My story summarized:
Issues and symptoms of thyroid dysfunction at the age of 27. First and only pregnancy kicked my butt and did me in. The pregnancy was a surprise. I had been told by my OB five weeks prior to being pregnant, that I was infertile. Humm.. should have gotten a new OB right then.
I was sure (being infertile) I had the stomach bug from Hades, Vomiting 24-7 that wouldn't go away. Not so lucky it was morning noon and night sickness, which lasted my whole pregnancy. Other stuff: I had with extreme water weight gain and loss, liver and kidney issues, joint pain and dislocations, hormonal migraines and vision impairment; but, the baby was developing well, so I was told it was natural just live with it. I would flux over 20 lbs in water weight a day. By month five my joints would not hold me up with out a walker or cane aide. By month seven my liver was trying to fail on me (they began to treat that), I had ceased to sleep, and I retained so much water I shifted with the tides and sslept on the toilet at night. I had vision loss and migraines and all the classic thyroid skin signs.. and my hormonal levels were bad. They never gave me anything to get my thyroid balanced. Then my water broke (no labor) 6 weeks early!
Got an in affective epideral. Did 13.5 hours of induced labor. Went from the 100% ready to go.. to the kids head is stuck, swollen shut, and this baby coming out of here... so the OB asked if I wanted to continue to push and drive to the line (my husband said I got a bit scary and told him where he could put his football analogies) to which my OB said we have a failure to convert and need to go for an emergency C-section (smart donkey!). An emergency C-section saw the successful extraction of a healthy ten pound premie boy with a 14.2 inch circumferance head
. (so much for the seven pound estimate)
This should have been it right.. I dropped 40 pounds the morning my son was born, and another 30 in retained fluid the following three days after that. So far so good, but what was with all this pain, strange symptoms, and chronic fever. After five days in the hospital, I was sent home with a fever of 103.5. I got ill that night and had to be rushed back to my normal OB first thing the next morning. She immediately diagnosed me with septic pelvic vein thrombosis and a uterine infection.. so back to the hospital for me for another three weeks on IVs.
Now my undiagnosed thyroid issues, were continually dismissed out of hand. And I was too tired to argue. I took their diagnosis of, "It is common in pregnant and post partum women to have such issues. You have to just deal with it, it will go away." It didn't and my symptoms started to get worse. Luckily, I moved and got better health care.
So in the five years after my son's birth and our relocation I went on the blinder wearing specialist marathon and praised my health insurance company. Allergist immunologist.. shots not needed again (Completed 2 series previously), just medicate. ENT.. a bilaterial turboplasty performed on my sinuses for the chronic sinusitis and allergic rhinitis. Then my 4th GP (internal med.) suspected sleep apnea. I was sent to my sleep specialist and diagnosed with severe sleep apnea. The sinus issues continued and given my sleep apnea I went in for sinus surgery #2 full roto rooter of the head and T&A. All good no more chronic sinusitis only chronic bronchitis now. Dermatologist for facial swelling and skin issues which occurred with increasing regularity. Diagnosed with severe contact dermatitis, exzyma, and rosecea and a contact skin allergen test was performed and confirmed my allergies to iodine, cobalt, nickle, propylene glycol and some other stuff.
Well my given all my medications and the fact the hormonal migraines and vision issues were getting worse.. I was figuring I was screwed. Then I consulted my new high risk OB-GYN about having a second child (1 mo. ago).. and she looked at my history and said you need to be tested and find out more about your mother's thyroid history.
Well the tests began and family information search began as well. My mom was a bit ashamed and unwilling to share, but I got a look at her Thyroid uptake scans and post surgery report. Graves and Hashi's.. Hashitoxicosis... (Oh boy.. on-line research and things began to make sense) Now my mom is the oldest of five sisters.. Well the next sis in line after my mom has Hashitoxicosis (like my mom), working toward just Hashi's now. She had many pregnancy difficulties and only one successful pregnancy and is scheduled to have her thyroid removed. Sister two down the line has hashi's and had only one successful pregnancy. Sister three is suspected of being hypothyroid or hashi's, but refuses to be tested. She has had three successful pregnancies. Sister four has just “Graves” disease, and has had four successful pregnancies. So thyroid issues are definitely genetically dominant here why should I be different.
Well the results came back and the TPOAb and TGAb were high indicating a thyroid disorder, Hashi's at least. TSH, T4, FT4, T3, FT3, and T3-Uptake were odd.. off in both hypo and hyper ways, but still just in the "normal range". My GP consulted his in house endo .
This endo said I was too young at 32 and I didn't need to seek treatment for my thyroid at this time. I was at an increased chance for miscarriage, but not bad enough to treat.. we will just monitor it and let your OB deal with it if you get preggers.
Well I went against that advice and got a recommendation to the best endo in town. I also finally got all GD antibody results in, and it looks like I am just Hashi's and not Hashitoxicosis like I was suspecting.
Results Normal Range
TSI 1.1 <1.3
TRAb 10% <100%
Which leads me to question, what is with the periodic hyper symptoms. Hopefully, my endo can give me some insight into that. So now I begin the adventure of treating Hashi's with regards to attempting a second pregnancy and increased quality of life. Yes, I am asking to be punished.