Yup, I get them too; usually between 99.3 and 99.8. I've also been tested for lupus and RA both negative. I have a light butterfly rash too and when all of this started I had a circular rash on my upper chest and neck (Lyme's was negative). I do not tolerate being in the sun very well either. It's not just the heat because I will feel ill several hours after sun exposure even when it's not hot outside (like sunny days in the winter).
I get swollen joints (my toes and sacro-illiac joints specifically) and have A LOT of stiffness. One of my drs was going to do a bone scan to check for possible sero-negative RA but I was pg at the time.
I've heard that also...that it can take years or months of repeat testing before getting a positive ANA.
Sometimes I wonder if all AI diseases are actually the same illness that presents differently in different people depending on what they're susceptible to. Maybe that makes no sense whatsoever but it sure seems like A LOT of the symptoms overlap and that there are only a very few defining features of each.
My drs have suggested that I probably have some other AI disease along with the Hashi's but when I asked what they think it might be my OB said "could be something science hasn't even put a name on yet...you never know". That was reassuring
Love and Prayers, Kelly