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Old 04-26-2006, 09:46 AM   #1
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Whats a good way to find a new pediatrician

I have finally had enough today. My daughters doctor said that she is a normal child that she feels just handles pain differently. She says that everything that could be done for my child has been and that I need to quit worrying. Meanwhile-my child is suffering. The doctor says that just the clue that she has good days means that she is at no harm. She said that we need to quit babying her.

How should I go about finding a new pediatrician that specializes in thyroids, autoimmune disorders, and rhumatology. I appreciate all the help.

Chris

 
Old 04-26-2006, 10:06 AM   #2
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Re: Whats a good way to find a new pediatrician

Quote:
The doctor says that just the clue that she has good days means that she is at no harm.
Actually this experience is extremely common in any number of serious diseases.

IME the majority of general peds will say what you heard, to parapharase, the only problem is in Mom's head, when they've run out of ideas. So, you're right, time to move on, you won't get much more where you're at.

Ped. endocrinologists tend to be even more "stuck in the box" & unwilling to treat by symptoms than endos for grownups are. Hopefully there are a few exceptions to this rule.

The time-honored methods we use as adults to find a new doc are:

1) networking in our community for patient/parent testimonials. The mother-of-a-friend-of-an-acquaintance sort of thing.

2) telephone interviews/screening with a short list of selected questions.

3) researching lists of specialists. A public library reference librarian may be able to find you a list of researchers and/or specialists in the USA who might be interested in your daughter's case.

4) consider Mayo & similar diagnostic-specialty facilities

5) when failed repeatedly by conventional medicine, many adults turn to naturopathic or DO doctors with good results, but how many of them see kids?

Hopefully there will be other good advice forthcoming from the group.
Best wishes.

 
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Old 04-26-2006, 10:40 AM   #3
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Re: Whats a good way to find a new pediatrician

The MAGIC Foundation is a support organization for families of children affected by growth disorders. Congenital and/or autoimmune thyroid disease is one such disorder. Their website includes information on pediatric hypothyroidism, and they maintain a 1-800 phoneline to assist parents in finding an appropriate physician. I suggest you give them a try. The URL to their webpage which includes the phone number is ~
http://www.magicfoundation.org/www/docs/905.890

Also, you can call every teaching hospital within the boundaries of your ability to travel. Mention specifically the likelihood of pediatric Hashimoto's disease so they will know not to guide you to a ped endo specializing in diabetes only... Or more likely, they may provide only names, addresses, and phone numbers; then you will have to ask questions of the office staff at those locations. If you don't get a good feeling from any of those you talk with, I would say to trust your instincts and move that office to the bottom of your possibility list and call the next one on the list. (You can always backtrack there if you get no help elsewhere, but no need to waste time at the beginning.)

I'm glad you've given up on that idiot of a ped'n.
Years ago, my SIL was told that she was being overprotective about her newborn's hypersensitivity to sunlight and continually-watery eyes. She was given salve as treatment for a blocked tear duct, which didn't improve things at all. SIL had four other children and was wise to trust her maternal instincts that something else was wrong. On her own initiative, she took the baby to a ped ophthalmologist. Baby was found to have congenital glaucoma and would have been blind within a short time if SIL had listened to the ped'n pooh-pooh her concern.

Please let us know how things progress.

 
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