I've been experiencing mild pain in my right cheek for two weeks which initially was brought on by eating hot food in the mornings. It started out like a mild trigeminal neuralgia with a sensation going from my mouth and spreading to my ear. As this is progressing, just chewing anything is bringing mild pain (almost like a mild cramp) and it's happening later in the day as well. I'm going to the dentist soon for my six-month checkup, but I really don't think it's my teeth as this morning my left cheek is now also starting to hurt.
The feeling in my face reminds me of the swollen gland feeling I had after my RAI treatment for cancer (four months ago). I saw my endo last week, and he just advised me to go to my regular doc as "it's nothing with the thyroid."
Seems like it would be unusual to get trigeminal neuralgia on both sides of the face simultaneously? I certainly hope that's not it, my mom had that and it's a bear.
- if it IS trigeminal neuralgia - could it be triggered by falling thyroid levels? Are you on enough thyroid hormone? Just thinking because carpal tunnel syndrome can be triggered by hypothyroidism - swelling and other changes in the tight space of the carpal tunnel causes squeezing of the nerve - and perhaps a similar process could result in squeezing of the trigeminal nerve?
- does it seem as though your salivary glands are working properly? I know some people have had problems with them after RAI? Perhaps that's where the pain is originating?
Yes, the TN does seem unlikely now being on both sides of the face because that's not usually the way it occurs; and, fortunately, it's not painful enough.
As far as the salivary glands, I did lose my sense of taste for about a month after the RAI. Currently, I do seem to be having a strong taste of salt in my mouth once in a while after eating something that's not salty. Strange.