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Old 03-27-2007, 04:20 PM   #1
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Anyone have a thyroid problem right itself during pregnancy?

I was diagnosed with hyperthyroid via routine 1st trimester bloodwork (low TSH, normal Free T4 and T3, high TSI - Graves diagnosed), I'm not sure if I ever had any hyper symptoms, it seems like my symptoms at the time were all hypo. I was put on PTU per my OB's insistance. After 2 weeks on PTU I had a couple of days where I felt better and had normal labs then. That was short-lived, and 2 weeks later, my Free T4 and T3 were at the very bottom end of the normal range (possibly hypothyroid). They cut my dose in half at that point (to 25mg daily). I had labs drawn last week (3 weeks after the dose decrease) but haven't gotten the results back. My guess is that they're still hypo-"normal" since my out-of-breath symptom that got significantly worse a few weeks ago is still here.

In the meantime, I've been having severe symptoms that the endo says aren't thyroid-related (she's not a good endo and I'm not comfortable with her). My OB says they're not pregnancy-related. I was also checked out by an Internist who ran a bazillion blood tests, did an echocardiogram, EKG, EEG and looked for and ruled out everything under the sun. On paper, I look fabulous...LOL! In reality, though, I feel aweful. The Internist is out of suggestions except to say that maybe the hyperthyroid problem righted itself and maybe it's the PTU that's causing my current symptoms if it's no longer needed. That would make more sense to me than all of the other bizarre things they've checked for and ruled out. Has anyone else had a thyroid problem right itself during pregnancy?

The Internist referred me to a better endocrinologist that he knows personally, and even called to get me an appointment for tomorrow afternoon!

 
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Old 03-27-2007, 04:35 PM   #2
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Re: Anyone have a thyroid problem right itself during pregnancy?

JC i'm still around. I have to get kids to bath and bed. after i do this i'll post a better post. I have followed you wehn you first came on here with this so i'll post again. k I"m sure the others remember you as well and will post when they can to. sory you are feeling this way. I have been battling illnesses with 3 of the 4 kids for months now and since i was ill myself have come out of remission. but hey i'm better off then most so i dont try to complain much. I'll post about pregnancy in a little bit. Hugs ot you and little one. Have we found out what your having yet.! Oh and dont tell me you didnt find out, i will so be upset! LOL But if you're not at that stage then it's ok I dont remmeber how many weeks you'd be by now, i think 2nd tri by now right?

 
Old 03-27-2007, 05:00 PM   #3
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Re: Anyone have a thyroid problem right itself during pregnancy?

I read in Mary ******'s book that she went into remission with the Hashimoto's during pregnancy and had a reprieve from symptoms. I was subclinical hypo with Hashi's when I was pregnant and I felt better the first two trimesters, then MUCH worse for the third. I don't have any "scientific" answers for you, but that's my experience.

 
Old 03-27-2007, 05:51 PM   #4
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Re: Anyone have a thyroid problem right itself during pregnancy?

I am concerned and would seek a 2nd opinion if any one of my OB's during any of my 4 pregnancies siad that being out of breathe was NOT a symptom of being pregnant. Not sure why your OB would say this but if your labs are normal (within range) then you should be fine. You are pregnant and that WILL have an effect on you regardless of weather you have a disease or not and weather it is within normal ranges or not. Pregnancy has its ups and downs. Dizziness, sickning ill feeling all the time or sometimes not,loss of breathe even blackout during the winter from low sugar,you can get temporary arthritis, hip and joint pain, certainly sciatica, bowels will most likely be dependant on what you eat(if you eat fiber guess what your bowel movements will be loose), if you eat too many apples you'll be constipated.

I certainly understand if you dont like your endo I certainly am seeking another because mine will not treat me the way i want to be treated and my levels ARE off. What are your symptoms that you are saying the endo says arent related to the graves disease that the OB says arent related to the pregnancy? Not sure what to think since i dont know what symptoms you are referring to.

 
Old 03-28-2007, 08:32 AM   #5
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Re: Anyone have a thyroid problem right itself during pregnancy?

I am 23 weeks along, and all of this started when I was told by my OB's office I had a low TSH around 12-13 weeks. At the time, my symptoms were in line with hypothyroid - extremely tired and worn out, moreso than the other 2 pregnancies, no energy, freezing all the time, episodes of feeling like I was going to pass out, getting really hot and ripping my clothes off, feeling like I was immediately going to vomit (all for about 5 minutes or so), then ending in cold sweats and zero energy to even pick myself up off the floor for quite a while and being completely worn out and feeling the effects of the episode for days later (all of that could also have been 1st trimester pregnancy stuff or low blood pressure too). I had no symptoms of hyper (only the opposite), but I was diagnosed with hyper based on the labs. I was treated with PTU end of January/beginning of February because my OB pushed for treatment, the endo didn't want to treat it.

After 2-3 weeks on the PTU, I had 2 days of feeling a lot better and had middle-of-normal labs at that time. That was short-lived and I started having even lesss energy than before and ever since then I can't stand even long enough to peel an orange over the garbage can without feeling out of breath like I just finished running a marathon, crossed the finish line and am ready to collapse from sheer exhaustion from the race, getting dizzy and feeling like I'm going to pass out and fade into oblivion - EVERY time I stand for a minute or 2, no matter what. So, now I can't take a shower, stand in line at the pharmacy, etc. I've been dealing with an energy "deficit" (hard to explain). If I expend a little energy today (I mean very little energy like taking a bath is too much energy for the day), I'll wake up tomorrow feeling half dead and it goes downhilll from there. I can't do ANYTHING and still can't break even on the energy level. I'm on a downhill spiral, despite cutting out every physical thing I do that isn't critical.

Within the last month to 6 weeks ago or so, I started feeling more and more winded, even when I'm just sitting down watching tv or lying in bed relaxing. 4 weeks ago, my labs were at the very bottom end of the normal range and I could have went hypo. My endo cut my PTU dose in half. (I'm still waiting on the results from last week after 3 weeks on the lower dose - I'm curious to see if I'm still borderline hypo based on my symptoms letting up a bit but still hanging around).

Before, I was only winded from expending a little energy - standing, stairs, etc., now it's pretty much 70-80% of the time, even when I'm sitting watching tv, lying down, or doing nothing. My OB says that's normal in the 3rd trimester (true from my last 2 pregnancies as well), but not when the baby only weighs 9 ounces and in the beginning of the 2nd trimester. It is also normal during pregnancy to feel more tired and worn out, but not to be working against a constant energy "deficit." I shouldn't wake up from a good night's sleep (or several in a row) feeling the effects of expending very little energy days prior and feeling half dead like there is a big hole in the bottom of my energy tank and it NEVER gets replenished by the normal things like sleeping, eating (digesting food uses too much energy), etc. I also shouldn't be winded from doing nothing when the baby isn't big enough or high enough to be pushing on my diaphragm or lungs (she checked that out). If all of this started in the 3rd trimester and not the first/beginning of the 2nd, my OB would agree it's the pregnancy, but because I'm not into the 3rd trimester yet, she agrees that this isn't normal pregnancy stuff.

The baby wasn't cooperating during the ultrasound and the entire unbilical cord was in front of the genitals, so they couldn't even see to make a guess at the sex of the baby. My OB is scheduling another ultrasound, given my thyroid problem, for the beginning of May. We're hoping to find out then. If not, she's scheduling another one for 36 weeks (that's cutting it a little close to the end for me to prepare for the new baby...LOL!)

I'm really hoping that the hyperthyroid righted itself during the 2nd trimester and that I just need to cut out the PTU for now. I understand that the Graves antibodies are still there, but maybe I don't need the meds right now. That would make a lot more sense to me than all of these obscure and rare diseases they're been checking for and ruling out.

 
Old 03-28-2007, 02:00 PM   #6
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Re: Anyone have a thyroid problem right itself during pregnancy?

Jm..have you gained weight during your pregnancy so far? In "thyroid for dummies" it says a hyper won't gain weight or even LOSE it..also..there is something called "gestational transient thyrotoxicosis" another cause that it says is more frequent than Graves. It also gives an example of a pregnant woman with Graves that improves after going on ptu for 6 weeks and is taken off it for the second half of her pregnancy,so it's probably too high a dose, or you went hypo and don't need it anymore.Ask the doctor about the sentence in quotes, though. Do you have , or did you have high free t-4 and low tsh?That is what a pregnant hyper has. Hope this helps a little...sometimes a pregnancy brings out thyroid probs.

Last edited by Bran'sNana; 03-28-2007 at 02:02 PM.

 
Old 03-28-2007, 02:04 PM   #7
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Re: Anyone have a thyroid problem right itself during pregnancy?

Well, the new endo says my symptoms aren't endocrine or thyroid-related and she suggested possibly pulmoary-related. ARGH! The thyroid labs are within the normal ranges and, since the thyroid isn't causing my problem, the PTU isn't the problem either. Apparently, the baby needs the PTU to block the Graves antibodies (I didn't think it was possible to block the antibodies from crossing the placenta).

So, now I feel like I'm back to square one, this time with no other options left besides bedrest, which I was hoping to avoid. I have a call in to the Internist to see if he has any other suggestions, but yesterday he said he can't think of anything else. He did offer a referral to a cardiologist and one to a pulmonary specialist, but he didn't think either of them would find anything, just rule more stuff out. The reality is that with either of those, the only solution they could recommend is bedrest anyway, so I don't want to waste my time with more doctors in the mix.

Thanks for all of the help with the thyroid stuff. I really appreciate it! I'm learning a lot and will stick around and see how the Graves disease shakes out with this pregnancy and afterwards.

 
Old 03-28-2007, 02:23 PM   #8
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Re: Anyone have a thyroid problem right itself during pregnancy?

You poor thing...you must be so frustrated and like you keep running into a brick wall! It'll all probably right itself after the baby's born, or at least be easier to control.You'll go for all these tests and iIbet there's nothing wrong with your heart...I went through all those tests too and I was fine, and a lot older than you.It's just a symptom of hyper.. Don't worry....just take advantage of the doctors orders of bedrest!!! Now maybe your family at least will believe it!

 
Old 03-28-2007, 02:23 PM   #9
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Re: Anyone have a thyroid problem right itself during pregnancy?

Brans - thanks for the info (it came up on my screen after my last post). I'll look through my thyroid books for the gestational stuff (none of the endo's are all that helpful; this one said I was never hyper-thyroid but admits that I have Graves antibodies and could become hyperthyroid down the road); I didn't see it the first time through. The only thing she said was that it's very common to have a low TSH in the first trimester of pregnancy, but that doesn't indicate hyperthyroid and usually adjusts itself during the 2nd trimester (which would support the theory that I was on the PTU and no longer need it, but because of the Graves antibodies, she doesn't want to take me off of it). My Free T4 and Free T3 were never out of the normal range, only my TSH was low, my TSI was high and I tested "weakly positive" for antibodies. I was treated based on the low TSH and my OB's insistance that I be treated, not my specific symptoms (3 endo's now have told me my symptoms aren't thyroid or endocrine-related).

According to the new endo, it doesn't matter what they do with the PTU, my symptoms aren't caused by my thyroid or the meds, so they won't get better if they take me off the PTU. So, now I need the "don't know what the heck is wrong with me" message board...LOL!

Maybe a couple weeks of bedrest is really what I need to get ahead of this thing or at least break even with the energy level.

 
Old 03-28-2007, 02:36 PM   #10
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Re: Anyone have a thyroid problem right itself during pregnancy?

Brans - the Internist did an EKG, EEG and echocardiogram only to find that my heart is really strong and working at 100%. With all of the tests they've run, including the normal thyroid labs now, on paper, I look fabulous...LOL! In reality, though, I still feel aweful. I agree with you that all of this came about during this pregnancy and will most likely go away after the baby's born. Most days that helps me deal with it, but I still have 4 more months to go, which seems like an eternity to feel crappy every day. I guess it's just my pergatory, though...LOL! I'm hoping if it doesn't all somehow magically disappear by the next OB appointment (end of April), that I will only need a week or so on bedrest (not the whole 4 months!) to start feeling better and be able to gradually work back up to being able to take care of DD. Right now that's all I'm doing and I've cut out just about everything unnecessary, I just can't seem to get on top of it yet. Thankis for always being there for me and continuing to respond to my bazillion questions trying to figure out this thyroid thing, if it's even the thyroid thing at this point (it seems like the symptoms are similar but there must be some difference between what's going on with me and true thyroid symptoms if 3 endo's have told me my symptoms aren't related, right? or did I just happen to get 3 duds, 2 of which come highly recommended?).

 
Old 03-28-2007, 04:48 PM   #11
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Re: Anyone have a thyroid problem right itself during pregnancy?

gee jm,I wish someone had an answer for you, but if 3 endos can't figure it out,I'm really stumped.Keep your fingers crossed, I will ..maybe you'll feel better in the next couple of months.You're only 4 months away, it seems like yesterday you were like 12 weeks,it's going by fast for ME!!LOL!! Just keep your sense of humor and you're a young healthy girl, you're going to come out of this fine,I know it!

 
Old 03-28-2007, 05:47 PM   #12
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Re: Anyone have a thyroid problem right itself during pregnancy?

I'm sorry to ask this again but what are your symptoms? And are you sure they arent just related to being pregnant? AGain I say that high pulse rate, sitting to standing can get you dizzy, even bending over and up again will do that, tired all the time through out the whole pregnancy isnt uncommon at all, your heart rate can be higher at all times and even get worse in teh summer. I remember my black outs all the time and my low sugar levels with all 4 of my pregnancies.

I dont know what symptoms you are referring to in order to try to see what else could be your problem.

 
Old 03-29-2007, 06:46 AM   #13
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Re: Anyone have a thyroid problem right itself during pregnancy?

mama - Thanks for all of your advice and concern for my situation. It means a lot to me that everyone here is so supportive, even though at this point, my problem may not even be thyroid-related like I've assumed all along (which is why I'm on the thyroid board - I can't seem to find the "what the heck is wrong with me" board which is where I belong now...LOL!) I agree with you that my symptoms seem consistent with normal pregnancy stuff (particularly in the 3rd trimester, but this all started at the end of the first trimester/beginning of the 2nd - way too early for it to be the baby causing them like would be consistent with the 3rd trimester), but with the ones that are causing me problems, there are subtle differences that are the reason my OB is saying it's not normal pregnancy stuff and the Internist says it's not due to low blood pressure (I have that too but my symptoms are too severe to be caused by that), low blood sugar, etc. This is also my 3rd pregnancy, and while I understand that every pregnancy is different, this just doesn't feel "normal."

There are 3 related symptoms that are debilitating for me:
Whenever I'm standing for ANY length of time (even just long enough to peel an orange over the garbage can or stand at the pharmacy counter to pick up a prescription), I get out of breath, my heart pounds really hard in my chest (not fast, just hard - all of the heart tests came back clear), dizzy/black/blurry vision, and feel like I'm going to pass out and fade into oblivion - just like my body just finished running a marathon, crossed the finish line and I have no more strength left and am going to collapse. It happens EVERY time, not just if I haven't eaten, just stood up, etc. It's not just when I go from sitting to standing too quickly (sometimes that happens too with the low blood pressure, but that feels different than this), it's after I've been standing for a minute or so already. The wierdest thing is that I can walk for short distances without much of a problem, I just can't stand there.

I am also dealing with an energy "deficit" (don't know how else to describe it). Normally, when a person expends too much energy, they feel the effects immediately and sit down or take it easy after that. If they overdid it that day and their body is worn out, they go to bed early, get a good night's sleep, their energy gets replenished and they feel better tomorrow (maybe not up to par but at least better). That's not the case with me anymore. It's like there is a hole in the bottom of my energy tank and the normal things like sleeping, eating, resting, etc. don't add an ounce more energy, and if I did too much yesterday, I'll wake up feeling even more drained and worn out today, worse than I felt yesterday when I was actually expending the energy. That would be a lot easier to deal with if I was at the break-even point with my energy level, but I'm nowhere near and feel like I'm constantly working against a "deficit." If I expend ANY energy today (even taking a bath is too much energy expended) I feel worn out and out of breath shortly afterwards but I also still feel the effects of expending too much energy (worn out and out of breath - even when sitting or lying down, it's constant) for days/weeks to come. I had an ultrasound 4 weeks ago where the baby wouldn't cooperate and they had me walking up and down flights of steps (nothing out of the ordinary for normal daily activity, so it wasn't really strenous exercise). It didn't bother me much immediately, but I had to lie down and go to bed early that evening because I didn't have the energy to even sit down when I got home, and for the next 3-3 1/2 weeks I was completely winded and worn out as if I had just finished a marathon but the energy was expended weeks ago. I still feel crappy but slightly less winded. A normal person would have felt they were overdoing it immediately and sat down to rest or been tired that day, not for weeks to come. It's very bizarre.

The other related symptom is being winded 70-80% of the time. If I was in the 3rd trimester, my OB and I would agree with you that the baby is getting big and pressing on my diaphragm, lungs, etc. and causing the problem. However, this all started in the early 2nd trimester when the baby only weighed 9 ounces and I wasn't very big. My OB said there's no way the baby could be causing me to be that winded at that point in my pregnancy. It is not just when I am doing anything physical either, I could be sitting down watching tv or lying in bed and feel like I just ran a marathon and can't get enough breath. It doesn't feel like a lack of lung capacity, just that I'm not breathing deep enough to get enough oxygen or whatever that my body needs from my lungs. I compensate by trying to breathe deeply but nothing helps. I could be resting for an hour and still feel just as winded as when I first sat down.

I just got off the phone with the Internist. I left a message for him after the endo appointment yesterday to see if he has any more ideas before I accept my fate of bedrest. He referred me to a pulmonary specialist. I hesitate adding any more doctors to the mix (I don't have any more time or energy left) to tell me I look fine on paper and they can't help me, but I guess it's conceivable that maybe I'm not getting enough oxygen or something that could be causing all of my problems. If I were in the 3rd trimester, I would probably not bother anymore, but I still have 4 more months to go. I've been on a progressive downhill spiral for the last 2 1/2-3 months, which has already felt like an eternity and the idea of 4 more months of this (what if it continues to get worse as the pregnancy progresses?!) is just overwhelming. Yes, I'm thankful that whatever it is, it's pregnancy-induced and will most likely go away after the baby's born, but it's still a long ways off.

 
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