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Old 05-20-2007, 09:16 PM   #1
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Location: Wabash
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byHizgrc HB User
Question Bad Thyroid + Normal Test

I suspect I may have a thyroid disorder, but my test have always come back normal. I've done enough research to know that it's possible to have thyroid problems but have a normal test result. I've heard that some "rare" thyroid disorders require test that aren't the norm.

Does anyone know what I'm talking about?

Can you give me more info (what the test are, what the name of the disorders are...)?

I've heard one possibility is Wilson's Thyroid Syndrome. What are some others?

Here's a quick... very quick... run down of symptoms:
  • SEVERE fatigue
  • Abdominal Pain
  • Dizzy
  • Little blood spots on skin like the thing called petechiae
  • Itching
  • VERY irritable
  • Weak
  • Swollen/tender glands in neck, chest, armpit, & under knee
  • Full/bloated feeling
  • When I push one side of my neck, something shifts over & makes a crunchy, grindy type sound
  • Dry hair & hair loss
  • Dry skin...sometimes flaky
  • Memory & concentration problems
  • Frequent sore throats

AND this is only a partial list!

BTW... I have been dx w/ lupus & fibromyalgia - plus some other overlapping conditions. I don't know what they are causing & what could be something else. In fact, I sometimes wonder if I wasn't misdiagnosed.

I REALLY hope yall can help!

God Bless,
D
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God Bless,
Denise

 
Old 05-21-2007, 03:26 AM   #2
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Nyxie63 HB UserNyxie63 HB User
Re: Bad Thyroid + Normal Test

Hi D! Sorry you're feeling like crud. I'm not an expert or anything, but here goes...

I'm assuming the only test you've had run for your thyroid is the TSH. While TSH is a good guide, it's not the holy grail most drs seem to think it is. TSH is really a hormone secreted by the pituitary to tell tell the thyroid what to do. TSH levels can be affected by illness, medications, time of day the test was taken, etc.

Do you know what your TSH level is? If so, please post it. Many labs and drs are using outdated ranges for TSH and, consequently, a lot of folks who really have a thyroid problem are going untreated. The new range, as of 2003, is .3-3.0. A lot of people really feel like crud when it's over 2 and even lower. It's also possible to have a TSH level well within the new range and have a real thyroid problem, which is why it's necessary to get other tests done.

You need to also have your FT4, FT3, TPOAb and TgAb (the last two are antibodies) tested. I'd also recommend getting your cortisol and ferritin tested.

Just so you know, Wilson's Syndrome isn't recognized by any conventional medical associations (western medicine) and most drs will just look at you funny if you mention it. From the reading I've done on the subject, "true" Wilson's Syndrome is defined as having excessive Reverse T3 (on testing RT3 levels, to be dx'd for Wilson's Syndrome, your RT3 would have to be some 100 times your FT3 levels), which is extremely rare. Dr Wilson also tends to lump all hypometabolism problems under one dx and then only treat the thyroid. Honestly, I'd give this one a pass in favor of another dx.

Just out of curiosity, when you were dx'd with lupus, was it due to symptomology or was it due to the results of blood tests? Have you also been tested for Lyme or other tick-borne illnesses?

The problem is that symptoms from many conditions tend to overlap and it's darn near impossible to get a proper dx without a dr who's willing to do all the necessary testing.

Good luck and please keep us posted.

 
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Old 05-21-2007, 05:24 AM   #3
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Suey77 HB User
Re: Bad Thyroid + Normal Test

byHizgrc ~
Sorry, I cannot tell you what test or syndrome. Something I've noticed with Doctors is they say *normal* when you barelyfall within ranges. So you be almost HIGH or low, but because we fall within THE V-A-S-T RANGE we hear NORMAL

It would be interesting to see what tests they have run. Be sure to post ranges with them.

 
Old 05-21-2007, 12:38 PM   #4
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pinkprincess3 HB User
Re: Bad Thyroid + Normal Test

Hi...sometimes you can be hypothyroid and have normal blood test results...they are just not normal for you...2 good books for you to get and read are Could It Be My Thyroid by Sheldon Rubenfeld MD..Thyroid Power by Richard Shames MD...both have lots of info on getting a diagnosis and treatment...Barnes&Noble or Borders/Waldens can order them for you...Please keep posting and Please let us know what happens

 
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