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Old 05-30-2006, 09:36 AM   #1
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tired even at 1.8 tsh

Hi everyone!
Has anyone on here still been tired even with a tsh level of 1.8? I just got my new labs back and I was so excited to have it so low because I am trying to get pregnant. Anyway, just was wondering what anyone had to say about that. My dr. does not check the t3 and t4 levels unfortunately. Could that be the problem?

 
Old 05-30-2006, 09:45 AM   #2
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Re: tired even at 1.8 tsh

Yes, there could be a problem with your T4 and T3. Fatigue(unexplained/abnormal tiredness) is also a symptom of both hypoT and hyperT.
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Old 05-30-2006, 10:09 AM   #3
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Re: tired even at 1.8 tsh

Hiya,
Are you in the Uk by an chance? My GP also does not check the T3 or T4, when I had my last blood test the nurse said they only check that if your on thyroid treatment GGGGRRRRR.

We can't seem to win here in the UK. I've been fighting tiredness for nearly 4 years, sometimes my legs and arms are so heavy, i amaze myself even getting out of bed.

I hope you get your wish and become pregnant soon :-)

 
Old 05-30-2006, 10:37 AM   #4
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appleofearth HB User
Re: tired even at 1.8 tsh

hey there!

When i started on thyroxine my TSH dropped down to 0.7 and I felt better, started feeling crappy again and got tested and lo and behond, I was up to 1.6... It seems that mine needs to be below 1 for me to feel good! The "good" level varies from person to person, that's where the stupid normal range came from - one person can feel good at 0.5 while another feels great at 5 so they decided that everyone feels good from 0.5 to 5. grr

jdn5764 : I'm in the UK as well and was told that they only check FT3 and FT4 if your TSH indicates something is wrong. If your TSH is fine you're fine, end of story! Even more frustrating, your GP can order it and the labs will only run it if they think it's needed.
repeat after me:
GRRRRRRRRRRRRRRRRRR

There is a company over here that will run the full panel for about 30 pounds, there's info on the thyroiduk site.

Becky

 
Old 05-30-2006, 12:39 PM   #5
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Re: tired even at 1.8 tsh

I always feel much better when my TSH is below 1. When it gets above 1, I notice more sluggishness, tired and depression. When it is below 1, I have more energy and have a better mood. Everyone is different. Talk to your doctor about getting your TSH where you need it to be.

 
Old 05-30-2006, 02:38 PM   #6
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Re: tired even at 1.8 tsh

No, I am not in the UK, but I am having that problem. I don't know why some don't feel the need to check them. I wonder if it is an expensive test? I want my tsh to be a little lower, as close to 1 as possible.

 
Old 05-30-2006, 02:42 PM   #7
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SarahF HB User
Re: tired even at 1.8 tsh

I was diagnosed with a TSH of 1.82... yes, it is quite possible.
My T4 and T3 were at the bottom.

 
Old 05-31-2006, 01:04 PM   #8
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Re: tired even at 1.8 tsh

I was diagnosed with normal t3,t4 but tsh 0.01. So, I do not know what it means. It is all too new. And annoying. What level is not considered abnormal.

 
Old 05-31-2006, 05:26 PM   #9
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Re: tired even at 1.8 tsh

misohpi-depending on the lab, some labs say between .350-5.50 is normal and some labs say between .350-3.50 is normal. I personally think the lower numbers, such as between 1-3 are the best to be at.

 
Old 05-31-2006, 08:55 PM   #10
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Re: tired even at 1.8 tsh

So, what or how does it work. At this point for me, I am waiting to get into a particular doctor. My internist ordered all the tests including biopsy. All they explain to me is that my thyroid is not functioning. Have hot and cold nodules. They plan on surgery.Of course I get part of the resulys last fri. before the holiday. Then they just let me sit. Miserable....only send out xanax (like I'm crazy). No help for symptoms. They explain nothing. I truly believe that animals are treated in a more compasionate, humane,kind manner than people are. At one point I was..... misohopi.

 
Old 05-31-2006, 11:35 PM   #11
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Re: tired even at 1.8 tsh

I feel much better with my current TSH of 0.5, than I even felt with it as low as 1.2. Skin and hair look better, less aches, and much more energy too. Of course my endo worries that it's "suppressed".....afraid it's too low. Why in the heck don't they just go by HOW WE FEEL????? Helllllll-ooooooooo!! If we feel good, then our levels at that time must be right in a good spot just FOR US! Maybe some day they'll figure out this simple solution for us...I say we all go and march in Washington!

Deda

Last edited by Deda; 05-31-2006 at 11:48 PM.

 
Old 06-01-2006, 01:45 PM   #12
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Re: tired even at 1.8 tsh

Yeah, I don't understand either. My doc was saying that it was getting borderline low at 1.8. Please!! I'm still tired, don't tell me that.......Crazy

Carisa

 
Old 06-01-2006, 01:57 PM   #13
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Re: tired even at 1.8 tsh

Misohopi,
There are new guidelines that some more up to date doctors are using for the tsh level. The doctors going by the old guidelines are using the .3-5.5 range, the doctors going by the newer guidelines are using the .3-3 range. And yes, giving you xanex sounds a bit ridiculous, sorry about that.

 
Old 06-01-2006, 02:36 PM   #14
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Re: tired even at 1.8 tsh

carisa,
So, where do I go? Rely on ther obviously bad test results and wait? I am impatient and ready to take care of this and go on with my life. My range is way offf. Feel lousy. Supposed to have a vacation that has been planned for awhile later this month. It is bad timing all the way around and no one is doing anything fast. I am soo frustrated.

 
Old 06-01-2006, 09:03 PM   #15
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Re: tired even at 1.8 tsh

I know, I have been so frustrated myself. My doctor uses the old guidelines which are out of date. I just had to tell her that I wanted my tsh level to be between 1-2, which it is now as of last week. When I was at my worst (swollen achy thyroid, very tired, rashes, headaches, ear aches,etc.) I was scheduled to be in Disneyland with my husband for four days, it was a nightmare, I felt horrible.

 
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