It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Thyroid Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-26-2006, 08:35 AM   #1
Member
(female)
 
Join Date: Oct 2005
Posts: 99
desertwalker77 HB User
Question What's a good TSH level if you don't have a thyroid?

What is considered a good TSH level if you're on thyroid replacement and don't have a thyroid?


Thanks,
Elizabeth

 
Old 07-27-2006, 02:58 AM   #2
Inactive
(female)
 
Join Date: Feb 2006
Location: Apple Valley, CA
Posts: 469
sudufu HB User
Re: What's a good TSH level if you don't have a thyroid?

I really think it depends person to person, and how they feel. That said:

most patients feel their best with TSH between 1-2.

Hope this is a little help,
Sue

 
Sponsors Lightbulb
   
Old 07-27-2006, 05:07 AM   #3
Senior Veteran
(female)
 
Join Date: Jul 2006
Location: Havana, IL
Posts: 926
phylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB User
Re: What's a good TSH level if you don't have a thyroid?

HI Elizabeth, i agree with Sue. I've had a tsh below 1 (.04 when last month) for quite a while now and i feel good at that level. Sometimes it takes a while to find that magic number for yourself. It also takes a dr. that goes by how you feel and not what the labs say. My dr. looks at both the tsh and ft4to determine if i'm at the right dose. Are you new to the total replacement, no thyroid game? take care...phyllis

 
Old 07-27-2006, 09:42 AM   #4
Member
(female)
 
Join Date: Oct 2005
Posts: 99
desertwalker77 HB User
Re: What's a good TSH level if you don't have a thyroid?

I had a TT Dec 27.I did not have cancer. Just benign cysts and nodules. I took replacement for over a year before the surgery.

I'm very new to the no thyroid game.

I'm lucky to have a Doc who goes by my symptoms and when she does bloodwork she checks TSH, T3 and T4.

I take armour thyroid.

90 mg/ am
60 mg/ afternoon

My tsh stays way below 1
Last time it was 0.006 My T3 and T4's always look great though.
I did have that last test mid afternoon after I already took my meds and usually I have my blood drawn first thing in the morning before I take my meds.
The bloodwork before that last one which I had first thing in the morning showed my tsh at 0.049

Elizabeth

 
Old 07-27-2006, 11:14 AM   #5
Veteran
(female)
 
Join Date: May 2005
Posts: 369
OraEtLabora HB User
Re: What's a good TSH level if you don't have a thyroid?

This is a really interesting question. Since TSH is a hormone produced by the pituitary gland to STIMULATE the thryoid to produce more hormone, then in the absence of a thyroid, I would think the TSH would be a useless indicator. You probably already know this, but when the pituitary sees that the body is in need of more thryoid hormone, it produces TSH to stimulate the thyroid to produce T4, which the body then converts to T3 and the others (T2, T1). Since theoretically, if the TSH is high, the pituitary is trying to get the thyroid to produce more hormone. If it is low, the pituitary is NOT trying to stimulate the thyroid because it perceives too much hormone in circulation. That's why, when docs see a low TSH, they ASSUME there is too much circulating thyroid hormone. When they see a high TSH, they assume there is too little circulating hormone.

Unfortunately, I think some smart docs are beginning to realize that it is not that neat and clean. Many people, like me, can have beautiful TSH's of 1.6, with free T3 and T4 in the basement. For some reason, my pituitary didnt' care that I had hardly any thryoid hormone in my blood. So, I don't believe the TSH is a great indicator of thyroid health even WITH a thyroid gland, let alone without one!

It would seem to me that the actual hormone circulating in the blood, for use by the cells, would be the more accurate guage whether one has a thyroid or not - the free t3 and free t4.

My thyroid is being supressed altogether, to keep my nodule down. My doc does the TSH, but it is naturally undetectable - he goes by the Free T3 and T4, and by how I feel. My other docs freak out, of course, because they are so married to the TSH. THey see the low TSH and immediately assume that I am hyperthyroid, without ever checking the free values.

I am scheduled for at TT in a few weeks, and so your question interests me. I am interested in hearing from others who do not have a thryoid, how their docs regulate their hormone levels.

Ora

 
Old 07-27-2006, 11:45 AM   #6
Member
(female)
 
Join Date: Oct 2005
Posts: 99
desertwalker77 HB User
Re: What's a good TSH level if you don't have a thyroid?

You are going to feel sooooooooooooooooooo much better after that TT!!!

I think my doc follows your logic. Thank goodness she isn't married to TSH!

~Elizabeth

 
Old 07-27-2006, 03:10 PM   #7
Veteran
(female)
 
Join Date: May 2005
Posts: 369
OraEtLabora HB User
Re: What's a good TSH level if you don't have a thyroid?

Oh, Elizabeth, I HOPE SO! I am so ready to feel human again.

Thanks for the words of encouragement. Did your surgery help any with symptoms that the thryoid replacement wasn't helping? For example, I have been on replacement for 3 years now, and some things have resolved, like hair loss, heartburn, dry skin. But I still have tons of fatigue, weight gain, muscle/joint pain, brain fog. No matter at what does I am, these things don't get better. I don't know what else to do. But I know that this notion that the TSH is THE gold-standard for detecting thyroid disease, and for regulating exogeneous thyroid hormone, is lunacy that has caused untold suffering.

If I were you, I wouldn't worry about the low TSH, as long as your Free's are normal range, and you feel good.

Blessings!

Ora

 
Old 07-27-2006, 04:27 PM   #8
Member
(female)
 
Join Date: Oct 2005
Posts: 99
desertwalker77 HB User
Re: What's a good TSH level if you don't have a thyroid?

Yes it resolved alot of the aches and pains, brain fog, heartburn, hair loss and I lost weight

I feel like a TOTALLY NEW AND IMPROVED WOMAN!

I'm here as your cheerleader

 
Old 07-27-2006, 05:41 PM   #9
Veteran
(female)
 
Join Date: May 2005
Posts: 369
OraEtLabora HB User
Re: What's a good TSH level if you don't have a thyroid?

I've got tears in my eyes! To even IMAGINE that, after 17 years, I might have some freedom from all the misery, is almost too much! I am so afraid that I will feel worse, and I can barely make it now! And I am afraid to get my hopes up too high, or I will become completely depressed if I don't feel better. Your post has given me another indicator that I CAN have hope!

I am so happy for you, that most of your symptoms resolved! I have heard of others, and it gives me HOPE. Did it take a long time for you to feel better, or was it right away? My cousin said it was about 3 months before all her symptoms went away, but she was not on any thyroid hormone before the surgery, and it took them 3 months to get her regulated - and as soon as she got the right amount of thyroid hormone, she said she felt wonderful.

Thank you SO MUCH for cheering me on! I am SO READY to feel like a human being again - I have forgotten what it feels like to feel "good."

Love and Prayers,

Theresa

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
I need good arguments for a stubborn endo tigger67 Thyroid Disorders 10 05-20-2010 12:08 PM
Secretly Found Out My Wife's Addicted To Oxy - What should I do? Help My Wife Family & Friends of Addicts and Alcoholics 12 04-19-2010 04:15 AM
What to tell my NP? (REALLY long post) ngtstrm Thyroid Disorders 6 05-05-2009 08:37 PM
What's wrong with me... I feel GREAT! jeananaye Thyroid Disorders 9 02-03-2009 05:10 PM
Erinbeth-what were your negative symptoms with each increase? birchtree Thyroid Disorders 11 08-07-2007 02:01 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:03 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!