I have addison's disease (primary adrenal insufficiency).
When I was first diagnosed a year ago, my TSH was labeled "high" by my endo (it was over 5). Since then it has gone down a tiny bit, but is now climbing back up to 4.7 or so. My *new* endo says this is fine - as long as it doesn't go to 5.
I'm not so sure.
Should I get further testing done?
If so, what?
Also, is it urgent? Since I don't think I have any symptoms of hypothyroidism can I wait a few months?
You need an new MD. In 2002 the normal range was changed by the American Association of Clinical Endocrinologists to 0.3-3.0. You are not NORMAL and you are far from optimal. Optimal levels for 85-90% of the populaton have a TSH in the range of 0.89-1.1. Any Endo worth his salt knows this. WHat are your FT3 and FT4 levels? Have you been tested for Hashimoto's thyroiditis? You should be on thyroid supplementation. How long you wait to pursue this is up to you. But many Addison's and thyroid symptoms over lap. I wouldn't wait because it can take months to find and get into the good MDs.
MG
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If we learn by our mistakes, I am working on one hell of an education.
Ok good advice. thank you!
I actually haven't seen my real endo in almost a year - I usually only get to see the nurse. I'm not sure about T3 and t4 levels, I'll have to check. I haven't been tested for Hashimoto's thyroiditis but I will ask to be tested now that I know. Anything else I should ask for?
I went into more detail on the addison's board. I hope midwest and other vets will step in, but i listed the complete thyroid panel of blood work that should be done as a double check on your TSH and to see where you actual levels are on your Addison's thread. I am wishing you the best of luck.
MG
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If we learn by our mistakes, I am working on one hell of an education.
