Originally Posted by JoanneV
My daughter was diagnosed with Hashimoto's at age 11. at age 16, her thyroid was producing enough hormones to come off of her synthroid. After about 5 months of being off synthroid, (and now 17 years old) she was having signs of hyperthyroidism. Her TSH is 0.08, Free T4 is 1.5, Thyroglobulin antibodies are 23, Thyroid Peroxidase antibiodies are 140. Her Thyroid uptake scan show markedly decreased thyroid uptake and her sonogram showed a normal sized thyroid. Her doctors are taking their time giving us an answer or treatment. She has trouble falling asleep, has a rash, no menstral cycle for months(and no, she is not pregnant), and is nervous. Is it normal to convert to Graves disease after having Hashimoto's for 6 years? Does anyone know what could be going on?
Hi Joanne, That sounds like a huge thyroidal rollarcoaster ride that shes been on. Poor thing. There may be an explanation for the switch from hashimotos to Graves, both are thought to be autoimmune related and so it isnt that uncommon for people to experience both, I have myself.
I had hashimotos thyroid with hypo symptoms but with elevated antibodies, and normal TSH, and then I went hyper for a short period afterwards before I recovered.
Somtimes with hashimotos when the thyroid is being attacked antibodies in the immune system, the thryoid goes into a transient state of hyperthyroid, where excessive amounts of thyroid hormone, T3 T4 get relseaed from the cells within the thyroid, and which circulate into the blood stream making you have hyper symptoms like shakiness, rapid heart rate, nausea, and anxiety, sweating and eye pain etc etc. This usually goes away after the antibodies go down and the thyroid has recovered. Or the body can become hyper for quite sometime before becoming premantly hypo, but this is uncommon.
It can be transient, or permanant, the chances are more likely for them to be transient.
Also, I know its scary and the doctors prob arent giving you the answers you need or else you wouldnt be posting on this forum.
11 is a young age to have thyroid complications, but that is usually around the time of puberty also. Does thyroid illness run in your family?
The best advice I can give you is to keep going to the doctor and watch her for these fluctuating symptoms, keeping track and writing in a journal everyday, or at least the bad days, so you have somthing to show the DR's next time you go in for a visit. And you must keep getting blood tests done including antibody panel for a while, keep track of them. You want them do drop.
Somthing she can do in the meantime is adjust her diet, and go on a low iodine diet
. Avoid dairy, white bread, eating out, and iodized salt, that includes processed soups, etc.
The low iodine diet is what drasticly reduced my antibody levels by half, and made me feel better, and if she is brave enough try going gluten free
Avoiding gluten has helped me so much, the gluten free diet also helped more than anything else and without it, I still may need drugs. But I dont have to take thyroid pills anymore.
Has she been tested for Celiacs also?