Nyxie63

Hi D! Sorry you're feeling like crud. I'm not an expert or anything, but here goes...

I'm assuming the only test you've had run for your thyroid is the TSH. While TSH is a good guide, it's not the holy grail most drs seem to think it is. TSH is really a hormone secreted by the pituitary to tell tell the thyroid what to do. TSH levels can be affected by illness, medications, time of day the test was taken, etc.

Do you know what your TSH level is? If so, please post it. Many labs and drs are using outdated ranges for TSH and, consequently, a lot of folks who really have a thyroid problem are going untreated. The new range, as of 2003, is .3-3.0. A lot of people really feel like crud when it's over 2 and even lower. It's also possible to have a TSH level well within the new range and have a real thyroid problem, which is why it's necessary to get other tests done.

You need to also have your FT4, FT3, TPOAb and TgAb (the last two are antibodies) tested. I'd also recommend getting your cortisol and ferritin tested.

Just so you know, Wilson's Syndrome isn't recognized by any conventional medical associations (western medicine) and most drs will just look at you funny if you mention it. From the reading I've done on the subject, "true" Wilson's Syndrome is defined as having excessive Reverse T3 (on testing RT3 levels, to be dx'd for Wilson's Syndrome, your RT3 would have to be some 100 times your FT3 levels), which is extremely rare. Dr Wilson also tends to lump all hypometabolism problems under one dx and then only treat the thyroid. Honestly, I'd give this one a pass in favor of another dx.

Just out of curiosity, when you were dx'd with lupus, was it due to symptomology or was it due to the results of blood tests? Have you also been tested for Lyme or other tick-borne illnesses?

The problem is that symptoms from many conditions tend to overlap and it's darn near impossible to get a proper dx without a dr who's willing to do all the necessary testing.

Good luck and please keep us posted.