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Old 03-02-2007, 09:54 AM   #1
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enigmatics HB User
Getting really hypo again.....

As the week has progressed I've been feeing worse and worse. I'm waking up with massively irritated eyes, knots and aches in my calves, joints are popping, feeling bloated, heels on my feet painful and a burning sensation up in my throat area (not sure if it could be acid reflux or not). Just yesterday my tongue flared up. It's been a while since that last happened, but it's kinda swollen, scalloped, irritated on the sides. Not mention I've had the absolute worst dry mouth and unquenchable thirds. Just an overall malaised feeling.

Last edited by enigmatics; 03-02-2007 at 10:13 AM.

 
Old 03-02-2007, 10:23 AM   #2
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Re: Getting really hypo again.....

Are you diagnosed hypothyroid? On meds? If so, what, what dose, how long? When were your last labs? What labs were done (name, result, range)?

Sorry for all the questions and truly sorry you are not feeling well.

 
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Old 03-02-2007, 10:38 AM   #3
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Re: Getting really hypo again.....

Quote:
Originally Posted by ErinBeth View Post
Are you diagnosed hypothyroid? On meds? If so, what, what dose, how long? When were your last labs? What labs were done (name, result, range)?

Sorry for all the questions and truly sorry you are not feeling well.
I've been battling with doctors the past year and a half for a diagnosis.

Labwork

November 5th, 2005
TSH 3.289 (Limits 0.350-5.500)
Thyroxine T4 4.4 (Limits 4.5-12.0)
T3 Uptake 37 (Limits 24-39)
Free Thyroxine Index 1.6 (Limits 1.2-4.9)
Thyroid Peroxidase (TPO) Ab 17 (Limits 0-34)

Doc finally notices a slight abnormality in my T4 after all my insistence on a thyroid panel. Puts me on a baby dose of Levothyroxine and does another blood test.

November 11, 2005
TSH 2.3 (Limits 0.350-5.500)
Thyroxine T4 5.4 (Limits 4.5-12.0)
T3 Uptake 38 (Limits 24-39)
Free Thyroxine Index 2.1 (Limits 1.2-4.9)
Thyroid Peroxidase (TPO) Ab 15 (Limits 0-34)
Antithyroglobulin Ab <20 (Limits 0-40)

Doc's assistant advises me to get off the Levo because the T4 was showing in its normal range. I go months without seeing another doctor.

August 2006
TSH 2.5 (range .45 - 4.5)
Free T4 1.4 (0.8 - 2.1)
Free T3 3.4 (1.8 - 5.4)

December 2006
TSH 2.24

.................... alot of the vets on this board already know my story. I went a couple of months feelings somewhat better, mostly just fatigue.......but now these other physical symptoms have hit hard again. Only one doc would willingly do the frees test. I still think whatever this thing is (Hashi's?) is constantly switching up so testing has become futile.

Last edited by enigmatics; 03-02-2007 at 10:42 AM.

 
Old 03-02-2007, 10:56 AM   #4
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Re: Getting really hypo again.....

Thank you. I did look back at your most recent comments on this board, but really didn't get your story there. It is really hard to keep track of so many different ones.

Looking at both your labs and your symptoms, I can see why a doctor would not be seeing a clearcut case of hypothyroidism.

What other possibilities are being pursued? While hypoT can cause a myriad of symptoms, of course, your list doesn't seem to contain the classic ones. The unquenchable thirst makes me wonder if you have a history of diabetes in your family and if you have been tested for that? Have you seen an eye doctor in regard to your eyes?

Sometimes patients with joint issues are referred to a specialist for testing. Has that been done? Or maybe you could ask for testing/referral?

Are you on a healthy diet, taking vitamin supplements? Sometimes leg cramping can indicate a vitamin deficiency.

I take a combo diuretic plus another med because of venous insufficiency. If I don't take it, my feet, legs and calves swell so badly I can hardly walk and the pain in my feet and calves keeps me awake at night. The resulting edema also causes a tightening in my chest and shortness of breath.

The dose I am on makes about as much positive difference in my life as my little Levothroid pill. I am not suggesting your issues are the same as mine, just that they may have causes other than a thyroid disorder.


 
Old 03-02-2007, 12:34 PM   #5
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Re: Getting really hypo again.....

Quote:
Originally Posted by ErinBeth View Post
[FONT="Tahoma"][COLOR="Navy"]Thank you. I did look back at your most recent comments on this board, but really didn't get your story there. It is really hard to keep track of so many different ones.....................
Here's the thing............all the docs have run your standardized blood panels, etc, etc. and nothing seems to be surfacing. I cannot stress to you that the way I feel now is nowhere close to how I felt physically 2 years ago. Here's my story....

I've since spent all of the last 2 years feeling like crap all day everyday, living in a state of paranoia over what exactly is wrong with me. It's messed with every element of my life because I simply don't feel well and cannot keep up anymore. Finding information on the internet has been both a blessing and a curse. I've been able to zero in on the potential problem (hashi's/hypo), but at one point also got locked into a deadly game of "cyberchondria" ........ I literally couldn't stop searching the internet, trying to find explanations, but also scaring myself half to death with some of the results that come up.

I'm a 27 year old male....... 5'11, athletic 180lbs...... I don't smoke. I drink with my buddies on the weekends. I had spent the last 4 years of my life going thru the grind of waiting tables. I also spent a couple years of that on the road, working 13 hour days opening up new restaurants and training new staff for Brinker International. I love the gym, spend about 3 to 4 days there...... however there was a period from 2002-2005 where my workout routine drastically fell off to near nonexistent levels. Having worked in the restaurant industry, my eating habits have never been consistent..........and with Italian restaurants, as you'd think I had carbs all around me. If I were to rate my stress levels on a scale of 10, I'd say it's consistently been in the 7-8 range over the course of the last 4 years. Up until the symptoms started, I never really went to the doctor at all, never had checkups. Always thought I was healthy. Medical history consists of the concussion I suffered getting kicked in the head in a soccer game at the age of 8 and when I had mono (glandular fever) my sophomore year in college in 2000.

I'm going to attempt to detail the course of events, when symptoms really started flaring up. Looking back on it, I can see other times where there were little things that I just dismissed, but were part of the slow evolution of this problem.

Chronology

Childhood - Constantly having headache problems and what seems like constipation issues. I get stabbing pains all of the time in the abdomen, so badly that at times I can't even stand upright to walk. Symptoms go away sometime around the age of 13.

Adolescence - Spending alot of time depressed. Feels like something I cannot control. Mentally, I don't feel like me. I become very disorganized, completely opposite of the orderly person I used to be.

College Years - I develop mono ('02). Depression is still an issue. I'm noticing I have no drive or desire to do things I used to enjoy. Notice a slight change in vision. I develop a sweating problem after all the years of barely ever sweating.

November 2004 - In Seattle on a restaurant opening, I develop a massive infection on the gumline of my bottom, left wisdom tooth. Fight thru it for nearly 10 days, but was sick as a dog. Stupidly I try to drink on one of the nights with co-workers, which made it worse. Woke up feeling so sick, went to the bathroom and noticed my stool was black. Finally check myself into a local Seattle hospital and given antibiotics (Penicillin 500V). Took a day off then went back to work.

December 2004 to April 2005 - Over the gumline infection. Feel somewhat normal. Notice that if I don't get sleep, I start feeling sickly the next day.

April 2005 - I'm feeling very fatigued all the time. Noticing that when I get up from sitting, I get a little bit dizzy. I'm suffering from bouts of insomnia. When I do get sleep, I feel like it's never enough. I feel like a dead weight upon waking, my eyes sort of burn and I feel extremely anxious. Every morning I wake I always have some song playing in my head, never a soothing one, but something very loud, very hectic. Constantly feel bloated in the abdomen region. Can't eat as much as I used to when I had the bottomless stomach. My hair feels lifeless and is falling out at an alarming rate. My skin looks alot paler to me, feels differently. Getting itchy quite a bit. Notice a random hive or two on odd occasions.

April to September 2005 - Still feeling very fatigued. Vision suffering tremendously, especially at night. Crashing alot after eating. For the 1st time in my life getting massive sugar cravings, especially after meals. At work, consantly feeling foggy, can't remember even the simplest of things. Strange heart palpitations and shallow breathing. Eyelids constantly twitching and my face on some occasions looking very puffy. The underside of the big toe on my right foot constantly feeling numb. Getting *****ly sensations at my finger tips sometimes. Hands and feet getting very cold. I'm getting very sensitive to different temperatures outside and inside. Going back and forth between constipation and diarhea. I develop some blood in my stool, which freaked me out, prompting my initial foray into searching the internet for symptologies. Stupidly, I start taking some expired, leftover Penicillin 500V tablets I had leftover from an infection I once had. Finally get to the doc. He diagnoses me with an internal hemorrhoid. I explain to him some other symptoms and he tells me that I need to eliminate stress.

October 2005 to October 2006 - The symptoms start cascading out of control. I have a massive panic attack when a massive bruise appears on my left arm where my doctor had drawn some blood almost a week prior. I'm feeling malaised, feverish. My feet start hurting so badly all the time, especially my heels. My joints are popping so loudly all the time. My tongue feels and looks swollen, as well as scalloped edges. My neck aches quite a bit near my adam's apple. When I sneeze, I get massive, tight pains in my upperchest/throat area. My eyes look irritated and I feel so much pressure behind them. I'm getting massive migraines. My body aches in every place possible. I'm going thru bouts of hyperactivity. I'm crashing alot. I wake up the morning after St. Patrick's Day feeling nauseas. Thought it was just a hangover. The nausea persists for days.......then weeks.......then months. One night I'm at wedding and I feel very lightheaded, almost ready to pass out and have this odd sensation in my lower left abdomen. I pushed through it, even though I wanted to be taken to a hospital. My body seriously is aching all the time. I feel almost hypoglycemic. I've put on about 25-30lbs, which is odd considering how hard it was for me to gain weight prior. My wrists hurt so badly. I have periods where I feel ok, thinking maybe it's just the stress......then wouldn't you know it I feel like crap again. Symptom pairings are constantly changing. I'm going thru extreme bouts of depression, anxiety and very apathetic towards everything. I should note I'm eating alot of fish, after having never eaten it for 26 prior years. Tuna for breakfast, but nibbling off of the fish specials we go over in lineup before lunch and night serving shifts begin.

November 2006 - Quit the serving industry. Sitting at home alot. Symptoms dowgrading a little bit, perhaps due to the fact that I'm not up on my feet all day long waiting on tables. Only symptoms I'm currently feeling are some body aches. Feet hurt. Eyes get irritated. Get really tired after eating. Hearburn. Tight feeling in the throat.

My mother's doctor, the one I saw in December, diagnosed me with Gilbert's Syndrome - a benign hereditary condition of the liver which causes the build up of bilirubin that's not properly being processed in the pathways of the liver. Lets me know that my good cholesterol is a little bit high, but it's not somethine he's worried about. Doctor not really willing to hear me out on all the research I've done and the new **** TSH range guidelines changed in 2003.

I should note that I took my temps on consecutive days and consistently finding myself right around 96.2 to 96.5 ..........blood pressure up to 131/80 now.

Last edited by enigmatics; 03-02-2007 at 12:36 PM.

 
Old 03-02-2007, 01:08 PM   #6
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Re: Getting really hypo again.....

Hopefully, the doctors you see are looking at that total picture and doing the right labs.

I see more of the classic hypoT symptoms in the long version of your story, but you still may continue to find physicians resisting a hypoT treatment with labs that good and your antibodies aren't even out of range. If it is hypothyroid disorder developing, it is most likely you'll have to wait until the diagnosis can be made more clearly.

It sounds to my untrained ear like, even if you might be on your way to hypoT, there must be more than that going on. I can tell you I was undiagnosed hypothyroid for 20-30 years most likely and untreated. By the time I raised my hand and let out a weak "help me, please," I was one sick puppy. And yet, after ten months taking an increasingly stronger tiny pill, I'm feeling better than I remember feeling in my entire adult life, which is longer, btw, than you are old.

What I am trying to say is that, if you are borderline hypothyroid and can't manage to get treatment yet, your labs are assuring. They do let you know you are not in grave danger from that disorder, anyway.

I hope you continue to pursue the whole list of issues until you feel well again and, if hypothyroid is part of the mix, I hope the labs raise the flag soon so you can begin to get relief.

Last edited by ErinBeth; 03-02-2007 at 01:10 PM.

 
Old 03-02-2007, 01:31 PM   #7
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Re: Getting really hypo again.....

I just don't understand why docs are so quick to dismiss what I'm going through, even the doc I had seen for years. I've never been one to complain about health issues. I don't understand how it can be normal to have thyroid antibodies which haven't gone out of range yet. The new ranges set in 2003 by the American Association of Endocrinology clearly indicate that my TSH is worrisome. All the docs I have gone to see are worthless. They don't hear me out. The last guy I saw literally prescribes everyone some Lexapro thinking that "it all starts upstairs."

I feel on a deserted island with this, just kind of wasting away. The worst part about all this is the helpless feeling it has left me with because nobody is willing to take the time to help me.

Last edited by enigmatics; 03-02-2007 at 01:31 PM.

 
Old 03-02-2007, 04:19 PM   #8
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Re: Getting really hypo again.....

The swollen tongue with teeth indentations on the sides is very much a hypoT symptom. I had it and still do but, nothing like in the beginning. My mom also had it when first diagnosed.

 
Old 03-02-2007, 06:54 PM   #9
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Re: Getting really hypo again.....

What is a swollen tongue with teeth indentations on it?? Just curious. Also, i just recently found out that i am hypo/hashi and never realized that a symptom is heel pain. My heels hurt often, especially when i just get up from laying down or in the morning and first start walking.
Engimatics,
You sound hypo to me, keep going for blood work and keep on top of it. I had alot of symptoms and my labs were coming back normal and i kept complaining and my last labs my levels were so off finally. I was starting to think i was making all my symptoms up.
Jennifer

 
Old 03-03-2007, 05:30 AM   #10
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Re: Getting really hypo again.....

enig just reading your lengthy posts wow hugs from the uk anyway and hi i think we have spoke before,
i also have had alot of the symptoms you have extreeme thirst and my tongure feelsd like a strip of swollen carpet i think bout my illness and get paranoid i started getting this at 30 so i relate to how awfull this is when we are young it has taken my life away i feel agraphobic and i have 3 kids i have to look after when i wake up ihave to statre at the ceiling to get my eyes to water without blinking for a few miins!!!
the eye doc gave me some eye gel i had to come off thyroxine only to have to go back on it!!! i thought i might have got out of this illness but alsas did you feel hyper to start with im still on the waiting game i might have to go up on the meds and im not at the right level yet i am going for diabetesd tests on mon as mythirst is really bad and i feel like i ahve a flue most days or somehting i feel lie i wan t my life back asap have your bloods done for everything i also think i had yhe longg term glandular fever aswelll and lots of tonsilitis and chest infections when younger my tsh was 0.05 and i was on less than a 25 pill then the dr said come offf it and it threw me to a tsh of 15 something !!!! so i had to start again i wish i did it graduall but ther is no point in ging over old ground we have to getb to the bottomm of this dont we why we feel like we are 80 at this age im still fighting to find out what is going on one thing my gland was up the one side and i had a really bad toothe prob aswell so maybe we still have some infection i bet with all the thirst you go to the loo alot ???? and thats makes me dehydrated its horrible so make sure you have those sachets with salts in them the ones thye give to kid s who have the runs also what is your temp mainly or does it stay the sam e through the day ??? and do you go for a number 2 every day ???? maybe you are alittle dehydrated everytime i have amed raise i fel like this for a while how long ago was your last increas?????? keepus posted and take care love from pursie my heart goes out o you keep up with those bloods ok xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx xx xxx

 
Old 03-03-2007, 11:50 PM   #11
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Re: Getting really hypo again.....

where are you enigmatics im just getting this to top of the page hope you are about love from pursie there are some posts for you before this onexxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

 
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