day as well as low testosterone and a Basal Temperature Test showed I was no higher than 95.4 F first thing in the morning. So I concluded that I had a mixture of adrenal and thyroid problems. After badgering my doc to send me to another endo he agreed and this specialist turned out to be not much better than the first.

He dismissed saliva testing as a con but he did at least do some hormone blood testing which showed both thyroid and adrenals to be just scraping in at the bottom of the scale of acceptable.
He didn't believe in adrenal insufficency, you either had Addisons Disease or you did not and told me that he couldn't do anything for me.

Thats where I am at the moment still looking for an endo who realises that the bottom end of acceptable can still leave you absolutely shattered most of the time. I have improved a bit with supplements such as vitamin b5,C,CoQ10,Korean Ginseng etc, but have almost given up hope that the medical profession can do anything for me.....

Keith

 
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