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Old 05-04-2006, 03:04 PM   #1
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MOMOFBOYZ HB User
Back From 1st Endo Appt!!!!!!!!!!!

Hi ladies! Guess what? I just got back from the endo and he took one look at my labs and put the tpo with the rest of the levels and said there is no doubt about it I have Hashi's!!!!!!!!!!!!!! I am so exctied to have been helped. I paid cash 235.00 to be seen but it was worth it. He even gave me free samples for 6 weeks.
Thank you all for pushing me to go to specialist. I have been so very sick and it has been hard doing anything. Sudufu, you told me they will put the labs together with the tpo and it will steal the deal. You were so right. He said it was a no brainer.
I go back in 6 weeks. He didn't exactly rule out fibro but says the thyroid can d*****ately cause most of my problems. Though he said he never saw anyone limp as bad as me
Thank you all for your help. Give me five minutes and I will have a whole bunch more questions.
Bye for now
Deena

 
Old 05-04-2006, 03:27 PM   #2
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midwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB User
Re: Back From 1st Endo Appt!!!!!!!!!!!

Quote:
Originally Posted by MOMOFBOYZ
Sudufu, you told me they will put the labs together with the tpo and it will steal the deal. You were so right. He said it was a no brainer.
Um... actually that was me, but I'll let it go. Maybe it was an episode of brain fog?

I'm so happy for you! It's like I and several people have said in the time I've been here.... It's amazing how happy a person can be to have a diagnosed illness. Crazy, isn't it?

 
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Old 05-04-2006, 03:33 PM   #3
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Re: Back From 1st Endo Appt!!!!!!!!!!!

Sorry Midwest1, You are absolutely right. I knew I should have gone back to check, But your opinion just kept going on over and over in my mind. Even on the way home. Thank you for your suggestions and support. I feel like colapsing. Hey, what time of day should I take the meds? Only 50 mg of levoxil? Does it matter if you eat or anything first.
Now maybe I will get well and start to loses some weight. Put on 7-10 olbs in last month or so Just in time for bathingsuit season.
Bye and thanks again
deena

 
Old 05-04-2006, 03:51 PM   #4
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Re: Back From 1st Endo Appt!!!!!!!!!!!

Hi Deena...thank goodness you got a diagnosis and a good doctor to take care of you...i am also taking Levoxyl and i am doing good on it...i was told to take it in the morning an hour before having breakfast...please let us know how you are doing in the morning!

 
Old 05-04-2006, 06:28 PM   #5
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Re: Back From 1st Endo Appt!!!!!!!!!!!

I'm too much of a newbie to KNOW anything. But your labs, TSH & t3, were too far off the mark to be NORMAL, (one HIGH other very low) so I knew SOME THING was really wrong.

GLAD you got a dianosis & a Dr who knows his head from a hole in the ground. Hope things are FINALLY on a good, right path for you Deena (((happy hugs)))

Midwest? I don't understand Hashi's (will go do some research) and the benefit to being dianosed Remember someone asking ME that question (if I had Hashi's) way back when

tpo =

 
Old 05-04-2006, 07:08 PM   #6
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Re: Back From 1st Endo Appt!!!!!!!!!!!

I am so happy for you Deena!! It DOES feel good to be dz with an illness - now you can get some help!!! That $235 would have been about 7 copays to try different docs til you get a good one. It is worth it in the long run. Now, you can eventually get your life back - and enjoy those little boys! They grow up so fast!!!!

Take care.
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Old 05-04-2006, 07:47 PM   #7
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Re: Back From 1st Endo Appt!!!!!!!!!!!

Deena,
I haven't signed on to this board for a few months, but tonight when I saw your post, it jumped out at me. The numbness you have written about caught my eye. One year ago, I was experiencing the EXACT symptoms you are describing. Brain fog, EXTREME fatigue, (could hardly hold myself up in a chair), heart palpitations, aches and pains, and a numb tingling sensation in my hands feet. In June of 2005 I was diagnosed with Hasimoto's due to an enlarged thyroid and elevated TPO. I started taking thyroid medication. Thyroid disease runs in my family along with some other autoimmune diseases so I wasn't too surprised. Several months later, though, when the symptoms had still not diminished (especially the numbness which had spread to my entire body) I went back to the doctor. I was treated like a complaining baby and told to see a neurologist. When I went home, I got on the internet and started researching for myself. I found information about another autoimmune disease (which runs in my family) called Pernicious Anemia. It has many of the same symptoms as thyroid disease. One of the symptoms, as the disease progresses is numbness/tingling in the hands and feet. The cause of the disease is a lack of Vitamin B-12. People with this disease do not absorb B-12 like normal people do. The cure is so simple, take vitamin B-12 shots or take B-12 sublingually (under the tongue). Since I was desperate to feel better and had nothing to lose, I started taking Vitamin B-12 sublingual. Within one month, ALL of my symptoms were gone! Itís been 9 months and I am totally symptom free. I cannot believe how good it feels to feel good again. I donít know if this might be your problem, but itís sure worth a try if nothing else helps. Itís a very easy fix for some awful symptoms, that if left untreated can cause neurological damage.
Patty - Riverside, CA

 
Old 05-04-2006, 07:57 PM   #8
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ritz224 HB User
Re: Back From 1st Endo Appt!!!!!!!!!!!

Deena,
I was also just diagnosed with Hashi's just yesterday and it feels great to finally know something! You sound like i was, just bouncing off the walls! My friend even joked that we should have a "finding out i'm sick, party"
It really can lift your spirits to finally have someone take you seriously. Good luck to you in the future! Ritz

 
Old 05-04-2006, 10:19 PM   #9
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MOMOFBOYZ HB User
Re: Back From 1st Endo Appt!!!!!!!!!!!

Thanks everyone for you resonses.
PinkPrincess, Thanks for advise on meds. I will atke in the morning.
Sudufu,Yeah, Endo said the tsh should really be between 1 and 2. I nearly passed out. Said so many prayers to hear this.
Illmakeit, Yes, the money was soooo worht it. I didn't even flinch. My kids do need their old mommy back. Took then to Baskin Robbings right after appt. Of course I am still do the shuffle!
Trish558, Thank you for sharing your story. I am glad you were healed. How were you tested for B12? Would it show up on regular blood work? I have had my share. I'll check this out for sure!
Ritz224, I was so happy I felt better right away. Just knowing their is a light at the end of the tunnel!
Thank you all for everything. I do have yet another question.
My Dad called tonight to share that his wife has the same thing. That Hashi's is only hypothyroidism. And she has been ob synthroid for two years. It's not that bad so to speak. I felt like they were trying to sya I am making it worse than it really is. ANd too sick and tired to argue. But what really is the difference between Hashi's and hypo???? Just the autoimmune?
Thanks you guys!!!! SOmeday I promise to help other hypo's out, ok???
Goodnight
Deena

 
Old 05-05-2006, 02:08 PM   #10
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Archie343 HB User
Re: Back From 1st Endo Appt!!!!!!!!!!!

I'm a newbie, too, but it seems hypo is a condition with many possible causes, one of which is Hashis.

As for the comments from your dad I wouldn't worry too much about it or overanalyze. You may be right about the motive but there's nothing to be gained from worrying about it. Everyone is different--maybe she didn't suffer like you did or maybe she was able to suffer in silence. Who knows? Either way, you are you and she is someone totally different.

Congrates on the new doc and dx.

 
Old 05-05-2006, 02:27 PM   #11
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illmakeit HB User
Re: Back From 1st Endo Appt!!!!!!!!!!!

Sometimes we parents of grown children don't think before we speak, or just don't have the information our kids do. My Dad does this a LOT, so perhaps part of it is just a man thing - like the male doctor treating the female patient differently. You might get some of the info together for him to read. Perhaps that will help the situation. It IS difficult when your parent or spouse doesn't seem to believe you. Also, point out that we are all different, and it is affecting you differently than ANYONE else.

I feel for you. I know how it can hurt.
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Old 05-05-2006, 03:07 PM   #12
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SoManyFeelings HB User
Re: Back From 1st Endo Appt!!!!!!!!!!!

Hi Deena

Wow oh Wow!! There's certainly light at the end of the tunnel!! I'm so happy for you and thankful that there's so many helpful friends in here to help you get through all the torment of pain you've been feeling these past months and to help give you faith in to keep going until the right dr. saw your bloodwork and symptoms of pain. "YOU GO GIRL"!! Bye now, Marty

 
Old 05-05-2006, 07:15 PM   #13
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Re: Back From 1st Endo Appt!!!!!!!!!!!

Hi Deena,
The first lab work I had done to test my B12 level did not show a deficiency. Many times that is the case. Unless a doctor is very well informed about the disease and it's symptoms, they usually don't do the additional testing required to pick it up. My GP actually apologized to me a year after I had asked her about the disease when I first became really sick. I hope that your recent diagnosis of Hashiís is the beginning of a total recovery for you. If, however, you continue to experience symptoms of tingling, numbness, limping and brain fog, please look into the possibility of it being PA. You donít need a prescription to take vitamin B12 sublingually. Good luck!

 
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