I have posted a few times and am having a real battle with my health at the moment.. My thyroid was underactive tsh at last test 75.52 my other bloods were not too bad ( i have posted them on another post) liver and kidneys bit off but GP not too worried.... I have had loads of symptoms for years but now i feel that the doc is now blaming everything on my thyroid. I do know it can cause an aray of probs and am prepared for a struggle getting things sorted.
My dr has increased my dose to 100mg per day and i know it will take time to kick in, in fact some of the things like faling asleep all the time have improved lots.
I still have many more symptoms that are restricting my life a huge amount.
Anyway the reason why i am so mad is because i went to have my eyes tested last week as they were killing me, i had blurry vision and eye pain,
My sight had got worse in my left eye, but i was asked to go back for more tests, i had dye put in my eye twice over a couple of days, my pupils dilated etc...
I was asked if ihad ever had any eye injury which i had not.
i was asked when my pupils started to change.....i had noticed that but only couple weeks before.
My eye dr asked me to return at 2pm and collect a letter to take to my dr. i collected the letter and read it (big mistake)
She had written that could i be referred to a neurologist urgently for further evaluation as my exam revealed the following...... eye lid droop on the right eye, left pupil bigger than than the other, scaring on left eye, swelling and cloudy optic nerve. She told me she suspected optic neuritis and she wrote that on the letter to the dr.
I took the letter to my GP who told me that he would not refer me and the problem was a reaction to my thyorxine so what did he do??/ increased my dose of the thyroxine.
i feel dismissed and upset.
of course i do not want further health problems but how can he dismiss my eye dr refereal??
how can he tel me i am reacting badly to my medication then increase the dose??
I am worried now that something is wrong other than my thyroid and from now on any other symptoms i get are always gonna be put down to my thyroid.
My eye dr has told me that this is not thyroid related.
Now i am not only feeling ill, i also am so angry that i did not insist if a referal.......I need to strap a pair on.
Oh he has ordered to re check my tsh levels but thats it.
He gave me a sick note told me not to drive and out of his room i was sent.
I would have so much more faith if dr's actually looked as if they were interested.
Sorry for ranting.....
I don't blame you for being upset. That's like the GP is saying that he knows more than an expert in another field. If he knows more than them, then why didn't he know what the eye problems were from in the first place? I found a really good site on optic neuritis. Go to any good search engine or medical site you know of, and you should be able to find out more. The one I found doesn't say anything about thyroid medications causing the optic neuritis. It does say that autoimmune problems can cause it, but you need a more complete work-up to determine that it really is from that, and not from something else. It also can be treated and leave you with perfect vision after treatment, but can cause permanent vision damage if not treated....Not trying to scare you, but getting you armed with info so you can show your GP.
Does your insurance require that you have referrals to see a specialist? If you aren't sure, call them and find out. I know that I don't need referrals. I can just call up any doctor, any specialty, for any reason, and get an appointment. If they require a referral, see if the ophthalmologist can write it. I'm not sure, but they may be able to for something like this. Good luck with more answers.
Last edited by hawaiidreamergu; 04-18-2008 at 03:25 PM.
You can sometimes shake up a fool like that this way: Tell him to write in your record his opinion that the specialist's diagnosis is wrong - or at least, that he disagrees with it. Tell him to photocopy the notes and give you a copy. This will scare the pants off him that you will sue at a later date when he's proven wrong. I've seen someone here report that it changed the MD's mind about being so stupid.
I am also very sure that your eye problem is not the type that low thyroid causes. Please, do whatever you have to to get the right treatment. I don't know all the details, but every insurance carrier has an appeals process that can sidestep idiotic providers. Check into that.
Thanks for replying, I am in the UK so dealing with the NHS. (tough)
I have had such a bad weekend i feel as though i have been kicked in the gut due to the way the drs have treated me.
I have spoke to some people though including the eye clinic (i could not speak to my eye dr as she was not working)
I have requested copies of all my notes.
I have been to the dr's 11 times over the last 2 and a half months all i have had done is a few bloods.
I went through these since i recieved them....
My B12 is off also, i was told it was normal as i suspected low B12 as i have been such a strict veggie for 20 years.
Also looking at the report from my eye dr i am just boiling with rage,
My eye lid is drooping, my pupils are not the same size by 2.5 mm (roughly)
I have scaring, blurring and bling spots and red colour difference.
Yet my GP is saying thyroid. RUBISH
I am going to go back first thing tomorrow and ask him to sign to say he is not prepared to send me for further testing.
If this was my daughters health i would fight all the way, yet for my own i treat these GP's like gods...
It was me who first insisted on my thyroid being checked.
I will also bring up the B12 thing also as i do not think that is helping with any of my symptoms.
My dr said my symptoms were vague, wish they could live a day in this body, i get the impression that most dr's just clock in and clock out.
Gosh, what a moan sorry but i feel so lost at the moment.........