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Thyroid Disorders Message Board
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Old 04-26-2008, 04:23 PM   #1
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Smile Any postive feedback????

I'm been diagnosed with a goiter...I have some symptoms of hypo...I had them 5 years ago, went to a doctor who said I was probably "sneaking" food, because I have a hard time losing weight. After months on weight watchers and losing 15 lbs., plateaued for a month at the same weight, couldn't lose any more, even while extensive weight training and cardio. My friend noticed a lump in my neck. I have always been "tired", chaulked it up to having 3 kids, busy job, life, etc.

The doctor wants to take out the goiter, along with either half or all of my thyroid. I also have nodules all over my whole thyroid. He did a biopsy last week, I get the results on the 13th of May.

I have always been a very positive person. I've had a few mood swings, but thought it was just me getting "old", I'm 43 and everyone said sometimes you get a little more bitchy at that time of the month. My periods are weird. Of course, I was on the pill for years and then hubby had a vasectomy, so thought I was just getting regulated. Carpal tunnel has started as well. And I've always had dry skin, so that didn't register either. My mom noticed dark circles under my eyes.

I am quite a happy person, have great kids, job, husband and great friends. Have a supportive boss (who's really cute), that helps....just kidding, but he is sort of "hot", joke about that with my friends.

Anyway, I'm a positive person, who loves to work out, walk my dogs, have coffee with my buds and enjoy life. I don't want to stop.

Everyone seems to be so depressed...that scares me more than anything. I love life! Is it all over if I get this thyroid out...my biggest fear is being fat. I weigh 147, with a goal weight of 135...

Anybody with a positive experience out there?

 
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Old 04-26-2008, 05:58 PM   #2
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Re: Any postive feedback????

First let me welcome you to our world wide thyroid dysfunctional family.

Most of those people with positive stories probably aren't here. They are happy and not out trolling for answers. However most of us here are fighting and hypoT/lacking in a thyroid does not mean you are going to be fat. If you get optimal care and treatment of your thyroid, your body will act as normal. Right now your issue could be just thyroid or a few other things tied in. We all have our good days and bad days. Thyroid dysfunction is an excuse to be a bit looney and have mood swings. Medication does help!

I lost 45 pounds by weight watchers.. then my thyroid died or went into serious death throws. I have been gaining weight back since.. but since starting meds in January I have been holding steady and loosing a little bit. I still have 25 pounds to relose and another 15 I want off after that.. but I am not giving up hope. You shouldn't either.

You can not give up and let a tiny pain in the neck keep you down. Nope yank that sucker and move onward. I do recommend you jump in and become thyroid savvy on your own. You have to be aware of what is going on with your body and make certain your MD is on toip of things and not giving you just minimalist care. You have already met with one thyroid dummy or more when it comes to MDs. Now you need to educate yourself so that you can recognize them and fight for optimal care. Unfortunately just because they are MDs or Endos does not mean they know everything or keep up with the latest protocol in thyroid care.

Go to my thyroid care and concerns post. I will add it in with the edit function in a bit. It has the basics and more that I have learned from here and researched.. from over 7 specialists and checking up on 5 MDuds I went through. I have been compiling all my research and information from others and have started something new where we can combine resources and information for all involved. All in all it is a place to gripe vent, learn, and ask questions. Visit or pass it by.
[url]http://www.healthboards.com/boards/showthread.php?t=597479[/url]

On the upside.. I am still fighting, but my mom is the oldest of five sisters. All of these sisters have autoimmune inspired thyroid dysfunction. Four out of five have managed to get optimal care. Some more recently than others. Ubfortunately, they didn't have this board or the internet at theior disposal, they struggled an average of 13 years to get where they needed at the whim of their MDs. Don't let your struggle go that long. Learn to find the one MD that will listen and work to find what is optimal for you as well as manage your thyroid care to the best of your ability.

With that said..
What are the values of your TSH (3rd Gen), FT3, FT4, and did they check you for Hashimoto's? If they are going to biopsy/perform a partial/total thyroidectomy you will learn soon enough. But having a baseline how high have my antibodies gone is beneficial as well. The antibody tests of choice are TPOAb with the cross confirmation test TGAb.

I am sorry that you have joined the realm of the dysfunctional, but you are welcome and we will help whenever we can.

MG
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If we learn by our mistakes, I am working on one hell of an education.

Last edited by mkgbrook; 04-26-2008 at 05:59 PM.

 
Old 04-27-2008, 07:11 AM   #3
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Re: Any postive feedback????

Thanks for your response. When my doctor did the bloodwork she didn't give me any numbers, just said the antibodies indicated to "watch for hypo". Then when I went to the specialist this week, he indicated that if I had this goiter (and it's quite large) I was hypo...

Years ago, I begged for the thyroid test, but was told it wasn't showing in the routine blood work. I have had different tests this time.

The specialist's nurse questioned me about symptoms and I seem to have a multitude of them and she wasn't surprised.

Of course, they are checking for cancer (fingers crossed that it isn't). And they wouldn't talk too much at that appointment as the doctor said he wanted to rule it out first.

Anyway, I'm finding it all very confusing...but the boards are helpful. My sister is hypo and my aunt. My sister is severely overweight, on medication, but does refuse to eat healthy or exercise. After my aunt was put on meds, she lost 50 pounds through diet and excerise and finally feels great after 30 years of visiting doctors who told her she ate too much.

I love weight watchers, but kind of feel they don't address the issue of thyroid, because there are probably alot of people beating themselves up and they have a legitimate medical concern that should be treated.

I will check out the other links you posted.

Thanks!

 
Old 04-27-2008, 07:39 AM   #4
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Re: Any postive feedback????

DING!
You have Hashimoto's!
I am also betting you are undertreated and have been for years. My post will help you. I am Hashimoto's and have a family of experience behind me in addition to what this board and medical journals have taught me.

You need to get a copy of all your lab work. Post it and the ranges here. From that we will best be able to help you. I did weight watchers for almost a year and lost 45 pounds. I gain back 25 when my adrenals and thyroid died. now I have to get those fixed for weight watchers to work. Personally it isn't the fault of WW but you can start asking and talking with those that you see the signs of hypoT in.. it is highly probable that if they are hypoT.. that they are not being properly treated as well.

Sincerely,
MG
__________________
If we learn by our mistakes, I am working on one hell of an education.

Last edited by mkgbrook; 04-27-2008 at 07:42 AM.

 
Old 04-27-2008, 09:22 AM   #5
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Join Date: Apr 2008
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busyvj2 HB User
Re: Any postive feedback????

Thank God I posted on this board....thank you!

Now I know why for years I haven't been listened to, and doctors telling me nothing's wrong, etc.

I have all the signs of hashimoto's, especially the cold hands. I constantly go around with cold hands and feet.

I see the naturopath on May 6th and hope he can help me with nutrition,etc.

It's so nice to have a name to what is going on with my body.

Thanks again.

 
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