Since my TT is scheduled (Thank you, God!!) for August 21, my one Aunt insisted that I call another Aunt whose daughter had her thyroid out several years ago.
So, I called and finally spoke to my cousin, who had part of her thyroid removed 13 years ago due to a cold nodule that was coming up "equivocal" on the biopsy (they couldn't tell if it was malignent or not). She has Hashi's, and it took them about 6 years before they figured out that her problems were thyroid related. (Her allergist found the problem by doing thyroid antibodies, even though her regular doc insisted that her thyroid was fine because the TSH was fine). Good GRIEF! I wish I had known all of this in 1993, when she had her surgery, because by that time, I had been sick for 4 years. Now, 13 years later, I am finding out that the surgery relieved ALL of her symptoms, which were like mine - flu-like, aches, pains, foggy head, confusion, horrible fatigue. It took about 8 weeks, until her thyroid hormone levels were normalized, before she felt completely better.
Why didn't I know this 13 years ago???
Of course, there is no guarantee that I will feel any better after the surgery, but I think I have a pretty good chance. It scares me that I have been so sick for 17 years - hard to even IMAGINE feeling better, since I have completely forgotten what if feels like to be without pain, to have any energy, to be able to function.
I would love to hear from others who have tried surgery to relieve their suffering that was caused mainly by anti-thyroid antibodies (autoimmune disease) than by hypo or hyper thryoid symptoms. All of my hypo symptoms have gone away since getting my levels up, but I still feel as though I have the world's worst flu. My docs think the best and only way to treat this, (and the fact that I have a cold nodule in a thryoid under aggressive attack) is total removal of the gland. I am anxious, but afraid.
Love and Prayers,