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Old 08-06-2006, 09:40 AM   #1
Join Date: Aug 2006
Location: texas
Posts: 2
chica3 HB User
Lightbulb Wilson's Syndrome - Low body temp

Hello to all, and let me first say how happy I am to have found this forum.

quick history. I have spent about five years going into menopause, seeing an endo for hormone replacement, and have been happy for a couple of years with no hot flashes. Did have thyroid checked a couple of years ago and was in normal range. But the biggest change I noticed about four years ago was that I suddenly gained 20 lbs in one year. I've always been slim, never had problem controlling the weight, and always hated exercise. But now I can't seem to get my weight to budge, especially in the middle.

I've known for years that my body temp is always low, but just now found out that there's a syndrome called Wilson's S. out there, and that this is probably related to low iodine. I'm making an appt tomorrow to see a Dr. Scumpia, see what she can do.

My question: Does anyone have this low temp where their thyroid levels are normal? Do any of you use natural supplements, including iodine, to correct this problem? Any luck?

Again, this is all new to me. I apologize for the lenghty post. I'll hush up and keep reading.

Thanks in advance for all info.

Old 08-08-2006, 08:36 AM   #2
Join Date: Feb 2006
Location: Apple Valley, CA
Posts: 469
sudufu HB User
Re: Wilson's Syndrome - Low body temp


I know nothing about Wilson's syndrome, but am bumping this with hopes that someone does.

Personally, I have trouble when a Dr says "Normal". WHY?? Specialists cannot agree or get labs to honor the 2002 standards for TSH. And I've had Dr's say "normal" when I'm BARELY in range. (ex: t3's @ 24 w/ range of 22-36 =!) Most patients feel optimal in the top 1/3 of those ranges.

Hope new Doctor can give you some answers,

Sponsors Lightbulb
Old 08-08-2006, 08:51 AM   #3
Join Date: Aug 2006
Location: texas
Posts: 2
chica3 HB User
Re: Wilson's Syndrome - Low body temp

Thanks Sue!

I don't know if Wilson's Syndrome is just a name someone came up with or not; but I do believe that low body temperature, associated with low metabolism, is a real problem. What I don't know is if it's related to the thyroid or not. Does anyone out there know if it is thyroid related, or hormone related?

I have a doc appt in 3 weeks. Right now I'm hesitant to supplement with iodine and other supplements I've read about until I get blood work done...don't want to skew the results. So another 3 weeks in limbo.

Do appreciate your help!

Old 08-08-2006, 10:43 AM   #4
Join Date: Feb 2006
Location: Apple Valley, CA
Posts: 469
sudufu HB User
Re: Wilson's Syndrome - Low body temp

I've heard of Wilson's syndrome, just don't know any specifics. Just googled it and came up with PLENTY in conjunction with Thyroid.

takes a while to get in to see GOOD Dr - hang in there

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