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Old 10-27-2006, 05:05 PM   #1
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greenman101 HB User
Severe HypoT??? Need help w/ symptoms!

I'm trying to help a friend out here who may have severe hypothyroidism, but is having trouble seeing proper doctors and getting good results. Part of the problem is her lack of health insurance. She has finally seen one general doctor (not a specialist yet) and he has told her that these symptoms seem to be something other than a thyroid problem.

Quick background: She has a noncancerous tumor of some kind in her thyroid. She was diagnosed several years ago with this problem, and was given some basic meds for it. She didn't get surgery and has just ignored it til about a month ago it started to get serious.

I'm starting to get very concerned now that the Doctor said there's something else going on possibly, and the symptoms aren't that of a thyroid problem. Can anyone help confirm that these symptoms are very likely from a severe hypothyroidism case?

She has shakes or uncontrollable spasms throughout her body and arms. She has a nonstop head pain, and throughout the past few weeks has had terrible terrible migraines where she couldn't even function. Extremely light sensitive, seizure-like symptoms. Many symptoms appear to be similar to a Basilar Migraine.

Other symptoms she exhibits:
Cold sensitivity. 70-80 degrees out and still complained often about being cold
Severe brain fog.
Can't read outloud when symptoms get bad.
Can't ask her what her phone number or ssn, etc is because she says she can "see them, but cant say them". She sees the images in her mind but can't tell you about them outloud.
Can't remember things well at all when symptoms are bad.
Gets frustrated at too many questions.
Slow speech, and when symptoms are really bad total inability to speak or eat food, etc.
Stutters entire short phrases.
Brain declines in function tremendously.
Stabbing eye pain, and spot on edge of her vision. (explained the spot as similar to the spot that appears at a movie theatre in the top corner of the screen except hers wont go away)
Nausea and throwing up very often after eating.
Constant description of "weird" feelings going on in head.
The other day felt like she was high and was acting insane.
Loses control of her eyes to some degree. ex. can not look people in the eyes.
Burning sensation in head.
Throat pain, ear pain, some chest pain.
Can't walk sometimes...legs just give out sometimes as well.
Describes taking showers, etc. as taking really long and hard to accomplish.

There's more symptoms I'm sure that I can't quite remember at the moment, but those are the major ones. ALMOST ALL SYMPTOMS RECEED OR GO AWAY FOR A FEW HOURS AFTER TAKING A SYNTHROID PILL. She was not presecribed the medicine, but was prescribed it several years ago in the past and took it to see if it would help, and it seems to help dramatically. The brain IMMEDIATLY improves in function and the fog clears up. Usually a half day later or so the symptoms will begin to return. At worst she completely can't talk and is resembling of a special ed person in pain, but after taking synthroid she returns almost to her normal brian function.

Other information (I realize its vague and incomplete but the best I can do atm): At the ER doctors said there is a very high amount of some substance in her blood that's being made by her brain, and her tumor is "catching it". I would assume this is the thyroid activation hormone flowing in her blood, and the tumor is stopping it from reaching her thyroid and thusly she is not making any thyroid hormone. But of course I am no doctor.

Just wondering if symptoms or situations like I described are possible or familiar to any severe Hypo experts or if they are off the chart and likely something else? It seems to me that an absolute lack of thyroid hormone in the body could produce severe symptoms like that, but now that the doctor said something else may be going on I'm worried and wondering if I was wrong.

Note: Many symptoms resemble that of a brain stem tumor, but an MRI and CT scan was done at the ER and nothing was found aside from a neck tumor.

Hope someone can help!

Last edited by greenman101; 10-27-2006 at 05:06 PM.

 
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Old 10-27-2006, 05:24 PM   #2
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Re: Severe HypoT??? Need help w/ symptoms!

You can't diagnose hypothyroidism by symptoms alone. Some or all of them may be caused by that condition or may not be. Whatever is causing it should be treated by medical professionals. I think the best thing you could do for your friend is to make sure she gets the medical care she needs, no matter what the cause.


Quote:
Originally Posted by greenman101
ALMOST ALL SYMPTOMS RECEED OR GO AWAY FOR A FEW HOURS AFTER TAKING A SYNTHROID PILL. She was not presecribed the medicine, but was prescribed it several years ago in the past and took it to see if it would help, and it seems to help dramatically. The brain IMMEDIATLY improves in function and the fog clears up. Usually a half day later or so the symptoms will begin to return. At worst she completely can't talk and is resembling of a special ed person in pain, but after taking synthroid she returns almost to her normal brian function.
This part raises some doubt in my mind on a couple of levels. Synthroid is synthetic T4 hormone which cannot do anything for the body until it is converted to T3. It doesn't work that rapidly and an increase in Synthroid needs to be daily for six weeks or so to be able to tell what it might do for help. One pill shouldn't do anything to remove symptoms I wouldn't think.

If she was not prescribed the medicine, how did she get it? I would be petrified of taking drugs obtained without a prescription. Hoping that isn't the cause of her problems.


 
Old 10-27-2006, 05:28 PM   #3
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greenman101 HB User
Re: Severe HypoT??? Need help w/ symptoms!

Quote:
Originally Posted by ErinBeth
You can't diagnose hypothyroidism by symptoms alone. Some or all of them may be caused by that condition or may not be. Whatever is causing it should be treated by medical professionals. I think the best thing you could do for your friend is to make sure she gets the medical care she needs, no matter what the cause.




This part raises some doubt in my mind on a couple of levels. Synthroid is synthetic T4 hormone which cannot do anything for the body until it is converted to T3. It doesn't work that rapidly and an increase in Synthroid needs to be daily for six weeks or so to be able to tell what it might do for help. One pill shouldn't do anything to remove symptoms I wouldn't think.

If she was not prescribed the medicine, how did she get it? I would be petrified of taking drugs obtained without a prescription. Hoping that isn't the cause of her problems.

That's really odd then because she takes the synthroid pill and it definitely clears her head in somewhere around 30 minutes. And she was presecribed them in the past, but stopped taking them apparently. I'm not quite sure what made her decide to take them, but I'm pretty sure she was on a presecription years ago.

 
Old 10-27-2006, 07:54 PM   #4
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Re: Severe HypoT??? Need help w/ symptoms!

A quick clarification: Symptoms do not ever go away right after taking the synthroid. They do receed to some degree. Head clears a lot, and she can focus better to try and do simple things liek reading and writing. They definitely do not vanish though.

 
Old 10-27-2006, 10:09 PM   #5
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Re: Severe HypoT??? Need help w/ symptoms!

The symptoms do sound more like a brain tumor than thyroid related, although I do know some people who have been dx'd with bi-polar, and who improved upon taking T3. I also knew a man who was having some symptoms consistent with a brain tumor, and was told by 4 specialists in a 14 month period that it was NOT a brain tumor. Turned out, it WAS a brain tumor - just took more than one MRI and CAT scan to find it, and 5 specialists, instead of 4!!

I think your friend needs to get other opinions on both thyroid disease, and the possibility of a brain tumor. Her symptoms sound horrible, and if she gets some relief from synthroid, then she needs to find a doc who will let her try a trial of Synthroid for a few months, while more tests are being run.

Good luck to her.

Ora

Last edited by OraEtLabora; 10-27-2006 at 10:18 PM.

 
Old 10-27-2006, 10:09 PM   #6
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Re: Severe HypoT??? Need help w/ symptoms!

(I"m adding this post because for some reason, I ended up with 3 posts, in stead of one!)

It's also hard to imagine that the synthroid can kick in and relieve some of her symptoms so quickly - it generally does take a few weeks to work. But, anything is possible! Maybe her brain is so starved for thyroid hormone that is sucks it up really fast!

Ora

Last edited by OraEtLabora; 10-27-2006 at 10:21 PM.

 
Old 10-27-2006, 10:12 PM   #7
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Re: Severe HypoT??? Need help w/ symptoms!

Sorry, I accidentally posted twice, so I deleted the second post and added this!

Last edited by OraEtLabora; 10-27-2006 at 10:14 PM.

 
Old 10-28-2006, 08:30 AM   #8
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Re: Severe HypoT??? Need help w/ symptoms!

Thanks for the help guys. I too was worried about the brain tumor, and am still concerned. However she said that at the ER the doctors there told her she has thyroid disease. I am just trying to figure out if this is a super advanced thyroid disease resulting from her thyroid thumor blocking all thyroid output, or if there's something else going on that is not easily apparant.

If anyone has had or heard of such severe symptoms from a really bad case of Hypo let me know, thanks!

 
Old 10-28-2006, 01:16 PM   #9
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Re: Severe HypoT??? Need help w/ symptoms!

I very much doubt that symptoms as severe as you report have much if anything to do with a thyroid disorder. The signs and symptoms of severe thyroid hormone deprivation come in a package known as myxedema coma, and they include unresponsiveness, decreased breathing, low blood pressure, low blood sugar, and extremely low body temperature. That doesn't sound like what you're talking about.

Assume it's something else, and if nothing else can be found, pursue thyroid. But I don't think that's it.

 
Old 10-28-2006, 02:30 PM   #10
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Re: Severe HypoT??? Need help w/ symptoms!

I agree, but I find it extremely weird how much the medicine seems to help her symptoms. I was under the impression brain tumor symptoms are not very cyclical and don't come and go from day to day, hour to hour, etc. And I wouldn't think that synthroid would help alleviate them at all.

 
Old 10-28-2006, 03:01 PM   #11
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Re: Severe HypoT??? Need help w/ symptoms!

OraEtLabora said it well. Synthroid doesn't work like aspirin fixes a headache. It isn't a short-term drug. A daily dose won't have an effect until it has been taken for at the very least 2 or 3 weeks and at most, 6-8 weeks. It has to be stipped of its binding protein, absorbed slowly into the cells, converted to T3, and replenished from the storage supply circulating in the bloodstream. I truly doubt popping a Synthroid tablet now and again as symptoms appear is doing anything except providing a placebo effect.

I hope she finds the real answer very, very soon.

 
Old 10-28-2006, 05:30 PM   #12
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Re: Severe HypoT??? Need help w/ symptoms!

I stopped taking my t. meds for awhile....I was feeling better. Anyway - after a stint off of them - I went into a type of shock. When they put me back on meds, they put me on synthroid. My thyroid doesn't work at all - not hypothyroid, but no thyroid...anyway - my body objected to the synthroid - definitely needed armour or at least some t3 thrown in the mix. If I were your friend, I would want you to take me to a doctor who understands thyroid at the individual level. Don't let your friend take old meds w/out doctor approval. Good luck!

Last edited by gspice; 10-28-2006 at 05:32 PM.

 
Old 10-29-2006, 11:27 AM   #13
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greenman101 HB User
Re: Severe HypoT??? Need help w/ symptoms!

It has to be converted into T3, but wouldn't the T4 work automatically? Shouldnt the T4 be immediatly absorbed itno the bloodstream and have some effect to begin with?

 
Old 10-29-2006, 11:29 AM   #14
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greenman101 HB User
Re: Severe HypoT??? Need help w/ symptoms!

Quote:
Originally Posted by gspice
I stopped taking my t. meds for awhile....I was feeling better. Anyway - after a stint off of them - I went into a type of shock. When they put me back on meds, they put me on synthroid. My thyroid doesn't work at all - not hypothyroid, but no thyroid...anyway - my body objected to the synthroid - definitely needed armour or at least some t3 thrown in the mix. If I were your friend, I would want you to take me to a doctor who understands thyroid at the individual level. Don't let your friend take old meds w/out doctor approval. Good luck!
What kind of shock? Can you explain a little more please?

 
Old 10-29-2006, 01:21 PM   #15
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Re: Severe HypoT??? Need help w/ symptoms!

my prayers are with you ,
i have had some bad probs with the old meds etc and weirdly not tolerating the stuff i got ill with symtoms also but not to this degree i was mainly fluelike and cold lots of love from katpursxxxxxxxxxxxxxxxxxxxxx

 
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