I am hoping I can meet some people with a similar situation that I am in. I would love to support others with my experience, and get support by hearing other peopl's stories.
I had a benign adenoma removed, along with the right lode of my
thyyroid, when I was 14. The surgeon was excellent, and the left lobe
and isthmus were left. I did not need any replacement meds.......I was
lucky and the remaining thyroid tissue has been functioning normally.
I have routine follow up every year. In 2/2006, another nodule was
found on my left lobe. They found 3 nodules, 2 of which seem normal
to the docs, only one that is concerning. I was told the standard is
to watch it for 6 mos, and repeat the u/s. If there is any growth in
the nodule in 6 mos, a needle biopsy will be performed. So, I had the
repeat u/s, and there was no growth (yah). But, they did a fine needle
biopsy a few weeks ago anyway, and that came back suspiscious......
microfollicular lesion. There is a 10-15% chance that his can be
malignant. so, because of the risk, they recommend I have the rest of
my thyroid removed, so they can officially biopsy it and diagnose me. So, I m essensially haveing a total thyroidectomy.
I am freaking out about everything........the surgery, the
possibility of cancer, needing meds for the rest of my life, weight
gain, and list can go on. I became engaged (yah), then found out 5
days later about the biopsy results and the need for surgery. I have
been a wreck since. I am angry because this should be a happy time,
and I am a weeping, nervous wreck!! I am angry because I was told
that a biopsy would only be done if there was growth to the nodule.
There was no growth, but a needle biopsy was still done (the nodule is
smaller than 1 cm- about 8-9mm, and I was told that it is difficult to
biopsy a nodule that small.....yet it was done anyway.) I am angry
because my endocrinologist said, "why don't we do the biopsy, so we
can reassure you all is normal...it will be normal I am sure" She had
me convinced to expect normal biopsy results, so I was devastated and
upset when it came back suspiscious and she told me I needed
surgery!!!! I have to get past the anger and fear, and have the
surgery. I am having the remaining part of my thyroid removed next
wednesday, august 30th. I have so many questions, and I am hoping you
all can help me.
How was your surgery? Were you concerned you might not wake up from
the anesthesia? Is this normal fear, or am I losing it? Will I start
meds right away? What are the side effects? How quickly will my
incision heal? I am getting married in 1 year....can I expect it to
be mostly or totally healed by then? Will I gain weight after losing
my thyroid? What about all of this adrenal insufficiency I have been
reading about? And the synthetic hormones vs natural thyroid? I am worried about symptoms........I am not experiencing any symtoms now, because my thyroid works functions normally. I am worried about the symptoms after surgery!!! Fatigue, pain, weight gain, etc.....
I am sorry for all of the questions. Whatever info you can share
would be very helpful. I am feeling very lost. I do not feel my
endocrinologist has been very helpful, and did not prepare me for any
Thanks and I look forward to getting to know all of you and hearing