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Thyroid Disorders Message Board
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Old 07-24-2006, 02:13 PM   #1
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kasey55 HB User
Question new to board

hi
new diagnosis hyperthyroidism --TSH zero_-
my family dr said "NOT GRAVES" ---so what is it? see
endo dr in august. started PTU 2x's a day & atenolol daily

 
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Old 07-24-2006, 04:32 PM   #2
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Re: new to board

Do you have your other results and the ranges??

 
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Old 07-24-2006, 07:25 PM   #3
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Re: new to board

no! The dr didn't want to share them. he said T3 Or T4 wasn't in the range
for Graves. I have had all the symptoms for several years. finally when I
complained about daily heart palps ,excessive sweating, muscle weakness,
weight change & not sleeping he ordred a TSH & other blood work. (also EKG 24 hr halter monitor & Echo)I can't seem to get much out of this Dr. I hope when I go to the Endo Dr I will get some answers. thanks for listening to me vent!!!!

 
Old 07-25-2006, 06:35 AM   #4
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phylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB User
Re: new to board

Hi kasey55, Your medical records belong to you. Call the dr. office and ask/tell them to send you a copy of your labs. I don't think i'd like a dr. that is that secretive, is changing family dr. an option? I have graves disease and when dx (Oct. 2003) i had a very low tsh .02 and a ft4 of 3x's the highest normal range at that time. I experienced the same things you are now. Graves isn't the only hyperthyroid condition, there are others. Do some reading to educate yourself on other forms. Also when you go to the endo have a list of questions so so you don't forget what you want to find out about. take care...phyllis

 
Old 07-25-2006, 06:41 AM   #5
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tygwyn HB User
Re: new to board

Hi again Kasey

I'm with Phyllis - get those results - doc has no right to keep them from you.

I got my labs done last week and have a supressed TSH (not non existent like yours but below range) with normal FT3 & FT4. It states on my results from the lab "consistent with subclinical hyperthyroid" - do a search on google and it might tell you a bit more. At the end of the day though you need to get those results from your doc. If you phone the surgery they will probably just give you them over the phone anyway?

Good luck

Rach xxxx

Last edited by tygwyn; 07-25-2006 at 06:42 AM.

 
Old 07-25-2006, 07:57 AM   #6
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Re: new to board

Hi
This Is A New Dr For Me. We Moved & I Had
To Change Dr's. He Is Not My 1st Choice. Insurance Plays A Big Part
In Locating A Practice That Is In The "hmo Group".
I Am Reading All I Can On Hyperthyroidism. The Internet Is My
Lifeline For Information. Most People Have No Idea What It Can Do
To Your Entire Being & Really Get Tired Of Talking About It. Sooo-
I Am Very Happy To Find This Board. Thanks Kasey
Hey We Are Neighbors- I Live In Petersburg.

 
Old 07-26-2006, 10:37 AM   #7
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phylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB User
Re: new to board

Hi Casey...what a small world, it would be easy for us to talk on the phone. When you get a copy of your labs post them with the values and we'll see if we can figure something out. Is your dr. in Petersburg or Springfield? I went to an endo in Springfield initially, but am now under the care of our family dr. You're right about the thyroid affecting your whole body and the symptoms are similar to other things, like menopause. Until you have a problem you'd never realize that. If you'd like to talk our number is listed under Larry Willis in the Havana phone book or online. If i can be of help please call, i'm no authority but have experienced it and understand what your feeling. I'm a pretty good listener and don't mind venting...hahaha. take care...phyllis

 
Old 07-26-2006, 12:53 PM   #8
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Re: new to board

Hi Phyllis
I'm Seeing A Dr In Springfield @ Kokemill(memorial Hospital).
My Next Appt. Is Aug 10th With An Endo Dr @ Siu. Last Labs Were
July 5th. I Was Wondering How Often You Normally Get Labs? I
Suppose The Next Labs Will Be Done @ The Endo Dr.
What Can I Expect For My 1st Visit With The Specialist? I'm
Kind Of Nervous About It. I Don't Know Why Really. Just A Lot Of
Dr's Are Not Always Listening To What We Say. Lol
Thanks Kasey
I'll Call When I Know Something.

 
Old 07-26-2006, 02:23 PM   #9
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Re: new to board

Hi Kasey...I take it the appt. is with the one that won't tell you anything. On the first visit if hes anythig like to one i saw they will ask you all kinds of questions that relate to being hyper. By the time i saw the endo alot of mine had subsided and and i forgot to tell him that i'd had those things earlier in the summer. Keep track of everything you are feeling, on paper, even if it goes way. Don't let the dr. intimidate you and if he tries to blow off your questions keep at him nicely till he gives you a good answer.REMEMBER...THE DR. WORKS FOR YOU. You will also probably get a general check up. Have someone go with you and into the office if that would help you. Its hard to absorb all that is said when you're nervous. On my first visit i went alone was very unprepared and altho i don't think i'd done things different i wish i'd been better informed. While you are there ask him about bone denstiy and if he could order a baseline DEXA scan. I was dx with osteoporsis this spring and the only thing i can come up with as the cause other than getting older is the hyperthyroid (very hard on the bones) and now taking replacement hormones (synthroid) for life. This is something to be aware of, not meant to scare you. if you have any questions give me a call. take care...phyllis

 
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