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Tongue Problems

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Old 02-14-2006, 07:39 AM   #1
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Tongue Problems

Does anyone get sores on their tongue or a sore tongue due to thyroid? I can't figure out what is going on with me and it's been going on almost a year, I started getting sores on my tongue very shortly after a was diagnosed with Hashimotos and every doctor I see says it's nothing to worry about and it's something that will just come and go. Well it really bothers me, I constantly worry that something is very wrong with me. Any advice would be helpful. It's always comforting to know that someone else is going through what you're going through.

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Old 02-14-2006, 08:08 AM   #2
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Re: Tongue Problems

Before I was diagnosed and all through my adjustment to med period, my tongue burned constantly. My mother was hypothyroid, too. For years before diagnosis, she perceived a salty taste in her mouth. She may have actually been sensing that burning feeling and had equated that with the burn that salty foods make, more so than the actual taste of salt... but I'm just guessing. Individual brains perceive the signals from far away nerves in individual ways.

The soreness - and sometimes swelling - has to do with a build-up of muccopolysacharrides in the tongue and other tissues that happens with hypoTism. You may see ridges on the perimeter of your tongue due to swelling. You may even bite your tongue more often while your thyroid levels are low.

When I told my present doctor about the burning, he said he hadn't heard of that being a hypo symptom before, but he thanked me for teaching him something. How cool is that?!? He's an doc. My mom consulted at least 4 doctors and a dentist about it; they all told her it was in her head. The final one she saw told her to see a psychiatrist. She was the kind who believed in doctors instead of educating herself, so she finally gave up and lived with it until her thyroid failed enough that she was finally formally declared hypo.

Last edited by midwest1; 02-14-2006 at 03:29 PM.

Old 02-14-2006, 09:15 AM   #3
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Re: Tongue Problems

yep i get sore tongue when my levels are low! almost always coincides with thrush type soreness elsewhere as well which is a treat

my tongue goes a sort of yellowy colour and gets red sore patches on it which slowly spread and eventually just disappear, they often have white edges as well. the red patches are really sore and sensitive to acidic stuff, there goes my salad dressing and wine drinking until it goes away :/ I looked into it and it seems to be a condition called geographic tongue which other people on this board have reported having as a symptom... may be contributed to by my tongue swelling slightly (hard to tell if it's swollen or not, how can you tell?) and me catching it more easily with my teeth starting the soreness off... hmmm

The only thing that I've found that helps is using listerine mouthwash, that stuff could kill anything I reckon


Old 02-14-2006, 12:10 PM   #4
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Re: Tongue Problems

I was researching Hashimoto's and I stumbled upon this information...

"Less commonly, Hashimoto's disease occurs with hypoparathyroidism, adrenal insufficiency, and fungal infections of the mouth and nails in a condition called type 1 polyglandular autoimmune syndrome (PGA I)."

Old 02-14-2006, 02:54 PM   #5
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Re: Tongue Problems

Very interesting, is hypoparathyroidism treated differently? I'm on synthroid.

Old 02-14-2006, 02:54 PM   #6
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Re: Tongue Problems

I've gotten that occasionally over the years, and for me, I found out it is a deficiency in a b-vitamin. I just start taking a b-complex and it goes away. Then I quit taking them, months later my tongue burns again, and I start the b-vitamins again. You'd think I'd learn to continue my vitamins, but when I feel bad, I usually back off of almost all things I'm taking.


Old 02-14-2006, 03:29 PM   #7
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Re: Tongue Problems

Interesting, Karen. Hypos are frequently B-vitamin deficient.

Old 02-15-2006, 11:16 AM   #8
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Re: Tongue Problems

I take liquid B-vitamin and my tongue is still swollen. I bit it the other night in my sleep so noww it hurts! I do not get any burning. My tongue has the ridges (scalloped)around the edges (from pushing against teeth), red spots and a white film. My saliva gets thick and I feel like I have dry mouth. I can also feel it in the back of my throat. I have not had any sores for a while but I use to get canker type sores. When I increase my meds it goes away for a week or so as do my other symptoms. But once I adjust they come back. The last endo I saw tols me that swollen tongue is not usually associated with thyroid. However, the MedlinePlus Medical Encyclopedia does list myxedema (hypoT) as a cause for an enlarged tongue.
Yup.....looking for another endo......


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